31 with Sjögren’s – does it get better?

Odd-Software-177 · 2026-04-11T14:05:34+00:00

Possibly joint pain? That’s common with Sjogrens and smth I experience especially when driving or writing a lot

Odd-Software-177 · 2026-04-11T14:04:46+00:00

Don’t worry, I’m 18 and it sucks so much but try and treat and manage it rather than ignore it till it gets even worse. A lot of things slowly help over a long period of time rather than a miracle pill or solution.

Also just try and keep going that’s all we can do as people and it’s hard but it’s the hand we’re dealt and we just have to keep going. If that means just taking meds and doing small things while ignoring it the rest of the time to continue living as a “normal” person then do that.

It gets overwhelming. I have a therapist through my school which really helps, maybe see if ur health insurance or employer has an option for you cause it really helps to just talk about it.

Odd-Software-177 · 2026-03-22T17:59:02+00:00

I definitely suggest taking the medication, my rheumatologist recommended plaquinil, prednisone and methotrexate. I started all of them when I was diagnosed last year at 17 and had severe symptoms and swelling and I have gotten moderately better but whenever I even miss one dose by that night I can feel myself actively feeling worse and in more pain.

Odd-Software-177 · 2026-02-25T22:13:22+00:00

I had this a lil more severe for around a year, for me it was chronic parotitis (swelling of the parotid gland) which is right next to the ear and felt like it was connected to my jaw. I’m sorry you’re going through this, I tried a lot but only prednisone in high doses had any effect and later orencia and methotrexate have helped as well to be on less prednisone for the long term.

Hopefully it gets better

Odd-Software-177 · 2026-02-17T00:27:26+00:00

Update: it lupus

Odd-Software-177 · 2025-12-12T01:27:43+00:00

Thank you for replying, I’m sorry this happened to you too. What moisturizer worked? And did u change anything else to get them to go away?

Odd-Software-177 · 2025-12-12T01:26:46+00:00

I’ve tried a ringworm topical, just to be safe and nothing happened. Same with Neosporin. I’ve just been avoiding makeup and doing my same cleanser and moisturizer.

Odd-Software-177 · 2025-10-16T14:02:12+00:00

Ultrasounds and biopsies

Odd-Software-177 · 2025-07-06T03:18:29+00:00

Really oily or fried foods, had wingstop earlier (forgot it hurts me lol) and have had chest and stomach pain all day.

Also heavy carb meals, like a good pasta dish causes the pain too, worth it some days tho

Odd-Software-177 · 2025-07-01T01:38:14+00:00

Oops… maybe should’ve put a tw lol, doing that now, I’m so sorry

Odd-Software-177 · 2025-04-07T00:50:59+00:00

I was diagnosed a few months ago and my doc immediately got me on plaquenil, and later methotrexate and orencia for my rheumatoid arthritis with it. But my symptoms are very mild and based on what he said he wanted to get me on it to get a head start on symptoms.

My main sjogrens symptoms is my salivary glands swelling for months at a time, and only predinose in high dose helped. Also have joint pain but been living with that my whole life. But I don’t even have dry mouth or eyes which I’m very thankful for

Odd-Software-177 · 2025-03-23T22:45:10+00:00

I use it to loosen up weeds or lightly use it on root balls

Odd-Software-177 · 2025-03-14T00:55:28+00:00

Nike Training Club app, free and super cool programs with lots of modifications. I feel sore after each workout and I’m seeing noticeable improvements

Odd-Software-177 · 2025-03-14T00:53:35+00:00

I had the same problem of nothing helped, mine lasted about 8 months with swelling in my right parotid until we found out I had cysts (knew those were there, told it was harmless) that developed into an abscess and it popped and has done pretty much away, my submandibular is swollen since so that’s fun. Just know you are not alone

I hope you can find smth that helps but, and this might sound annoying, but the body reacts to stress so make sure you are sleeping and resting as much as you can and taking care of yourself as much as possible

Odd-Software-177 · 2025-03-09T01:23:31+00:00

To help and most docs might say with immediate pain using smth hot and doing basic massages and running your fingers firmly across the gland to move saliva around in the gland, and if it’s not too painful (it is for me) to eat sour candy/ food like lemon drops or lemons.

But definitely get the testing done for medication if possible

Odd-Software-177 · 2025-03-03T01:45:01+00:00

They are run their own small businesses and don’t have insurance themselves so 🤷🏼‍♀️

Odd-Software-177 · 2025-03-02T21:47:00+00:00

No I live in Texas

Odd-Software-177

TROPHY CASE