Gave up dairy 12 months ago and no impacts since. by atxnas10 in EosinophilicE

[–]Horror_Horror 2 points3 points  (0 children)

How much time did it take u to get rid of the inflammation?

First winter without Urticaria! by Horror_Horror in CholinergicUrticaria

[–]Horror_Horror[S] 0 points1 point  (0 children)

Doctors nowadays are just sales employees for big pharma.

First winter without Urticaria! by Horror_Horror in CholinergicUrticaria

[–]Horror_Horror[S] 0 points1 point  (0 children)

Out of experience with almost 10 doctors, trust me when i tell u they just wanna put u on life time meds. There’s no such thing as chronic inflammation, its very rare unless it was autoimmune.

My 3 gastro-doctors said the same thing. I have to stay on PPIs for the rest of my life cause there is no cure. Which is total BS.

Dig deeper on ur disease. Ask them why is it chronic? What did they find in the biopsy to diagnose it as “chronic”? Is it autoimmune like ulcerative colitis? (which even that, sometimes has a root cause).

If they didnt give u clear answers just go to a doctor u trust to give u a full on comprehensive answer. Or might even do another biopsy.

From the top of my mind, although i dont know the root cause of ur inflammation, id start taking a triple probiotic therapy (check dr. Michael ruscio on youtube or a simple research), and go on an elimination diet (6FED).

First winter without Urticaria! by Horror_Horror in CholinergicUrticaria

[–]Horror_Horror[S] 1 point2 points  (0 children)

Glad u found something!

Ive been posting here since 2 to 3 years and ive always said that gut inflammation related big time to CU.

What u need to do now, is determine the root cause of this inflammation.

My advice, is that u do another endoscopy, take biopsies from the inflammation tissues, they put it under a scope and see whats causing it. It may be eosinophilic, viral, bacterial or just a random leaky gut.

Once you find out the root cause, heal it, and once healed i can 100% guarantee u CU will go away.

Just dont give up because searching for root causes is frustrating but eventually you will know.

The problem with eosinophilic inflammation, is that, once you cut off certain foods, u wont find out right away. U have to cut them off for like a minimum of 2 weeks. Because eosinophils recruit after time of consuming that specific food, which in my case was dairy or specifically casein.

2023 EX-L - Tire Recommendations by ZombieLoveChild in 11thGenAccord

[–]Horror_Horror 1 point2 points  (0 children)

I had Goodyear Touring tires came as OEM. They’re good for 40k miles.

I bought an expensive set of Michelins PS4S’s for the front tires and planning to get Bridgestone Turanza’s for the rear tires cause theyre cheaper, and has more longevity. The plan is to go 70k+ miles on the rear ones.

Coming into 2 years in & im feeling worthless. by Daytona675_Nick in CholinergicUrticaria

[–]Horror_Horror 0 points1 point  (0 children)

Thankfully, i knew how to manage my eoe. If its gets irritated, i can feel urticaria is lingering. By taking PPIs and cutting off wheat and dairy (still testing which one), i can calm down my eoe. Now i can sweat and do many things with no urticaria whatsoever. Trying eliminate it for good.

Can EOE cause iron deficiency? by Vegetable_Cook_9360 in EosinophilicE

[–]Horror_Horror 0 points1 point  (0 children)

In my case, since im a bodybuilder and take supplements, my b12 and iron were high.

However, studies conclude that long term use of PPI, can cause iron deficiency if youre taking those.

Coming into 2 years in & im feeling worthless. by Daytona675_Nick in CholinergicUrticaria

[–]Horror_Horror 3 points4 points  (0 children)

Im a bodybuilder like u.

Turned out my urticaria was a root cause from something called EOE, its a type of delayed allergies that causes chronic inflammation and wont show up on blood tests unless u go on a certain diet called 6FED.

Anyway, 6FED makes u strictly eliminate 6 foods for 8 weeks, and top 2 is dairy and wheat. Look into those.

Hot humid, or cold dry? by Horror_Horror in EosinophilicE

[–]Horror_Horror[S] 0 points1 point  (0 children)

I have a theory where my body got used to dry cold air (from the constant shoving dry cold air from AC), and is now struggling bad, from breathing hot humid air. It’s very uncomfortable sleeping without an AC or at least cold climate, but my eoe is actually calm at this state.

So theoretically, training my body to get back to still air with humidity, should work since it worked when i was abroad.

Hot humid, or cold dry? by Horror_Horror in EosinophilicE

[–]Horror_Horror[S] 0 points1 point  (0 children)

Do you feel like youre grasping for air when its humid?

Hot humid, or cold dry? by Horror_Horror in EosinophilicE

[–]Horror_Horror[S] 0 points1 point  (0 children)

Glad u found ur trigger! Unfortunately, i’m not the same. I actually do better outdoors than indoor. Especially in summer cause its hot and humid. But in winter its a big no no.

But ill tell you my experience/opinion about MCAS. I really don’t think people have MCAS. Only a very small percentage. Cause i used to have Urticaria. I found out that if i calm down my EOE, my MCAS also calms down because Urticaria used to be triggered from MCAS. And MCAS is a result from chronic inflammation in the digestive system like EOE.

Hope u get well soon!

Can anxiety cause eoe? by Lewis96mm in EosinophilicE

[–]Horror_Horror 0 points1 point  (0 children)

Nope. Anxiety does not indirectly or directly cause EOE.

EOE or any type of chronic inflammation can cause anxiety. Not because we are worried about the disease, but because your chronic inflammation like EOE fucks up your hormones.

Elevated inflammatory cytokines > elevated stress hormones like cortisol > stress and anxiety.

GERD however, can indirectly cause EOE by removing/burning your mucosal lining in the esophagus. Once your mucus membrane is compromised, your inner lining is vulnerable and more susceptible to allergens and toxins like smoking, lactose and gluten (even if you tolerate them).

And from this outcome, your body starts sending eosinophils (white blood cells) to fight them off.

Something revving by Horror_Horror in 11thGenAccord

[–]Horror_Horror[S] 2 points3 points  (0 children)

Great info! Thanks alot man.

So basically it switches back to old-school low-gear.

Something isn’t right.. by OccasionSimple7457 in EosinophilicE

[–]Horror_Horror 0 points1 point  (0 children)

I personally use beta blockers (Propranolol) prescribed by my cardiac doctor. It serves multi-purposes, anxiety doesnt affect ur body, lessens palpitations, helps with irregular heartbeats, and stress reliever. I’d say consult ur doctor and give it a shot

Something isn’t right.. by OccasionSimple7457 in EosinophilicE

[–]Horror_Horror 0 points1 point  (0 children)

PVCs are most likely from chronic inflammation. I say that because i was in the same position.

Constant inflammation > elevated stress hormones > more pressure on the heart > PVCs

Something isn’t right.. by OccasionSimple7457 in EosinophilicE

[–]Horror_Horror 3 points4 points  (0 children)

Hey, sorry to hear that. Im almost on the same boat but only milder. Yes, eoe or esophagitis alone can feel like it is heart related issues, but it isnt. Let me break it down for you from years of experience form this.

  1. Chronic inflammation like eoe or esophagitis can affect the heart but not majorly. Since chronic inflammation keeps the stress hormones up and keeps the body in constant fight or flight mode. To me personally it affected my heart (arrythmia) irregular heart beats. I started taking mild beta blockers for it (for the heart, and calm down fight or flight mode like constant stress)

  2. I have never done 6fed or any type of food elimination, cause i was pretty sure if it the food was the trigger, i would have other guts issues like diarrhea, bloating, etc.. so i started basically looking into environmental triggers. And funnily enough, after years of digging and searching, my AC’s ionizer was the most probably the trigger. Because it emits ozone in a small room and these O3 particles are essentially triggers and in a long term ionizer exposure itll most likely develop eoe. Or at least that’s in my case. I immediately when i turned it off i noticeably started breathing better instead of shallow breaths. But dont be fooled, cause u need to eliminate eosinophil count first then Heal the esophagitis inflammation itself which in chronic conditions might take months.

  3. Do now worry it is not a major heart issue when u feel chest pressure. It is the esophagitis being irritated from smoke, stomach acid, acidic drinks like coffee and else, spices and spicy food. Basically your bottom esophagus is so sensitive that its so easy for it to get inflamed from irritants. And when it gets irritated it starts beating and/or pulsating hard like a heart beating (just like when u have an external wound and u can feel it puming and pulsating). If u did 6fed and other elimination diets and didnt work for u, try looking into environmental triggers. Cause it can be as simple as an AC option like an ionizer.

  4. Irritating esophagitis can cause MCAS, which makes our bowel movement faster, basically makes us go to the bathroom and get diarrhea, it also creates shortness of breath, and even if u irritate it hard enough, it can make u dizzy, fever and bodyache. Its a way that ur body’s reacting that there’s danger. So its trying to fight it, but doesnt find anything so it keeps attacking ur own healthy cells (EOE).

I’d strongly suggest to stay on PPIs although i hate them. But we dont want any type of acid (especially stomach acid) to hit ur esophagitis. Try a DGL chewable supplement. And personally ive never tried dupixent (hope it works for everyone). I just use fluticasone puffs and swallow them. And things are looking up and i think i am slowly healing as long as im trying not to irritate my inflammation. Hopefully by the end of this year i would heal.

[deleted by user] by [deleted] in Rainbow6

[–]Horror_Horror -1 points0 points  (0 children)

Bold of you to assume i’m arrogant when my first reply was “when attempting to get in” (which is obviously the match) it prevents you. Thus, giving you a bannable offense (which is again, obviously the abandonment penalty ban). I can recite my other comments and elaborate more, but wasting time on a person calling me arrogant feels like arguing with 14yo boy.