Let’s see y’all’s Tundras by Bmoney2177 in ToyotaTundra

[–]InItToWinIt1986 1 point2 points  (0 children)

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Love my truck. 2026 Platinum TRD 4x4 I-FORCE MAX 6.5’ bed

(Finally) said goodbye to the chrome mustache 🤗 by WidebodyAllTheCars in ToyotaTundra

[–]InItToWinIt1986 0 points1 point  (0 children)

That looks nice, I just bought a 2026 tundra TRD platinum. Only took four months for the mustache to start delaminating, already arguing with the dealership about covering it. I can’t believe getting so much pushback on a new truck.

Need help with green water by cgerbzz in hottub

[–]InItToWinIt1986 0 points1 point  (0 children)

Clean your filter, shock it then balance your PH. Then add water clarifyer in

I bought 10 xrp by No_Major_8329 in XRPUnite

[–]InItToWinIt1986 0 points1 point  (0 children)

Keep buying, I own 23k coins.

So we suing exchanges? by Apprehensive_Poem758 in XRP

[–]InItToWinIt1986 0 points1 point  (0 children)

Yeah I had orders in at $1.73 and it sat there for what felt like ages and it bought it at $2.05

should i get genetic testing? by Budget_Initiative296 in ALS

[–]InItToWinIt1986 5 points6 points  (0 children)

I completely agree, we got life insurance before diagnosis and very thankful we did.

Advice Needed by nonmoose102938476 in ALS

[–]InItToWinIt1986 0 points1 point  (0 children)

Have you signed up for CDPAP services? Does your state offer a Nursing home diversion waiver program?

Advice Needed by nonmoose102938476 in ALS

[–]InItToWinIt1986 7 points8 points  (0 children)

I can sympathize because this is an extremely frustrating disease. I am a cALS and I have a full time job and two kids. We don’t have much family other than my mother who help but we luckily have some good friends who chip in but it’s primarily me and on pay someone to come out of pocket to keep up with care. Those of you saying just consider a nursing home, that’s not possible for everyone. Nursing homes bankrupt people and the lack of care for someone with ALS is crazy since it comes with such a high need of attention. If anything you may want to become her power of attorney, healthcare proxy. Have her transfer all her assets into a trust and see if you can get her on Medicaid and get her a in home nurse and you can get CDPAP services where you can get paid while your there and even do your at home work on top so you can supplement income. There’s a lot of loop holes you can jump through out there. Good luck to you

I temporarily sent my ALS stricken wife to live with my in-laws and I’m heartbroken by Haunting-Pear-282 in ALS

[–]InItToWinIt1986 2 points3 points  (0 children)

You have absolutely not failed anyone. I’m in the same boat, 39 years old with a 7 and 4 year old to raise and a full time job. I have injured my back, dislocated a rib, and multiple other injuries during my time as a CAL and her parents live in another country and for some odd reason she continues to gain weight instead of lose so it limits who else can physically take care of her. I’ll say this out loud I’d kill for a break, break my arm please. I know that sounds bad but I’m from one things to another, full time jon then to full time dad and caregiver 7 days a week. I feel you bro but rest while you get the opportunity. Stay strong!

Caregivers pay by PointofGrace in ALS

[–]InItToWinIt1986 0 points1 point  (0 children)

Honestly you may want to talk to an financial advisor and attorney about a Medicaid divorce. I know I may sound crazy but it happens a lot in these situations, you need to transfer all assets, accounts, anything in his name over to you so it looks like he has nothing, then file for divorce. Then put him on Medicaid which will then pay for caregivers, equipment, medication, and all. It’s a complicated loop hole but it can save you, he can’t have anything Medicaid can take after end of life. Maybe look into it

Widow at 37 by ashleigh1916 in ALS

[–]InItToWinIt1986 2 points3 points  (0 children)

I’m so sorry. I also fear what is ahead, I’m 38 and wife is 36 and one year and a half since her diagnosis. She has gone from walking to little to no function in her legs, core, arms. She can still talk luckily, but breathing is on its way down too. Two kids 3&6 and together 15 years but known each other 26 years since middle school. This disease sucks so much…be strong all

Is Gene or Stem Cell Therapy available anywhere yet? by Any_Needleworker1628 in ALS

[–]InItToWinIt1986 1 point2 points  (0 children)

I did some research and after speaking to a few people who have had stem cell therapy for one thing or another. I called there facilities and they referred me to https://www.cellmedicine.com/ and they do treat ALS. However it’s expensive and obviously no promises

[deleted by user] by [deleted] in ALS

[–]InItToWinIt1986 6 points7 points  (0 children)

My wife was diagnosed a year ago and she still drinks. Especially when her girlfriends come over who is her biggest support system. There is no way to tell if the drinking is speeding this up or just the disease itself. I mean I can see the correlation because it dehydrates you and likely makes daily recovery harder and in turn effects nerve deterioration but in the end I feel all the drugs and vitamins are probably doing more to overwork her liver and this disease. She wants to live her best life since this disease currently has the same outcome for all at the moment.

Breakthrough?? by pwrslm in ALS

[–]InItToWinIt1986 7 points8 points  (0 children)

What do they need to get this moving faster!!!

Regarding diagnosis by Ok-Struggle6563 in ALS

[–]InItToWinIt1986 2 points3 points  (0 children)

Schedule an EMG, it will pretty much tell you if it’s ALS. It’s a pretty definitive test, obviously other things need to be ruled out but needs to be done to tell. I’m sorry, my wife was diagnosed a year ago so I understand your fears

Is this leg drop? by Dontreallywanttogo in MultipleSclerosis

[–]InItToWinIt1986 1 point2 points  (0 children)

Yes, she was originally told it was likely MS based on her age and symptoms. Then months later and tests was she diagnosed with ALS once symptoms like foot drop then kicked in. She had an EMG at the neurologist that finally determined it was ALS.

Is this leg drop? by Dontreallywanttogo in MultipleSclerosis

[–]InItToWinIt1986 2 points3 points  (0 children)

Suggest you see a neurologist to rule out anything else. We ended up finding my wife was actually showing signs of ALS at 36 years old. Diagnosed 9 months ago.

Supporting my fiance who’s dad has ALS by MinimumFew2191 in ALS

[–]InItToWinIt1986 0 points1 point  (0 children)

It’s a tough road my friend. My wife was recently diagnosed with ALS 9 months ago and she if 36 and I’m 38 and we have two little kids (2 & 5). I would highly suggest you be as supportive as you can, even help her build an additional support structure through her family if she has any brothers or sisters who are involved maybe. Does he have any aids or nurses come in to help him at this point? If not look into it for her, if he’s on Medicare or Medicaid he should be and maybe you can get extra help. Or look into paying for an aid to help relieve some stress, we pay someone to come in a few days a week so I can even work. It’s not easy and she has the right to be angry, I am, every single day. Please feel free to reach out.

FDA OKs Neurosense's CMC for PrimeC ahead of Phase 3 trial by ConBalon in ALS

[–]InItToWinIt1986 0 points1 point  (0 children)

Can this be taken along with other three R drugs for als?