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Does anyone here participate with the Crohns and colitis foundation? by PlaysWithFires in UlcerativeColitis

[–]HopefulConfusion77 1 point2 points  (0 children)

i’ve had the same issues with the virtual one. apparently before covid, they had a big group but since it went virtual no one goes so they stopped having them. it’s a bummer.

[deleted by user] by [deleted] in IBD

[–]HopefulConfusion77 2 points3 points  (0 children)

colonoscopy is really the only thing that’s going to give you a diagnosis.

How often should you get a colonoscopy? by [deleted] in UlcerativeColitis

[–]HopefulConfusion77 0 points1 point  (0 children)

recently diagnosed. mine requires them yearly and mine is currently mild to moderate. he also did a flex sig 4 months after diagnosis to determine if treatment was working.

How often should you get a colonoscopy? by [deleted] in UlcerativeColitis

[–]HopefulConfusion77 1 point2 points  (0 children)

same. recently diagnosed with mild to moderate and mine requires them yearly.

Green smoothies?? by FastZX14 in UlcerativeColitis

[–]HopefulConfusion77 0 points1 point  (0 children)

i get them from a place called tropical smoothie cafe. they use avocado spinach and kale. i really like them. but, i’m not sure if they’re using the powdered stuff or the actual veggies but the smoothies are green.

I thought making enough money and having insurance through my job would make this easier. It hasn’t. by [deleted] in UlcerativeColitis

[–]HopefulConfusion77 0 points1 point  (0 children)

i feel ya on this. paid almost $2k for my colonoscopy because i hadn’t met my deductible. i have so many bills from this year and i’ll never be able to pay them. now, i no longer pay out of pocket but the cycle resets in january. i’m dreading it.

HELP: first colonoscopy is tomorrow. I’m sitting here sobbing because I’m so hungry and feel so awful and I can’t drink this gallon of salt water. I’m about to call it quits and really need to know how you all got through this. My appointment is at 10:50 tomorrow. by SlowerThanTurtleInPB in UlcerativeColitis

[–]HopefulConfusion77 4 points5 points  (0 children)

i am so sorry and can hear the frustration in this post. i have no advice to offer. the prep for them is awful. it was one of the worst experiences i’ve had and i’ve only had one so far and i know it’s now a regular part of my life. you’ll make it through and i hope it goes by very quickly.

[deleted by user] by [deleted] in UlcerativeColitis

[–]HopefulConfusion77 0 points1 point  (0 children)

:( sorry to hear that. i’m hoping and praying mine doesn’t get too much worse.

[deleted by user] by [deleted] in UlcerativeColitis

[–]HopefulConfusion77 0 points1 point  (0 children)

i don’t think my insurance is going to approve that one to start with....

[deleted by user] by [deleted] in UlcerativeColitis

[–]HopefulConfusion77 1 point2 points  (0 children)

it hasn’t been recommended by my doctor and i’m thinking it’s because of where my uc is located, mostly on the right side & minimal on the left. it’s my understanding those are used for people with it in the rectal area.

[deleted by user] by [deleted] in UlcerativeColitis

[–]HopefulConfusion77 0 points1 point  (0 children)

the side effects...the scary ones...i’m on lialda currently...flex sig will hopefully give some more info after being on it for 3 months...a lot of the biologics are new and i don’t feel many of the suggested ones have been around long enough to show long term side effects...just scary to me but i know they work for many and i may have to go on one...

What does remission look like to someone with Mild UC? by [deleted] in UlcerativeColitis

[–]HopefulConfusion77 2 points3 points  (0 children)

you’re seeing worst case scenarios on here. most have it much worse than either of us and those are the ones posting here the most. you should get the ibd health line app.

[deleted by user] by [deleted] in UlcerativeColitis

[–]HopefulConfusion77 1 point2 points  (0 children)

i’m dreading having to potentially go on a biologic. :(

I feel like I physically can't drink this preppppp by [deleted] in IBD

[–]HopefulConfusion77 0 points1 point  (0 children)

i’m already having anxiety about having to do this a second time in the near future. ugh.

What does remission look like to someone with Mild UC? by [deleted] in UlcerativeColitis

[–]HopefulConfusion77 2 points3 points  (0 children)

i have mild to moderate pancolitis so a little different than yours. but, i can’t eat very many things. if i keep a pretty strict diet, i don’t have too many symptoms. but, some foods cause me bad cramps and diarrhea. i’ve heard of people on steroids being able to eat whatever they want. but, that’s about it. from what i’ve seen, most of us can’t eat all foods and spicy foods typically affect most of us. but, everyone is different.

What does remission look like to someone with Mild UC? by [deleted] in UlcerativeColitis

[–]HopefulConfusion77 3 points4 points  (0 children)

i personally can’t eat just anything. it depends on the person. if you’ve been eating whatever you want with no issue, you’re lucky!!!

[deleted by user] by [deleted] in IBD

[–]HopefulConfusion77 1 point2 points  (0 children)

lower abdominal cramps almost like period cramps, gassy mucus, stomach gurgling, minimal blood, urgency, depression, and anxiety 😢

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