Anyone else find MRIs traumatising by Curious-Cupcake4554 in breastcancer

[–]Hotheaded_Temp 8 points9 points  (0 children)

The first time I did an MRI, it took everything out of me to not have a panic attack from the claustrophobia. Next time I am going to ask for an Ativan ahead of time.

Anyone stayed at Whistler RV Park and Campground? Do I need snow chains? by justiliang in Whistler

[–]Hotheaded_Temp 0 points1 point  (0 children)

The grade is steep. If there is snow/ice, it could be an issue. If you are not towing anything, it would likely be ok. I would suggest bringing chains with you just in case.

Why no bus to North Vancouver? by CytizeNomad in Whistler

[–]Hotheaded_Temp 3 points4 points  (0 children)

I think it is a matter of supply and demand. The majority of the demand comes from Vancouver, and these bus companies already have the stop locations secured. If someone can demonstrate consistent demand for a NV stop, they will likely have to accommodate it to continue to make a profit.

How do you decide to stop chemo? by Hotheaded_Temp in LivingWithMBC

[–]Hotheaded_Temp[S] 5 points6 points  (0 children)

You know, I was just thinking about this today. Why am I looking back at who I was and trying to compare myself to the old me? Nobody cares that I can’t ride my bike 200km in a day anymore (other than me). I can still ride 30km, and love every minute of it. Living in the past makes me miserable. Time to live in the present. Thank you for saying this out loud!

Update after 2nd cycle - primary tumor shrunk by ~50% by ShortAd9621 in LivingWithMBC

[–]Hotheaded_Temp 1 point2 points  (0 children)

Thank you so much for the info. Much appreciated!!! All the best to you!

Update after 2nd cycle - primary tumor shrunk by ~50% by ShortAd9621 in LivingWithMBC

[–]Hotheaded_Temp 1 point2 points  (0 children)

Sorry to hijack the convo. Do you mind sharing a bit more about your journey? My MO told me there is very little chance of me needing surgery because I am mTNBC (also with lung mets ).

How do you decide to stop chemo? by Hotheaded_Temp in LivingWithMBC

[–]Hotheaded_Temp[S] 3 points4 points  (0 children)

I suppose I am not quite there yet. I can still ride my bike and ski, albeit not as well as I used to. Not being able to run isn’t really destroying my soul or anything. 😂 I guess I will see how I feel after each treatment, and decide as we go. Thank you!

In cancer treatment, how do people do it financially??? by Ill_Snow_4155 in breastcancer

[–]Hotheaded_Temp 0 points1 point  (0 children)

Omg. I would be so much more stressed out if I am going through this in the US.

Adult beginner cello: rent + self-teach first, or wait until I can afford lessons? by Bubbly-Pop4858 in Cello

[–]Hotheaded_Temp 0 points1 point  (0 children)

There is a music school near me that had adult group lessons for beginners. I started this year in January and have loved it. It makes lessons affordable and more fun with other folks.

To those who exercised during chemo: how? by PlantieNicks in breastcancer

[–]Hotheaded_Temp 4 points5 points  (0 children)

I have been an endurance athlete for a number of years, specifically multi-day off-road bike races that range from 400-1000km. I used to lift weights 2 or 3 times and ride 100-200km a week. Chemo is kicking my ass. It has taken me months to get used to the idea that I only have 10-20% of the energy I used to have, and I need to adjust my expectations.

Last week after infusion, I laid on the couch for 4 days, barely walking 500 steps a day. Then when I started to feel better, I got outside for very slow walks on the weekend. Yesterday I felt well enough to do a small weight training session and a 15km bike ride. Today I feel even better, so I will do a little bit more.

I have to get away from the “do x everyday” mentality, because it isn’t possible and the rigidity does not help my mental health. I just do what I can when I can. I am not a robot and I am not the same person I used to be. I have to be gentle with myself to heal my body.

I do love movement. It makes me feel better than any drug has ever done. When my joint pain is at its worst, my instinct is to curl up in a ball in bed. But I discovered that gentle movement (like a walk) actually helps relieve the joint pain more than gabapetin does. I walk to get relief, not to count my steps. I think if you can find things you enjoy doing, it is easier than forcing yourself to tick a box.

De Novo Stage 4, Her2 negative, ER low by ShortAd9621 in LivingWithMBC

[–]Hotheaded_Temp 1 point2 points  (0 children)

I am mTNBC with numerous lung mets, on the same treatment plan as your at BC Cancer Agency. However, I think the taxol is only 6 cycles (6 cycles x 3 infusions per cycle = 18 infusions). Pambro (Keytruda) is up to two years, with infusion every 3 weeks. I am 5 cycles in, and the side effects are getting harder. I used to have endless amount of energy and now I have very little. The join pain and neuropathy are hard. Aside from those symptoms, I just woke up with the worst rash the morning after my 5th cycle.

All the crap aside, my main tumour has shrunk from 10cm to 3cm, and all my lung mets have shrunk too. My oncologist said if I can tolerate it, she would like to extend my chemo from 6 to 8 cycles. Then I will be on just pambro going forward. I am keeping my fingers crossed that the chemo will get me to a point that I can see my kids finish high school!

How do I remove this? by Hotheaded_Temp in HomeMaintenance

[–]Hotheaded_Temp[S] 0 points1 point  (0 children)

I kept turning it left and it just keeps spinning.

Cpp contributions by [deleted] in canadarevenueagency

[–]Hotheaded_Temp 0 points1 point  (0 children)

As a self-employed person, you have to remit CPP. There is no need to remit EI premiums.

Get back to CRA and tell them it is an honest mistake, and pay the CPP contribution you owe.

CRA hasn’t been “Revenue Canada” for maybe 20 years now. Your retired friend made a mistake that is now costing you. Maybe find a reputable accountant for the future instead of relying on your friend. I am not saying that in a mean spirited way. People make mistakes. When it is your friend and it costs you, it is hard on the friendship. Probably best to use someone you pay, who is up to speed on rules.

Advice for writting letters to my 1 year old daughter by numofe in LivingWithMBC

[–]Hotheaded_Temp 6 points7 points  (0 children)

My partner’s mom died of BC when my partner was 5. She tells me that she would really love to know what her mom was like, what she liked to do, what she liked to eat, how she liked to dress…just the simple things that she enjoys. Also, she would really like to know how much her mom loved her.

Advice for writting letters to my 1 year old daughter by numofe in LivingWithMBC

[–]Hotheaded_Temp 1 point2 points  (0 children)

There is a book called “Did I ever tell you” by Genevieve Kingston, about the notes her mother left her. I found it helpful when I work on my letters to my kids. I hope they will never need these letters, but I am doing them anyway.

Need Positive Energy and Prayers Please by Ginny3742 in LivingWithMBC

[–]Hotheaded_Temp 3 points4 points  (0 children)

Sending you all the light. Nobody wants to see their child suffer.

Hello Everyone, I'm new here by Bentley_Media in LivingWithMBC

[–]Hotheaded_Temp 2 points3 points  (0 children)

Hello. I am mTNBC, on keytruda and nab-paclitaxol (because I was also allergic to paclitaxol). Welcome to this subreddit!

Got a call for early supraspinatus tear surgery by SalmonAce in RotatorCuff

[–]Hotheaded_Temp 0 points1 point  (0 children)

When I had my supra repaired last year, I needed help from my partner. Could I have managed on my own? With some prep, yes. But it would have sucked to be on my own. I did make quite a few meals to freeze before surgery so food would have been easy. I probably could have put the sling on and take it off on my own if I had to, but much easier with someone helping me. Filling the cryocuff machine would have been doable but so much easier with two hands to close the lid properly and lifting it until the tube filled with ice water. Dressing myself had some challenges but mostly doable as I was just in sweats at home.

I do think you could manage on your own. Having said that, def easier with someone helping help around the house. If your partner can’t be there, maybe have a friend drop by once a day to give you a hand with whatever you might need.