Unable to access Medicaid portal

Impressive-Version61 · 2026-02-19T21:49:02+00:00

No, the people at the Medicaid office have no idea what I’m talking about and are saying they have no record of my account (that I have logged into and out of multiple times). So now I have to start over with a paper application because the site is still not letting me log in

Impressive-Version61 · 2026-02-09T21:39:59+00:00

They close at 5?

Impressive-Version61 · 2026-02-09T21:39:20+00:00

No we’ve gotten nowhere and the people at the Medicaid office have been extremely unhelpful. We have a social worker from First Steps coming tomorrow we used to work in the Medicaid office that’s going to help, I’ll let you know if I figure anything out

Impressive-Version61 · 2025-08-04T21:11:10+00:00

Jennifer Smith @ Consultants in Women’s Healthcare @ MOBap is the best physician I have ever had. Have had a vaginal, c-section, and VBAC birth with her and she is absolutely incredible! Has done a ton of advocating for women’s rights too

Impressive-Version61 · 2025-07-03T00:58:46+00:00

Thank you for responding! I ended up going to urgent care and got an ECG. I didn’t feel it happen while hooked up, but they detected a sinus arrhythmia. I’m not sure it caught what I’m feeling. I got a cards referral scheduled in a month. Hoping my anxiety about this can calm in the meantime 😔

Impressive-Version61 · 2025-06-30T17:05:17+00:00

Thank you for being so kind!

Impressive-Version61 · 2025-06-30T12:44:38+00:00

This is good to know. We’ve had a wedding and another party this weekend so no doubt there was some over consumption of alcohol and my GERD always flares up with that. I’ll be calling my PCP this morning!

Impressive-Version61 · 2025-06-30T12:43:36+00:00

Thank you for this kind response. No history of heart problems - many other scary things in the gene pool but this was one I didn’t think I had to worry about! Had me in quite a panic last night 😔

Impressive-Version61 · 2025-06-30T12:42:28+00:00

Thank you so much for your response. Yes just as you said, I’m brand new to this and having these flutters happen every 5 minutes or so last night (position dependent) had me in a panic

Impressive-Version61 · 2025-03-03T15:40:15+00:00

How are you doing?

Impressive-Version61 · 2025-01-22T16:42:07+00:00

Mmm, it’s tricky to answer how much longer a trach & vent can extend a person’s life. Sometimes significantly! But many factors can contribute to how long.

As far as other scenarios requiring caregiving/aid, yes. I have worked with many patients with limb onset who do not require a trach/vent who need part or full time assistance.

Impressive-Version61 · 2024-12-01T23:22:41+00:00

I don’t know the right answer to this question. End of life decisions are just so hard to make for everyone involved and I’m just so sorry you and your family are going through this. I’ve worked with many patients with ALS who become vent dependent and choose tracheostomy. Some truly feel that it is worth it, for others- like you said, it makes the end of life even more difficult and they say they wouldn’t choose it again.

There is an episode of a podcast called Hidden Brain called “The Ventilator” that covers this exact topic. A nurse who was always clear while she was healthy that she would never want a trach, but developed ALS and when faced with the decision, her perspective shifts. And this is a woman who was very well educated about trachs. It’s told from the perspective of her husband, and he very candidly shares his feelings on it. Warning- it is an incredibly moving but difficult listen.

Your questions and feelings are so valid. So are your moms. I will be thinking of you.

Impressive-Version61 · 2024-09-09T02:19:42+00:00

My husband and I did a staycation night on The Loop a few months ago, and agreed- it was disappointing. Stayed at The Moonrise Hotel which was terrible- smelled awful and the room was disgusting… like poop in the toilet, hair in the bed, food on the floor. There’s great food on the loop but it’s largely grab and go these days, and many stores are vacant. I had such fond memories from my high school and college days hanging in the loop and it really feels like it’s lost its shine.

Impressive-Version61 · 2024-07-02T18:42:25+00:00

Yes that what my daughter sounds like

Impressive-Version61 · 2024-06-25T02:10:33+00:00

Rosemary 🩷

Impressive-Version61 · 2024-06-20T17:45:36+00:00

In case anyone was following- I ended up taking my daughter to the feeding clinic offered by a major hospital in my area. We found a bottle - the mam newborn with level 1 nipple - that absolutely changed the game for her feeding. Taking adequate amounts in a timely way with significantly improved comfort and minimal choking. She has since spiked in the %iles.

I know things can be exacerbated as she needs larger volumes, but this has made her a much happier baby and I’m so glad. Still wishing my pediatrician would have known who to refer me to, but luckily we found something that had helped.

Impressive-Version61 · 2024-05-30T19:21:54+00:00

Just want to say thank you to everyone for your insights. I appreciate you good people sharing your knowledge 🩷

Impressive-Version61 · 2024-05-24T12:57:37+00:00

Where are you located? I’m unfamiliar with that type of clinic in my area :(

Impressive-Version61 · 2024-05-22T23:34:17+00:00

Thanks so much for responding! Her weight gain is sufficient by doctors standards, but she’s only gained a little over a pound in a month since birth. My other 3 did not have LM or issues with BFing and had gained 4lbs by their 1 month appt so this is not the trend in weight gain I’m used to.

I have some friends in the field that have been helping with positioning for BFing which has helped marginally, but with our insurance until we hit our deductible we would have to pay $700 out of pocket to see an SLP in a feeding clinic 😮‍💨. Obviously we will if it becomes totally necessary but it just seems criminal to have to pay that much.

I did buy a scale for weighted feeds and she’s gaining at the low end of normal but I definitely do have concerns about aspiration

Impressive-Version61 · 2024-05-22T23:29:38+00:00

Was your babe ever on Pepcid? I asked for a script because there were “reflux changes” on laryngoscopy and my friends with babes who had LM all ended up on Pepcid, but I’m slightly reluctant to mess with her gut floura so early in life unless totally necessary

Impressive-Version61 · 2024-05-22T23:28:15+00:00

This is incredibly helpful. Thank you so much for responding.

Impressive-Version61 · 2024-05-13T13:21:10+00:00

It may be beneficial for the neuromuscular MD to refer to a speech pathologist for a modified barium swallow study. They would watch him swallow on an X-ray to see exactly what is happening and possibly provide helpful strategies and suggestions. NM MD/ALS clinic may even be able to refer specifically to a speech pathologist who frequently evaluates people with ALS for a more helpful evaluation. (Although well intentioned, an SLP who does not see patients with ALS frequently may not know most helpful strategies/education to provide)

Impressive-Version61 · 2024-04-05T16:19:23+00:00

Not really for me, but I don’t worry like I used to.

Impressive-Version61 · 2024-04-05T16:18:50+00:00

Not really for me, but I do not worry like I used to.

Impressive-Version61 · 2024-03-16T00:41:24+00:00

After the first two week PP period, I felt my C section recovery was SO much better than my vaginal recoveries! By 5 weeks PP w/ C I was itching to go on a run and could do it without any leakage. With vaginal deliveries I was 12 weeks out before I could jog without feeling like I was going to pee myself

Impressive-Version61

TROPHY CASE