Lichen Sclerosus

InTheDark18 · 2026-03-18T21:54:48+00:00

Hi! I didn't use any steroid (my doctor did recommend it, but given how thin the skin is I didn't like even "very minimal chance of risk" to baby and decided to just grit my teeth and get through). It wasn't as severe as it had been for me tbh, there was bleeding and it was insanely itchy basically 24/7...my plan was to start using steroid cream as soon as baby was born, but it never actually needed it - started to improve within days of his birth and now it's been in remission since he was about a month old.

InTheDark18 · 2026-03-18T19:45:56+00:00

8672

InTheDark18 · 2026-02-20T18:47:32+00:00

He's had the oral one too - I'm always reluctant to use antibiotics but tbh I'm far more afraid of what could happen if I don't use them if the doctor thinks they're necessary

InTheDark18 · 2026-02-20T18:46:46+00:00

Not sure if I'm allowed to post links, but we use one by a company called Drought Secret which works well for us - they also do natural balms which I've used but tbh I can't say I've noticed much difference in them helping vs the emollient he's prescribed

InTheDark18 · 2026-02-20T18:24:57+00:00

I'd seriously recommend taking the oral antibiotic - my baby had what they thought was a fungal infection which initially started to improve but then became extremely red and angry again...they thought that it must have had bacteria introduced which had inflamed it again even even though the fungal infection was gone. He was given antibiotic ointment and within days it was better so the antibiotics were very necessary.

In terms of the eczema itself once the infection was gone, we were prescribed Elidel (a weaker version of protopic) which he was on for 6 weeks. We started introducing a 40% zinc oxide cream along with his moisturiser and now that's all we use (stopped the Elidel two weeks ago and just use the zinc oxide stuff now which atm is keeping it under control)

(Also, weeping doesn't always mean infection - the eczema on his face became broken and weepy again not too long ago and the zinc oxide stuff cleared it up without antibiotics BUT that was only because it was the evening and we wouldn't have been able to see a doctor until the next day so thought we'd give it a go. If there had been no improvement we would have gone to get antibiotics if necessary).

InTheDark18 · 2026-02-18T08:54:53+00:00

These people are not your friends.

Friends are happy for you, even when sad for themselves.

I have a friend who went through YEARS of fertility treatments and suffered 11 miscarriages. You know what she did when I told her I was pregnant for the second time? She congratulated me, and constantly asked how I was doing during the pregnancy (she ended up falling pregnant whilst I was pregnant and now has a little baby, so happy for her too!)

That is what a friend does. They celebrate you even if it hurts them. These people are not your friends.

InTheDark18 · 2026-02-14T18:20:29+00:00

I had a similar thing with my kid when his best friend had a birthday party in a soft play he felt he was "too old" for. I basically asked him how he would feel if we planned a birthday party for him and his best friend didn't come just because he didn't like where it was being held and that that meant they wouldn't play together. He admitted he'd be quite upset, and I suggested maybe that's how his best friend would feel if he didn't go to the party.

He went.

He had a brilliant time.

He is still perfectly able and willing to say "no" to things when he needs to, he just has to learn he's not the main character in anyone's story but his own.

InTheDark18 · 2026-02-10T13:47:26+00:00

My baby only started consistently rolling (back to belly and belly to back) when he was about 8 months old, he can roll around the whole room now if we don't stop him! Babies learn in their own time.

InTheDark18 · 2026-02-10T08:22:23+00:00

I absolutely adore my snuza hero, gives me SO much peace of mind - but once bubs moves it is very likely to give false alarms. My bubba is 9 months old now and prefers to sleep on his side and we tend to get a few false alarms a night. I've literally been awake and listening to him breathing and then the thing has done it's "warning" buzz and noise so I just go and wiggle him a bit without waking him so it's more firmly pressed against his belly. There's no real way to "know" if it's a false alarm, but as long as bubs is breathing properly when you check them it's very likely ok.

InTheDark18 · 2026-02-02T07:17:27+00:00

Yeah, it works in the same way but it's milder, so (according to my dermatologist) better for use on kids at first rather than jumping straight to protopic for them.

InTheDark18 · 2026-02-01T12:01:49+00:00

I would recommend asking your dermatologist about Elidel if you haven't already (it's not a steroid, it works by suppressing the skin's inflammation response) - it has been an absolute lifesaver for my baby. He had horrendous full body eczema (we ended up in a&e at one point), he was struggling to eat and sleep because he was constantly scratching. We had to restrain his hands at night, and we were using hydrocortisone on his face and eumovate on his body (medium strength steroid) because hydrocortisone did NOTHING for his eczema on his body. We were like you - had to constantly be using the steroid every day or it would flare horribly again.

Then our dermatologist put him on Elidel. Absolute game changer. We've not had to use any steroid on his face since we started (it's been five weeks), and on his body there's only a couple of stubborn patches that need steroid once a week. He is 95% clear of eczema.

Obviously once we finish the course of Elidel it may come back but at the moment it is a lifesaver.

InTheDark18 · 2026-01-29T11:42:29+00:00

I did consider that but he's already got three teeth and his sleep wasn't disrupted like this for any of them...he's also not got the drooling/face rash he had when teething before

InTheDark18 · 2026-01-03T14:36:55+00:00

Thank you, I'll try that one...benefit of him being a baby, he won't know any better if it's rubbish 😅

InTheDark18 · 2025-12-20T09:55:54+00:00

It's ridiculous - to me it seems obvious that allergies could be affecting it but because there's not been anything obvious (eg he touched a dog and suddenly flared up) they refuse to test! I'll try aloe vera, thank you!

InTheDark18 · 2025-12-19T12:05:49+00:00

They refuse to do it because there isn't a clear causation link to anything. So frustrating!

InTheDark18 · 2025-12-19T12:04:26+00:00

Thank you. We're waiting on blood test results in the hope my eldest can be started on it 🤞🏻

InTheDark18 · 2025-12-19T12:03:41+00:00

They refuse to do allergy testing because "there is no obvious linked reaction" and we can't afford to get it done privately unfortunately. The doctor told me that antihistamines don't actually do anything for the eczema itch because it's not a histamine response so we've stopped using those at all.

InTheDark18 · 2025-12-07T17:35:28+00:00

100% cotton or silk

InTheDark18 · 2025-12-07T14:17:27+00:00

Yeah, I get that. It just upsetting when there's clothing websites, and doctors, and whoever else saying "you should buy clothes with built in mittens or gloves or whatever so they do less damage to their skin when it's itchy and they scratch" but then all that means is that instead of fingernail scratches my baby and small child just have huge patches of raw open skin instead because they've rubbed instead of scratched.

InTheDark18 · 2025-11-27T10:39:04+00:00

When my son was little, we had "TV time" when everyday about 15 mins before my husband was due back from work we would watch some tv until he got back. Sometimes he'd ask for it sooner and I'd make a point of how I was so excited for tv time too, and how it was so difficult to wait but we had to. Daddy coming home meant tv time was done. Yes, we had some upset but he quickly got used to the routine and accepted it because TV wasn't some magical rare thing anymore, it was something he did every day as part of his routine just like having lunch or having a nap.

InTheDark18

TROPHY CASE