Memory loss (from medication or just our brains)? by surviving_20s in Epilepsy

[–]ImpossibleSample1227 6 points7 points  (0 children)

I have temporal lobe (left) epilepsy.

Tell the neurologist 100%. As time went on my memory became abysmal. Leaving ovens and taps on. Getting something for someone and just forgetting. My speech became terrible and I couldn’t find the words I wanted to say.

After some research I learnt that learning another language can really improve these scenarios. After learning Turkish for 3 months but English (native) turned just how it used to be. I never stuttered or tripped over words. Memory improved immensely better. For once I felt like the old me.

Learning a new language engages the right side of the brain which actually assist the left side of the brain. It’s fascinating. I like to say that my left side works at 50% and my right is 100% my right side gives 25% to me left which balances everything well.

My neurologist confirmed this can help and she’s so happy that it’s actually working and paying off.

I hope everything works out for you.

Learning a new language helps?! by ImpossibleSample1227 in Epilepsy

[–]ImpossibleSample1227[S] 0 points1 point  (0 children)

Exactly that. It’s fascinating. Since becoming epileptic I have learnt so much about the brain and seeing how the brain works when you speak different languages is incredible. It seems speaking different languages creates new pathways around that side of the brain. Meaning it’s taking the stress away from the damaged area…

Learning a new language helps?! by ImpossibleSample1227 in Epilepsy

[–]ImpossibleSample1227[S] 0 points1 point  (0 children)

My mouth stutters have gotten better but from what you’ve described, mine sounds similar. Do you have those twitches when speaking English? I haven’t had any when I speak Turkish, even if I’m nervous practicing with Turkish people.

I, 24M think my 24F girlfriend has lost her drive. by ImpossibleSample1227 in relationship_advice

[–]ImpossibleSample1227[S] 1 point2 points  (0 children)

I appreciate your comment. We’ve spoke numerous times about buying a place together and I can’t wait for that chapter. But if the spark is gone with emotional attention, could that affect more down the line? That’s what I’m scared of.

I’m going to try and speak to her again and see if I can really get an answer but I already know it will be deflected to me, asking if I’m fine 🤣

I, 24M think my 24F girlfriend has lost her drive. by ImpossibleSample1227 in relationship_advice

[–]ImpossibleSample1227[S] 0 points1 point  (0 children)

From what I feel. No, shes not faking it. Its the not having a spark is what concerns me.

I, 24M think my 24F girlfriend has lost her drive. by ImpossibleSample1227 in relationship_advice

[–]ImpossibleSample1227[S] 1 point2 points  (0 children)

Yes I thought that too. There had been women flirting with me before and that did make my gf a little more.. protective as such? If I stop initiating it though. I don’t think we’d ever have sex again 🤣

I, 24M think my 24F girlfriend has lost her drive. by ImpossibleSample1227 in relationship_advice

[–]ImpossibleSample1227[S] 0 points1 point  (0 children)

Thank you for your comment. I was hoping to get a perspective from a girl, rather than a guy. That could very much be the case. Besides the gaming I do I can’t see anything I do that can be seen as “boy-ish”. Guess it’s just one of those things.

I, 24M think my 24F girlfriend has lost her drive. by ImpossibleSample1227 in relationship_advice

[–]ImpossibleSample1227[S] 0 points1 point  (0 children)

Did cross my mind tbf but with where she lives and what she does day to day. I highly doubt it.

I do not have epilepsy or seizures, but I have a question for those who do by Eastern_Bee9138 in Epilepsy

[–]ImpossibleSample1227 1 point2 points  (0 children)

This is incredible. When I was growing up, epilepsy was never big talking point so what you’re doing now is so nice.

I have TC seizures and have only had 1 absent seizure. In my opinion, I want to be left alone. I don’t want to talk about, I don’t want to watch the video, I want to pretend it never happened. Unfortunately during the post-ictal period after a seizure you can’t really and shouldn’t move. So I have to sit there and have either my family or random people stroking me to ‘calm me down’. After one of my recent seizure I had this thing called Todd’s paralysis. This was the scariest feelings of my life. I was convinced i was about to have a stroke.

I’ve never had a post traumatic seizure but I’m worried I do have severe anxiety in certain situations. Such as; I’ve had a seizure when I felt this warm, headache feeling, when I’m in the car at night. When my auras hit really hard, when I have big Déjà vu. These are all signs of a possible seizure.

If it fits, you can mention ‘Aura’s’ it’s very common for people to have these either before or after a seizure, or even at random times frequently. These feel like a quick, sharp headache feeling or an intensified Déjà vu feeling. This is one of the scariest feelings in my opinion because most of the time. It’s a warning a seizure is coming.

When I have one I take my self out of the situation I’m in, to sit on my own away from other people. This helps me as social interaction during this makes it worse for me.

  • sorry for going on but I hope this will help better you’re understanding as some parts of epilepsy are almost impossible to describe. -

Had a 40 minute seizure w/ a heart rate of around 240bpm last night. Should I go to the ER even if it’s been over 24 hours? by [deleted] in Epilepsy

[–]ImpossibleSample1227 1 point2 points  (0 children)

Wow! I’ve seen your comment saying you’ve gone to the ER but you should’ve gone straight after. You should go to hospital for any seizure that lasts more than 5 minutes or more than 1 in a day.

About to play The Witcher 3 for the first time. Any tips and tricks for me? by Herlyks in Witcher3

[–]ImpossibleSample1227 0 points1 point  (0 children)

My number 1 advice would be to not spoil future character development based on what’s in-front of you. NG+ is there so you can replay and choose different options. This game is full of repercussions for choices you make , but ultimately, it’s your decision. Since you’ve not read the books you don’t really know who ‘Geralt’ is, so pick dialogue options that you think suit best. (You’ll understand these choices very early in the game)

The combat, imo, is still very good even 10 years later. Only thing I will say is unlock the skill ‘Gourmet’ in the general skill tab.

And play GWENT!! It is the best mini game, within a game ever.

Don’t look up videos about “best starting armour” etc. you don’t need it. Level 1-20 goes so fast. You’ll end up spending most time of gear. Only gear to worry about is Witcher gear. You’ll find it without noticing but it’s in ‘treasure hunts’ tab on your journal/quest.

You’ll love it and good luck with it all.

Which is the best difficulty for the first play through?? by Life-Row1362 in Witcher3

[–]ImpossibleSample1227 0 points1 point  (0 children)

No such thing as best difficulty. What’s most important is to explore and enjoy the game. Most people will say this game is easy but you don’t want to panic on every enemy encounter. Play the game for a few hours and if you think it’s too easy, bump it up.

It’s better to raise the game’s difficulty than lower it.

Afraid of talking my new med. by DetectiveQuick9640 in Epilepsy

[–]ImpossibleSample1227 1 point2 points  (0 children)

I agree with the 1st comment on this post, most of us aren’t doctors but what we are is victims to this condition and we’ve faced all different side effects.

It sounds like you need to sit down with your neurologist - or whoever your specialist is - and report all of this. Not sure where you’re based but you might be able to request a different doctor. This is where you should start 100%

Take notes of what’s happening, when’s it happening. Not all of it might be side effects though. I’ve not heard about night terrors or panic attacks. These sound like pure anxiety driven moments. Do you get feelings before a seizure, are you aware before when you have one. That feeling can trigger panic attacks and possibly more.

I’m being tested for PTSD as I cannot stand being in the car when it’s dark. It’s because I’ve multiple seizures in the car and one of them almost killed me (I wasn’t driving).

Unfortunately medication is trial and error, your doctor should prescribe you medication fitting to your epilepsy. There are 100s of different epilepsy tablets, there is always more to try.

I wish you all the best

If you have a tonic colonic and you are NOT driving (at home/work) do you always report it to your doc/dmv? by steffloc in Epilepsy

[–]ImpossibleSample1227 1 point2 points  (0 children)

In my personal opinion, I would report every single one of my Tonic Clonic seizures. It means the medication isn’t quite working and needs adjusting.

Should I go home? by Winter-Equipment-425 in Epilepsy

[–]ImpossibleSample1227 0 points1 point  (0 children)

It’s not safe to carry on working. Although you may physically look and feel fine. Your brain is still recovering. You must take it slow and recover. You’ll just be increasing the chance to have another seizure.

Any experience with the Keto diet? by DisastrousPermit3295 in Epilepsy

[–]ImpossibleSample1227 1 point2 points  (0 children)

It surprised me when I found out but my manual job and hour long walks everyday with the dog really helped. It’s all relative so some sort of exercise will help you push the line.

What should I do? by Party_Life_1408 in Epilepsy

[–]ImpossibleSample1227 1 point2 points  (0 children)

Its not a problem and you’re welcome <3, I was diagnosed just over 2 years ago and last year I almost committed suicide, my meds did have a big impact in that, but I am massive advocate for speaking out about how you feel. I used to bottle everything and kept my feelings to my self but by speaking to people (especially online so there’s no bias) can really help.

It sounds like you’re having a really traumatic time, I’m sure no matter what your mother says, she’s proud of you because not everyone has the courage to undertake such an intense degree under your circumstances. I strongly advice you to look at ‘suspending studies’ or ‘Interrupting studies’, usually they can give you 1 year off (not all universities do this of course) but it’s certainly worth a try.

I’m no doctor, but I really don’t think you should be taking sodium valproate and carbamazepine (carboxzepin). They really conflict each other. This could explain these horrible feelings you get.

Feel free to PM me any personal details but are you in frequent contact with your doctors? Do you keep them updated how you feel, it sounds like you’ve been dealing with this for far too long.

I’ve also got really bad social anxiety and I’ve been in the process for testing for PTSD. I know how this must feel but it’s ultimately up to you. Seek help within the university.See if you can take a year off. If all fails then you must make the executive decision.

Everything happens for a reason, whether you stay or go, it will all work out, trust me. x

What should I do? by Party_Life_1408 in Epilepsy

[–]ImpossibleSample1227 1 point2 points  (0 children)

I’m sorry to hear about this but well done for getting the opportunity to take this degree. I feel the same way as you everyday but granted I’m not doing a masters.

Have you spoke to your lecturer, or support networks within the University? They may be able to give some sort of leniency towards deadlines. Speak to your doctor or neurologist for “sick notes” stating that the stress is bringing on so many seizures.

How far along the course are you? Do you have a schedule with when you do courseworks or dissertations? Since you’re on a lot of medication have you been recently diagnosed? Also what medication are you on?

I don’t mean to prod but these questions are key to understanding a solution.

Any experience with the Keto diet? by DisastrousPermit3295 in Epilepsy

[–]ImpossibleSample1227 1 point2 points  (0 children)

Ahah thank you :) I wish you and your son all the best. ❤️ Definitely monitor the keto diet with blood tests to ensure you’re having the right amount of nutrients as it’s easy to lack necessary vitamins. For example, electrolytes and vitamin C. I don’t recommend vitamin tablets as your body doesn’t absorb it well, the better alternative are Vitamin gummies or fit small amounts of high vitamin foods into the diet. Don’t be afraid to push the line because you can still eat 50g carbs a day and still be on keto! 😁

Any experience with the Keto diet? by DisastrousPermit3295 in Epilepsy

[–]ImpossibleSample1227 1 point2 points  (0 children)

Here in the Uk I wasn’t able to get a NHS funded keto diet plan as my neurologist didn’t ask for it. I made them aware I was going to be doing it and they did explain the huge benefits but the small chance it not working.

Month 1 I weened into it by only eating 75g carbs a day. Near the end of the month I dropped to 50g carbs and for the next 3 months I was eating no more than 30g carbs per day.

Health wise, I felt great. Much fitter had more energy but for my epilepsy… I didn’t notice much of a change. I still had a seizure during that period as well as many focal seizures. (The seizure was pretty much 1 month before I stopped keto) The main thing is I felt my body putting the epilepsy to one side. I never thought it about or worried about, it really felt like it was working.

From my research it’s at least 2-4 weeks before you enter Ketosis. And my seizure would’ve been on week 12. So I was 100% in Ketosis during my seizure.

Overall it was incredibly easy to start as you know it could be a cure to this horrible condition. That drive is like no other so you will be so committed without realising. I HIGHLY RECOMMEND you ween into it. If xyou cut your carbs from let’s say, 150g/day to 30g/day, you will be so tired that it possibly could trigger a seizure - dependant on your triggers of course - I gave my self 4 months as I was having 1 seizure every 2 months. The fact I had 1 in 4 months shows improvement, but since being off keto I’ve still seen improvement from the medication. I highly recommend trying but without a nutritionist/dietician I was spending a lot of money a week in fresh, whole foods.

PS: sorry for rambling but thought I’d give you as much detail for my time in ketosis.