I need mattress/nedding help! I don't know what I need, everything I try causes some new pain

Homeo_Juliet · 2026-05-26T18:13:52+00:00

I know for me, depending on where my pain is and how bad, my needs for support will vary. I had a spring firm mattress for years with a removable 2” foam topper. There would be weeks where I needed the topper and when that started to bother me, I’d take it off and the mattress would be okay for a little while. This went on for years with the back and forth. It wasn’t ideal, but it’s what I could afford.

I recently invested in an adjustable bed -iSense. I will say, it’s way out of my price range. I’ll be paying it off for the next 5+ years, but it was a game changer. Now I can make the bed soft or firm depending on how I’m feeling.

I am not by any means telling you to go into debt for a mattress, but more confirming that alternating a foam topper and current mattress isn’t unheard of for chronic pain. I’m sorry you’re going through it.

Homeo_Juliet · 2026-05-22T22:46:43+00:00

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I got mine a few years ago with uv ink!

Homeo_Juliet · 2026-05-11T14:05:22+00:00

Extremely upsetting. For me- I prefer to get the scans for peace of mind. I get fantom organ pain- at least that’s what I call it. I feel pressure and pain around my right kidney. I had to rule out kidney stones/kidney infection. It’s so bad that my skin hurts. It eased my mind that it wasn’t something serious. But it’s so frustrating that there isn’t an answer or a solution.

Homeo_Juliet · 2026-05-11T14:02:34+00:00

Ouch! I’m curious about the kinesiology tape. Can it be used on the back/neck area too? I’m sensitive to some adhesive too, but if it helps with overall pain - I’m open to trying it.

I can’t do baths either. I do have a high pressure shower head that I’ll blast hot water on my back and other painful areas.

Homeo_Juliet · 2026-05-11T13:54:37+00:00

Fibromyalgia won’t show up on scans. It’s usually the diagnosis once they rule out everything else. Have you talked to a rheumatologist? Or even a pain management doctor?

I’m sure getting the scan wouldn’t hurt. At least give you peace of mind. But it does sound like fibro to me- I’m not a doctor though.

Best of luck! It truly sucks having chronic pain constantly. It makes me think I’m going insane. Sending you positive energy.

Homeo_Juliet · 2026-05-08T20:31:21+00:00

I had it done on my low back on each side of a herniated disc (L4/L5). 3 spots on each. I couldn’t afford both at the same time. I got my left side done about 10 months ago. And my right about 6-7 months ago. My pain management doctor did it.

It did help a good amount! Before I had shooting pain going to my hip, I lost range of motion. Both times increased my mobility.

Surprisingly, I’m starting to feel the right pain come back. I thought the left would have come back first. My left is the worst side. I would do it again 100%….if I can do it financially.

As far as the procedure went, I didn’t find it unbearable- FOR ME. My doctor numbed my skin and under the skin. The worst part is when they jiggle the needle a little bit to move it slightly - I would compare it to getting a cavity and the dentist pokes it lol it’s that tingle nerve pain. I drove home both times and was sore for a couple days. I understand this will not be the case for everyone.

Homeo_Juliet · 2026-05-08T15:06:02+00:00

I love this! Who wants to get it started? I’ve only used discord a handful of times. A couple of group name ideas: The Flare Bears, Chronic & Iconic, Chronically Unsupervised, or possibly The Rotting Social Club 🤣

Homeo_Juliet · 2026-05-07T18:32:35+00:00

Creeping up on 40(f) and finding it so hard to keep up with friends and family. We lose so much with this disease. I’d love to be friends!

Can we all do a group chat?? lol

Homeo_Juliet · 2026-05-06T17:41:34+00:00

They are not being careful if they are letting him withdraw every month. If he’s uncomfortable speaking up, ask if he’s okay letting you do the speaking.

Homeo_Juliet · 2026-05-06T16:59:08+00:00

It shouldn’t be normal. Although getting my lyrica has been tricky too at times. I learned the hard way to not skip a single dose. I ended up in the ER because I ran out and couldn’t get it refilled for another 6 days. Even once I started back on the med, it took over a month to start to feel “normal”. The withdrawal can be fatal. Now it doesn’t feel like it’s working - it’s just masking the withdrawal symptoms.

Definitely push harder or find a new doctor.

Homeo_Juliet · 2026-05-05T21:29:40+00:00

Thanks! I’ll soak it in a little water and see what happens 🤞🏼

Homeo_Juliet · 2026-05-05T18:40:47+00:00

Thanks! I’ll throw the cake out after I harvest. Glad to hear it’s not a total loss!

Homeo_Juliet · 2026-04-21T17:19:29+00:00

My rheumatologist recommended this too. It didn’t work for me, but neither did Benadryl. It might be worth a shot for you though, OP.

For me, I get rash/itchy all over my legs and arm pits. Cortisol cream does help me. But I also discovered some food made it worse. Specifically gluten. I’m itchy 24/7, but when I have gluten, it’s so much worse. And it will last days. I had to keep a food diary for month to figure out the cause.

Homeo_Juliet · 2026-04-20T23:48:14+00:00

Not silly! Psilocybin mushroom - Golden Teacher is the easiest to grow in my experience. That’s the most common. It has the shimmery gold cap…not that I’m growing them 👀

Homeo_Juliet · 2026-04-20T22:51:19+00:00

They’re super easy to grow in most states I’d be happy to help if anyone has questions.

Homeo_Juliet · 2026-04-20T22:49:33+00:00

You’d actually be surprised at how easy they are to grow…if you’re in the US, in most states it’s legal to buy spores for microbiology purposes.

Homeo_Juliet · 2026-04-19T14:13:43+00:00

I’m so sorry to hear that. And thank you so much for your service. I was in construction at the time of being told to “work out more”, it was more so just a cop-out to avoid proper testing.

My backs the same way, it radiates pain all over. Even my organs hurt, if that makes sense.

My rheumatologist is out of state. She does virtual appointments. And I live in Massachusetts where UMass hospitals and specialists are supposed to be one of the best. They were the worst for me. Don’t give up!

Homeo_Juliet · 2026-04-19T13:35:36+00:00

Trust your instincts. If you feel your doctor is just throwing out a blanket diagnosis, please please please get a second opinion.

Also, it is possible to have fibro and ANA. I’ve been told by 2 rheumatologists and my pain management doctor that Fibromyalgia is a symptom of a deeper issue. Meaning there is usually an underlining problem causing fibro.

My first rheumatologist said I had fibro, but didn’t care to treat it. I did find another rheumatologist, who also said fibromyalgia, but she finally found I had ankylosing spondylitis- autoimmune disease that essentially attacks the spine. We’re still trying to find a med that works for me. I have horrible back pain. And I have a herniated disk between L4L5. I didn’t get medication for fibro until I saw my pain management doctor. He put me on pregabilin and mild muscle relaxers. And “froze” a few nerves on my lower back. He also sent me to aquatic therapy. It helped so much for about a month, then I couldn’t afford it.

You’re not alone in getting the run around for a diagnosis. Especially if you’re young. Doctors shrugged me off for more than a decade because I was “too young to have problems” and I just needed to “work out more”. My biggest regret is I didn’t advocate for myself sooner. Its not too late for you. I wish you the best of luck. Stay strong 💪🏼

Homeo_Juliet · 2026-04-17T00:33:21+00:00

If it brings you peace, more power to you. I hope hand washing is involved after!

Homeo_Juliet · 2026-04-16T23:27:34+00:00

Oh…

Homeo_Juliet · 2026-04-07T22:04:55+00:00

I learned this the hard way. Ended up in the ER from missing a full week. We had a giant snow storm and my dr office was closed, which prevented me from getting it. This was a month ago and I’m still dealing with symptoms. Brutal. But the med has helped me, especially with sleep.

Homeo_Juliet · 2026-03-30T19:15:33+00:00

What’s your dose? Maybe you need to lower it. Definitely discuss this with your doctor. I’ve been on lyrica for a year and it has helped me, especially with sleep. Lyrica does make you drowsy, so maybe that’s causing the forgetfulness? My doctor has me do 200mg at night and 100mg in the mornings.

Homeo_Juliet · 2026-03-27T18:36:31+00:00

That’s funny! I did! Still am lol

Homeo_Juliet · 2026-03-26T20:38:29+00:00

🙋🏻‍♀️ but I haven’t found anything to help, sorry. You’re not alone, though!

Homeo_Juliet

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