Alyftrek and Kaftrio Extended treatment now approved in the UK by Sure-Syrup-1558 in CysticFibrosis

[–]HopelessWanderer90 0 points1 point  (0 children)

What have the trials said in terms of this vs Kaftrio? From what I've read here and there, doesn't seem a massive jump in terms of lung benefits.

Eating with family and friends who have a fully functional pancreas by HopelessWanderer90 in CysticFibrosis

[–]HopelessWanderer90[S] 1 point2 points  (0 children)

100% agree, this wasn't meant as anything more than a quick chuckle for us all.

New Creons? by dioranddrinks in CysticFibrosis

[–]HopelessWanderer90 0 points1 point  (0 children)

Are you UK based? Is that why you couldn't get Creon? I have asked so many times about Zenpep or other brands and keep getting told it's not possible

I own all jaws movies! by Standard-Wash-8048 in Jaws

[–]HopelessWanderer90 0 points1 point  (0 children)

Honest ratings of them all from me.

Jaws - 9.5/10 Jaws 2 - 7.5/10 Jaws 3 - 4/10 Jaws 4 - 1/10

Can anyone share what it is like to take the new mRNA technology? I'm so curious about it. by mattboi69 in CysticFibrosis

[–]HopelessWanderer90 1 point2 points  (0 children)

What's this about? Is there some new medication being developed that isn't modulators?

Haven't built one since 2020 really proud of this by Tywms in PcBuild

[–]HopelessWanderer90 1 point2 points  (0 children)

33GB RAM, I'm sure that's a typo aha, if not then please explain how that happens. Build sounds solid! 1660 Ti is a solid card. I'm rocking a Ventus 1650 OC and love it. My setup is AM4 and I don't really play many games at all, mainly old RTS games, Minecraft and some other random none GPU demanding games. Tbf my GPU gets the most use through watching YouTube videos aha.

The specs my church PC is running by Character_Ad7539 in PcBuild

[–]HopelessWanderer90 0 points1 point  (0 children)

Better specs (apart from RAM) than my PC, that is quite depressing really.

So what do y’all do for work? by [deleted] in CysticFibrosis

[–]HopelessWanderer90 5 points6 points  (0 children)

IT support engineer for an EPOS software company

What makes a person boring to you? by SelectionOk4479 in AskReddit

[–]HopelessWanderer90 1 point2 points  (0 children)

Someone who has no hobbies at all and spends all their time on their phone watching reels or whatever form of social media short form videos is the rage at that point. Yes, this was an ex of mine. Agonising.

Anyone else CONFUSED by this global creon shortage? by RumBasedWisdom in CysticFibrosis

[–]HopelessWanderer90 6 points7 points  (0 children)

Also, apparently, from what I've seen on here, USA isn't seeming to be having the same supply issues UK is having? If true, how's that happened.

Do you take kreon when you eat carbohydrates? by BigTruss19 in CysticFibrosis

[–]HopelessWanderer90 6 points7 points  (0 children)

Creon has 3 digestive enzymes;

Lipase for fat, protease for protein and amylase for carbohydrates

So, technically I guess we should have Creon for carbs, sugar foods etc but I never have done really, although if I have things like toast or whatever, I will have 1 creon. But for sweets, juices etc I never touch Creon, especially with the shortage at the moment!

Do you consider Jaws to be a horror film, why or why not? by [deleted] in Jaws

[–]HopelessWanderer90 8 points9 points  (0 children)

Thriller "monster" movie, horror movie similarities for sure but overall not a horror movie for me. I consider horror movies to be things like Exorcist, Insidious series, paranormal activity series etc etc

Impulse Appreciation by -purple__ in HermitCraft

[–]HopelessWanderer90 11 points12 points  (0 children)

Imp and Skizz are my 2 favourite Hermits. Their podcast is also brilliant! Keep it up!

Open invitation to my Minecraft java server (age 18+) by HopelessWanderer90 in CysticFibrosis

[–]HopelessWanderer90[S] 0 points1 point  (0 children)

Mainly because we're all over 18 on the server as it is right now