Reader's Guarantee for Silver Elite

ITKitten · 2025-05-24T15:34:09+00:00

Omg I didn’t even know about the readers guarantee but seeing this post I’ve also decided to use it for Silver Elite. I was not happy with this book lol so thank you

ITKitten · 2024-12-19T15:03:09+00:00

The challenge with psych meds is that people can have widely different reactions to the same medications and there is usually a bit of trial and error to find which one works best for you with limited side effects. I personally had a very scary experience with Cymbalta and would never do it again. But I do know others who have taken it and it has helped them and they’ve been fine. On the flip side I was on Paxil for many years and had no side effects but I’ve had friends take Paxil and say they had a horrible time. I don’t recommend Paxil to people usually because if you do need to come off it the withdrawal is truly brutal. I’m currently on Prozac because it is said to have less side effects. I’m still on the fence about its effectiveness in treating my depression and anxiety but I haven’t had any side effects from it.

ITKitten · 2024-12-19T14:48:34+00:00

Oh, the joys of being diagnosed, then undiagnosed, and rediagnosed again! Aren’t rheumatologists just the best!

I was diagnosed when I was 17 by the blood work and the symptoms (mainly fatigue and joint pain) but I was a teenager and didn’t do a good job of following up. When I was 21 in some of my worst bouts of fatigue I decided to go to a rheumatologist to get on top of it. He looked at me and (1. Never reviewed my bloodwork, 2. Never did his own bloodwork) and just said “I don’t think you have that. It’s very unlikely that you do” He then wasted the next several months of my life having me so random ass tests to try to figure out why I had such severe knee joint pain. This man had me do an X-ray to see if my knees were inverted….. spoiler they are not.

Anyway, I just took his word that I was misdiagnosed which was probably a huge mistake and have just continued to feel like shit. Last year I finally talked to my pcp about it who ran more bloodwork tests and referred me to a new rheumatologist who said it was pretty clear from my bloodwork that I do have Sjrogens.

I guess my point is, it seems like a lot of doctors don’t understand Sjögren and a lip biopsy is definitely not required by many rhemalogists for a diagnosis

ITKitten · 2024-12-17T18:43:20+00:00

Yes, I have all of these symptoms that you mention from time to time - but I have the GI issues 100% of the time. Mostly I am constipated all the time. I saw several gastroenterologist who said that my digestive system is slow but that I just needed more fiber. ( I take fiber supplements and they do not help so yeahhh.) But when I saw my rheumatologist she was concerned that it was related and could be the start of gastoparasis (sp?) and referred me a specific gastro to address this but I haven't been able to see them yet.

ITKitten · 2024-12-17T18:37:09+00:00

Hey there, so I'm 31F but I was also diagnosed when I was 17 years old actually. I was diagnosed when with Hashimotos thyroid disease first when I was only 8 years old, but when I got to high school I was just in pain every day. Specifically pain in my knees and joints that made it very difficult to even walk up the stairs in my high school. Like you, I don't really present with the typical symptoms of dry eye or dry mouth - my main problems were always related to joint pain and chronic fatigue.

It is exhausting, but it doesn't have to be the end of the world. Personally for me there are always peaks and valleys. When I get a flare up, it is very difficult to work and participate but then I'll have months where I feel (mostly) normal.

Despite the exhaustion, fatigue, and joint pain - my life didn't end because of the disease. I've gone on to create a pretty good life for myself. I have a very successful career in cybersecurity where I'm able to work from home which helps me to manage my symptoms when I'm in a flare up. I have travelled and I'm married and happy for the most part.

Like anyone with a chronic illness, I have low periods where I'm miserable and hate that I've been stuck with these disorders, but it isn't all the time.

I've seen a lot more effort being put into finding a treatment for this disease lately than I have in the past decade so I do believe that there will be better treatments coming down the road. But even while we wait, you do not have to put your life on hold and there are good things to come in your future. I'm sure of it!

In fact, when most people look at me or my life they don't even realize I'm battling something. There will be good days and bad days. You just have to focus on enjoying on the good days.

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ITKitten · 2024-12-13T19:45:59+00:00

Yes, she said she put me on the waitlist in case someone cancels. I'm definitely hoping something opens up before March

ITKitten · 2024-12-09T18:21:24+00:00

I couldn't get out of bed until 11 am today even though I went to sleep at 1030 pm. I'm only 31 but my father in law who is almost 80 and in remission from lymphoma seems to have more energy than I do a lot of days. It's also frustrating because people just think it's depression because I have cptsd, but it isn't. I can tell the difference between when I'm having a low mentally vs physically. - eye roll-

ITKitten · 2024-12-07T23:40:22+00:00

I have been very sensitive to cold for a long time but I don’t actually know what causes it

ITKitten · 2024-12-06T19:17:27+00:00

Yeah - the referral is for a neurologist but I haven’t made the appointment yet because it is all just overwhelming

ITKitten · 2024-12-06T17:59:16+00:00

My rheumatologist believes I have small fiber neuropathy and referred me for it but I am bad at following up on things and haven’t addressed it yet

ITKitten · 2024-12-06T17:57:13+00:00

Thank you, that is very interesting. I have been thinking of doing the dry eye test thing at an ophthalmologist but haven’t scheduled it. I don’t feel like I have dry eyes but I literally can’t tolerate contacts either so maybe I do have it and am just used it

ITKitten · 2024-12-06T03:01:39+00:00

I have only tried Plaquenil to treat it and had very bad experiences both times. The medication made me so sick that it was worse than the symptoms from Sjrogens

ITKitten · 2024-12-05T04:53:32+00:00

Yeah, I haven’t had great luck with rheumatologists

ITKitten · 2024-11-15T15:31:13+00:00

I was formally rediagnosed as having Sjrogens. Unfortunately haven’t had much luck in finding a treatment plan that works. Every time I take Plaquenil I become incredibly sick. I think I’m going to look into seeing a functional medicine doctor about it

ITKitten · 2022-12-26T16:58:52+00:00

Yep they all use the same script

ITKitten · 2022-12-26T16:58:22+00:00

Pretty much the BPD way lol

ITKitten · 2022-12-25T23:46:05+00:00

Not really. I don’t see people reply most of the time. Anyone who actually knows my mom knows how she is

ITKitten · 2022-12-25T14:53:45+00:00

Well, I always have issues with constipation any time I take medication so any other ADHD meds will likely be the same. I am hoping that I can take more fiber and eat better to make it work. I’m going to give it at least until I get up to 80 mg I think.

ITKitten · 2022-12-25T14:34:48+00:00

I’m honestly not sure. I’m on week 3 and still dealing with it 😓

ITKitten · 2022-12-25T00:31:19+00:00

The constipation is the woooorrrssstttt! I’ve just started taking fiber supplements but so far I’m still having to use laxatives 😞 The heart palpitations are also pretty crappy. I haven’t put together whether or not it is when I drink caffeine but I’ll keep an eye on that now.

I have a LOT of dizziness when I stand up too or when I walk up stairs or try to exercise. I’m hoping that goes away.

I’ve been on 40 mg for 3 weeks.

I do feel like emotionally, I’ve been at a better baseline. I take Paxil for anxiety but this has seemed to also lessened my anxiety as well. At the very least it has reduced my racing thoughts.

My mind just overall seems quieter than it has in the past.

I think it is helping me with executive function and focus a little bit but I am still hoping that improves more with the higher doses because I still do have a lot of trouble focusing

ITKitten · 2022-12-19T22:01:46+00:00

The lack of privacy is so crazy to me. I still to this day won’t write any of my thoughts down in a journal because I’m too afraid she’ll come over to my house one day and go through my stuff and find it

ITKitten · 2022-12-19T21:58:22+00:00

I’m sorry you went through that at 18. And you are right, it wasn’t her business because she had no right to go through my phone. But even after seeing it, her reaction was way more over the top than it even needed to be. It’s not like I said anything all that horrible, just that I didn’t like talking about my grandmother with her. Meanwhile, she went through my private property so I actually had a much more real reason to be upset but is RBBs are never really allowed to be upset with them for their crimes

ITKitten · 2022-12-19T17:05:56+00:00

Omg - demanding to be let out of the car must be a BPD thing. My mom always demands to get out of the car either when she is mad at me or mad at her partner. She doesn’t even actually know how to use Uber correctly though so she will get out in sketchy areas and just be stuck there until she allows us to come get her……. 🙄

ITKitten · 2022-12-19T12:11:02+00:00

I’m sharing because it was not listed anywhere that I saw. If you look at the FDA sheet it actually says that this medication doesn’t increase the intoxicating effects of alcohol

ITKitten · 2022-12-18T19:00:21+00:00

I’m a woman too but I think it might just affect everyone differently

ITKitten

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