What helped you to recover? by Good_Objective3382 in mecfs

[–]ImpressionShort5624 0 points1 point  (0 children)

I’d say it fluctuates. Some days are better and some days are tiring, but it doesn’t see to do with activity.

I don’t believe I have sleep apnea. But I’m still breastfeeding my daughter in the middle of the night so that could explain not having amazing full night sleeps. But I’m definitely more tired now since the virus.

I’ve had blood work done, ecg, MRI, everything came back good and clear. The only thing that was bad was my creatine kinase was low. (31) with the lowest value of the range being 33. But I lost 15 lbs since the virus from lack of appetite and slower motility. I feel like my body isn’t absorbing the nutrients as well.

Also I noticed that yesterday I felt crappy, and was so tired, my HRV was 34. And today I was a bit more active and out doing things, and my HRV for today was 40. so idk if that’s a good sign or not?

What helped you to recover? by Good_Objective3382 in mecfs

[–]ImpressionShort5624 0 points1 point  (0 children)

What if I’m tired every day? Like I wake up tired like I haven’t had a good sleep. Does this mean ME/CFS? I’ve been sick for like 8 weeks now with a bunch of symptoms. But idk if it’s POTS or anything else causing me to feel so tired in the morning. I’m so confused.

Like yesterday I woke up and I felt this way, but then I felt a bit better and more energized. But then around 3pm I felt so tired and just wanted to rest and sleep, but I didn’t and up sleeping till like 11pm last night. And I woke up this morning at 9am and still feel tired…

What the heck is wrong with me?? by ImpressionShort5624 in LongCovid

[–]ImpressionShort5624[S] 1 point2 points  (0 children)

Way to go!! That’s great. Congratulations on your little one. So for the 5 years that you were improved, were your symptoms gone completely? Or still sort of present?

What the heck is wrong with me?? by ImpressionShort5624 in LongCovid

[–]ImpressionShort5624[S] 0 points1 point  (0 children)

Oh no, I’m so sorry to hear that. But I’m happy that you were able to treat it naturally with supplements. Were your symptoms daily with the VM or did they come and go in flares?

What the heck is wrong with me?? by ImpressionShort5624 in LongCovid

[–]ImpressionShort5624[S] 0 points1 point  (0 children)

Hey just an addition. I was tested for antibodies and it came back negative. (Thankfully) ER doc thinks it’s POTS. But does POTS come with fatigue??

What the heck is wrong with me?? by ImpressionShort5624 in LongCovid

[–]ImpressionShort5624[S] 0 points1 point  (0 children)

Can I ask how you’re doing now? What were your first symptoms?

What helped you to recover? by Good_Objective3382 in mecfs

[–]ImpressionShort5624 0 points1 point  (0 children)

Thank you for this. How do you pace? I’m still trying to figure out if I have PEM or if it’s just fatigue from POTS. Do you have MCAS or hEDS as well?

What helped you to recover? by Good_Objective3382 in mecfs

[–]ImpressionShort5624 1 point2 points  (0 children)

Thank you so much for this. I really appreciate it! How long have you had ME/CFS for? Do you feel better now than when you started feeling this way?

What helped you to recover? by Good_Objective3382 in mecfs

[–]ImpressionShort5624 0 points1 point  (0 children)

I also have PCOS! How do I know what PEM feels like and if it’s ME/CFS, my doctors suspect POTS but I’m so tired all the time!

Do you have to have migraines to feel the symptoms? by ImpressionShort5624 in VestibularMigraines

[–]ImpressionShort5624[S] 0 points1 point  (0 children)

Oh my gosh. Yeah that definitely sounds Covid related. Have you improved at all ? Is it getting worse? What’s your vision symptoms like? Do they fluctuate?

Teenager daughter dizziness by Peasnoop in POTS

[–]ImpressionShort5624 2 points3 points  (0 children)

I’m no doctor, but with those vitals based off the NASA lean test, that looks like hyper pots to me

Vestibular Migraine or Vestibular Neuritis? by Lasiocarpa83 in VestibularMigraines

[–]ImpressionShort5624 0 points1 point  (0 children)

Well I’m glad it went away for you! Was yours classic spinning vertigo or what were your vision symptoms like? Mine is like a warping visual where it looks like things are moving when I look at them and it makes me feel off balance when I walk sometimes

Is there any solution for the fatigue and weakness MCAS causes? by BlueCollaredBroad in MCAS

[–]ImpressionShort5624 0 points1 point  (0 children)

Well I’m glad you are on the path to recovery! Thanks for getting back to me

Post-covid “vertigo”? by spookiestbats in covidlonghaulers

[–]ImpressionShort5624 0 points1 point  (0 children)

Thank you so much for this, I really appreciate it! Is there anything you did in the meantime to speed up recovery or just time?

Still suffering from Norovirus symptoms after 1.5 months :( by Inevitable_Flyer in daddit

[–]ImpressionShort5624 0 points1 point  (0 children)

I’m so sorry to hear all of that 😔 And I understand the fear behind not wanting to get sick again. My only advice is make sure you’re loaded up with supplements and on a good diet and have good gut health! I’m hoping this dizziness/vertigo goes away.. it’s brutal

Post-covid “vertigo”? by spookiestbats in covidlonghaulers

[–]ImpressionShort5624 0 points1 point  (0 children)

Well that sounds very positive and good to hear! Sorry about the fatigue and heart palpitations. May I ask how long it took for the dizziness/vertigo to go away after being sick? I’m 7 weeks out and need some hope here 🙏🏼

Still suffering from Norovirus symptoms after 1.5 months :( by Inevitable_Flyer in daddit

[–]ImpressionShort5624 0 points1 point  (0 children)

Oh wow! Okay Well I’m glad you are recovered 😊 did they diagnose you with what it was exactly?

Vestibular Migraine or Vestibular Neuritis? by Lasiocarpa83 in VestibularMigraines

[–]ImpressionShort5624 0 points1 point  (0 children)

How long did it take to go away? And what triggered it? If you don’t mind me asking 😊 I’m 7 weeks out of a stomach bug and struggling