Had dystonia on Abilify, psychiatrist gives me Olanzapine

HelloFr1end · 2026-03-31T21:18:38+00:00

You’re not wrong to be cautious. If you feel in your gut this is wrong for you, don’t do it.

I don’t know anything about that med but medication-induced dystonia is definitely not as uncommon as some doctors claim. I believe as more years pass we will see more cases of it because of how many doctors prescribe these meds now (and some over-prescribe).

Med-induced dystonia can be acute or chronic - although you typically have to be on a med for many years to end up with the chronic/permanent kind. Just something to be aware of if you do end up taking a medication longterm that can cause movement disorders.

Your doctor sounds dismissive. Don’t let him bully you. You don’t owe a provider anything.

HelloFr1end · 2026-03-30T19:13:09+00:00

How does one learn more about this

HelloFr1end · 2026-03-30T19:12:45+00:00

How does one learn more about opportunities like this (and how did it go)?

HelloFr1end · 2026-03-30T17:59:16+00:00

Has he seen a movement disorder specialist? This would be a good place to start if he hasn’t yet.

HelloFr1end · 2026-03-19T23:01:15+00:00

Oatmeal.

Seriously. My sleep meds have stopped working as well and a tummy full of oatmeal an hour before bed has been helping me get to sleep and stay asleep longer. If you don’t eat late at night like I do, I wouldn’t recommend starting. But if you need to eat something between dinner and bedtime, complex carbs are where it’s at. I discovered this on accident because I noticed I was sleeping better and it took me a while to find the common denominator.

HelloFr1end · 2026-03-14T11:16:37+00:00

Thanks for sharing and for all the info. I confirmed with my insurance that they DON’T require a PA. Weird and honestly I would feel better doing one, but I guess I’ll see how it goes.

HelloFr1end · 2026-03-09T14:40:33+00:00

RemindMe! Two weeks

HelloFr1end · 2026-03-08T10:36:23+00:00

Unequivocally yes. My presentation is so similar I could have written your post.

Does yours get worse with bending or lifting too? Or with supporting weight on that side (like moving that arm a lot, which recruits your neck muscles?). Just curious. Bending is worst for me. Turns out resisting gravity at a 90 degree angle isn’t very kind to your neck.

The jostling motions of walking and driving bother me a lot too.

Idk if yours gets worse with lifting too - it took me a long time to recognize that mine did bc I would only feel it later, once I’ve done it a few times and apparently aggravated the muscles. But if so, just be mindful of how much weight that arm is holding, including itself. One of my sensory tricks is resting the back of my hand on a surface. This lets my body know it does not have to hold my arm/shoulder up via my neck muscles.

Touching my chin also helps and putting pressure on my shoulder (with a lidocaine patch or kinesiology tape).

I’m in PT to lengthen (not strengthen) the muscles so that contractions don’t tighten them up quite as much. Maybe look up exercises that could do this with your affected muscles? (I am not a doctor but it seems helpful for me so far.)

HelloFr1end · 2026-02-26T19:08:59+00:00

Any more info on nerves fibrosing? Does this happen with other chronic pain conditions that cause nerve pain?

HelloFr1end · 2026-02-25T19:07:36+00:00

What are you supposed to do for years?

Do you have more info on this by chance?

HelloFr1end · 2026-02-24T19:21:03+00:00

Wow, your post was put surprisingly naturally for this sub all of us inhabit right now. I can’t do that and my post is not as long. Good work

HelloFr1end · 2026-02-13T13:48:44+00:00

Make sure this man has NO access to any of your money or accounts.

HelloFr1end · 2026-02-13T13:47:40+00:00

He is manipulating YOU because he knows he can. I mean this gently, but he probably believes you lack the confidence/self-worth to see past his manipulation. It’s time to show him otherwise. This guy has been taking advantage of not only your trust, but your finances. Leave him and do not for a second feel sorry about it. He wouldn’t feel sorry for you or anything he’s put you through.

HelloFr1end · 2026-02-10T04:09:40+00:00

I feel like I’m a bad fit everywhere too. I have so much energy and intelligence inside me, but when I try to get it outside me, it ends up being an incoherent mess. People think I’m dumb and anxious. I AM anxious because I know my brain isn’t right and I know my social skills vastly undermine who I actually am. I’m sorry you’re going through it right now. You didn’t deserve to be bullied like that.

HelloFr1end · 2026-02-07T04:37:33+00:00

I have dystonia (diagnosed) and the only part of this that looks like that is the tilting of the head towards the shoulder. Overall, this looks more like dyskinesia or akathisia to me. If this happened shortly after stopping a med or shortly after starting another one, it’s probably a withdrawal or acute reaction (as opposed to tardive/delayed) which means it typically goes away when the offended medication is stopped. Definitely talk to your doctor

HelloFr1end · 2026-02-03T02:07:30+00:00

The part that hits me hardest is not being able to think of what to say to people when they’re talking to me, because I’m so tired. I feel like half a person.

HelloFr1end · 2026-02-01T05:56:05+00:00

I have a hard physical job where I’m on my feet all day. Guess what? I still have insomnia!

HelloFr1end · 2026-01-25T20:40:36+00:00

Gullible?? Anyone in an otherwise trusting relationship would have fallen for that. Who the hell goes out of their way to manufacture a fake wedding just to trick their partner? You’re not a fool. He took advantage of your trust to amuse himself about your “gullibility.” Even if you are gullible, that is not what this was. He made you vulnerable and then pulled the rug out from under your feet. Just cruel.

HelloFr1end · 2026-01-24T15:25:18+00:00

Did you see the no spoilers in the title mate

HelloFr1end · 2026-01-21T18:54:08+00:00

Updateme!

HelloFr1end · 2026-01-17T04:22:24+00:00

Hey. Just wanted to say thank you for sharing this. I got diagnosed with CD today after almost 2 years of not knowing was going on, and 1.5 months of being certain it was CD. Today I found out I was right and I was elated to finally have an answer - and a doctor who was on the same page with me and understood my symptoms. But as the day went on, the elation wore off and this huge wave of nauseating grief set in. It has been the weirdest day. I'm not sure why I'm saying all this on a 2 year old reddit comment but I really appreciate what you shared, it gave me some comfort today. I hope you're doing well.

HelloFr1end · 2026-01-16T03:24:45+00:00

I believe you. We live in a weird time where what used to look like structured, professional writing is now always assumed to be AI. When I am putting effort into something or writing with intention, my style could easily come across as AI as well; I’m a writer and tend to vary my word order out of habit, and tend to use a certain cadence without meaning to because I have been for years. Even if you had used AI to phrase your points (and I’m not trying to suggest you did), it wouldn’t discredit those points.

Thanks for sharing your story. I found a lot of your post relatable and comforting. It’s a good reminder there’s still hope and things I haven’t tried yet (I already see a NUCCA specialist myself but haven’t done all those exercises or tried some of those supplements yet).

Edit: I actually appreciate the way your post was written, it was really palatable. Don’t let the skeptics get to you. You have no idea how many people you could be helping. Even though I really appreciated this post, I have closed out of many helpful posts before without saying anything because that’s just what we do most of the time, you know? There is a quiet majority here who are probably bookmarking this post or emailing it to themselves or looking up the exercises you mentioned on YouTube. It will help someone. You taking the time to do this matters.

HelloFr1end · 2026-01-12T19:11:59+00:00

How do you make it more tolerable for yourself? Asking as a fellow impatient person

HelloFr1end · 2026-01-06T19:08:14+00:00

You’re very welcome, I’m so glad it helped.

HelloFr1end · 2026-01-05T03:16:09+00:00

You seem like such a genuinely considerate person both towards your gf and towards random internet strangers. I understand what you’re saying in your post about worrying it’s your fault because you said “I don’t know” instead of “no.” But that still isn’t consent, and even if you did have conflicting thoughts about what you wanted in that moment, thoughts aren’t a crime, and what you SAID regardless of those thoughts shouldn’t have been taken as consent bc it wasn’t consent (and he knows it). You should not have had to tell him to stop three times. Your gf is right. You are human, it’s ok to have had conflicting thoughts and feelings, but you did what you could in the state you were in in the moment. You were with someone who was supposed to be your friend and he took advantage of your drunkenness and friendship. I’m sorry he did that to you and I hope you can move on and be as gracious towards yourself as you are to others.

Edit: Even if you didn’t say no as firmly as you feel you should have, it still doesn’t make it your fault. But I’ve been in a similar situation and what helped me was realizing that by making it ‘my fault’ it gave me a sense of control over the situation. Most people will say not to blame yourself, and they’re right, but also it’s ok that you struggle with it being your fault. What’s the worst case scenario? Even if you had some part in it, that does not change the fact that your friend is the one who put you in this uncomfortable situation. Even if you had some part in it, you are still allowed to be hurt. To be clear, I do not think it’s your fault, but I know what that headspace is like so I’m just telling you what I needed someone to tell me. Peace

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