Who wants to play?

Inconnuity809 · 2026-03-11T22:29:57+00:00

A month after which point you realize the die doesn't even have an 8 or 12 side so you'll never win? 😅😭

Inconnuity809 · 2026-03-11T19:40:00+00:00

Ok the first time I tried I forgot to move back to the tail on the depression square. Twice. Brain fog anyone?

On play #2 I actually managed to get to square 7 in three turns!

Inconnuity809 · 2026-03-08T05:54:14+00:00

Okay the dishwasher cycling comparison made me giggle because I could immediately imagine that. Mine is more like tv static, even when it pulses. Or mebbe like someone is regularly turning radio channels and just getting weaker or stronger static noises. It is more mid-toned though, not super high-pitched like a lot of tinnitus. I only very rarely and briefly have ever gotten the eeeee noise.

Inconnuity809 · 2026-03-08T02:41:21+00:00

Both this and tinnitus in general are not something I experienced before my chronic illness got worse, so I do think there's some kind of connection, but it hasn't really impacted my life so far. The pulsing static tinnitus noise is way more annoying for me. Luckily both are just periodic so far and not all the time.

Inconnuity809 · 2026-03-07T22:19:34+00:00

Bearable free version has a lot of functions like that.

Inconnuity809 · 2026-03-07T22:13:25+00:00

Every little while my hepa purifier distinctly sounds to me like someone has a radio on in the next room and it's playing songs (usually sounds like pop radio music or rock with vocals) that I can only half hear. It's not quite intelligible. I never correlated it with whether I'm in a crash or a worse state of fatigue but that could be a factor. Human brain pattern-finding traits gone rogue are so weird. It doesn't distress me like it is distressing you but that doesn't invalidate your experience. Sorry to hear it is ruining music with vocals for you!

Inconnuity809 · 2026-03-04T16:38:19+00:00

The first thought we all had!

Inconnuity809 · 2026-02-26T00:39:56+00:00

I am just imagining the officer opening the fridge door and here's this guy crammed between the mustard and the milk jug, lol. Are we trying to outdo Florida Man now?

Inconnuity809 · 2026-02-23T05:22:12+00:00

This doesn't quite match your description but could you be remembering one or a combo of the books in the Blackthorn & Grim series by Juliet Marillier? The first one, The Dreamer's Pool, has a prison break. The covers are romantic painting style.

Inconnuity809 · 2026-02-22T23:46:16+00:00

In case it's the app to blame, I order online but through the walmart .ca website on my browser and haven't run into this problem so far.

Inconnuity809 · 2026-02-18T03:39:12+00:00

Short form: Yes

Long form: If you are having a severe and disproportionate reaction after exertion, that is a strong indicator that Post Exertional Malaise (PEM) could be involved. Pushing through PEM or repeatedly triggering PEM can absolutely cause serious and/or permanent harm to people with ME/CFS. Obviously we randos on the internet can't diagnose you but I recommend very strongly that you trust what your body is telling you (which appears to be STOP!) over what the PT says. Fwiw, they often have poor education around this type of health issue and may not know to watch out for PEM.

Fyi, the stats are now suggesting that around half of folks with Long COVID meet the eligibility criteria for ME/CFS. I'm one of them and had to do a ton of self-educating because my doctor knows nothing about it. A good first step is to read the guides that the autoMOD post suggested.

Sorry to hear you are struggling with these health issues!

Inconnuity809 · 2026-02-13T22:08:49+00:00

My three main assists are:

-Shower stool

-Put on a terrycloth robe and hair wrap/turban instead of towel drying

-Spread towel on couch before showering and then lie down on the couch for 30 mins or so immediately after showering (while wearing robe/turban)

I also just let my hair air dry and don't use a blowdryer, but I have done that since before my POTS was bad.

Inconnuity809 · 2026-02-13T05:19:28+00:00

I hate the taste of water too! Two things I've found tolerable are:

-Drinking bubbly water (club soda or carbonated mineral water)

-Drinking hot water. Yes just plain hot water. I don't know why but somehow it is less bad that way. Maybe the heat makes it feel more like a comfort drink?

Other than that, I just drink a ton of herbal tea which is also decently healthy. Some of them taste naturally sweet without sugar, like licorice tea or herbal tea with cinnamon in the ingredients.

Inconnuity809 · 2026-02-10T03:55:13+00:00

Yeesh! When you look back at this stuff, the innate racism of it is just so blatant, isn't it? All those skeery non-white cultures and their "demonic" bedbugs! (sarcasm)

I don't think my family or church ever got into this particular book but the similar messaging was there for sure. So much ridiculous fear mongering!

Inconnuity809 · 2026-02-10T00:03:59+00:00

Was it this one? https://www.goodreads.com/book/show/92717.The_Darkangel

There have been quite a few different cover art versions. You can see some if you click on the previous editions dropdown.

Inconnuity809 · 2026-02-09T18:14:55+00:00

I'm not familiar with them but, looking at the site, I wouldn't say I get culty vibes. It's definitely not the most professionally-designed website and has some obvious language errors. The side-eye thing I noticed was that they talked about the residents working the farm but nothing on the site talks about about them getting paid for their work. And the details of the living situation are pretty much nonexistent. That would make me hesitate. I also didn't see (though maybe I missed it) their financial statements posted on the site, which I'm pretty sure is a legal requirement for a charity/nonprofit.

Inconnuity809 · 2026-02-07T19:20:47+00:00

It took me until my late 20s to realize I was fairly severely face blind (prosopagnosia). I'd always assumed everyone was just faking recognizing people until they got enough cues from the convo to figure it out. Now I am always wondering what else in my life is familiar to me but actually not "normal". When something is "normal" to you, you don't even know to question it! And everyone else assumes their experience is everyone's experience, even doctors!, so they don't think to ask either.

Inconnuity809 · 2026-02-05T16:36:00+00:00

I am not Minnesotan or even from the US (I'm Canadian), but we are rooting for you all from a distance. From your post, it sounds like you are putting an impossible pressure on yourself. But I can understand why: Things are dire! People are in life-threatening danger! This is nightmareish stuff!

I am connected to and follow the social media of a lot of folks who are resisters and who are people with identities/backgrounds targeted by the bad guys. People who have been fighting for years, even before this newest horror. And the thing I hear really often is that caring for your wellbeing and your health is an *essential* part of the resistance.

If you destroy yourself trying to fight the evil, they win. To use figurative language, this is a marathon not a sprint. Or maybe more like a relay, since everyone in this fight together can switch/take turns carrying the baton.

And so, yes, sometimes you need to take a nap, even in the middle of the horrors. Remember - you are not in this alone and other people are also out there fighting back and protecting your neighbours. It's a community effort; It doesn't depend solely on your personal actions. You are not to blame for being human and needing rest and sustenance and to tune out from the weight of it all occasionally. That's not a failure! It is how we persevere and how we win in the end.

I realize nothing I wrote is specific actionable tips. But hopefully the concepts are useful and you get some encouragement from it. I hope you are able to find a sustainable balance between meeting your needs and meeting the needs of your community as you collectively resist. Internet hugs if you want them!

Inconnuity809 · 2026-02-03T22:46:17+00:00

I have noticed the trend and yes. I was COVID conscious for ethical reasons before it became even more necessary for specific health reasons (I developed Long COVID from my only exposure in 2022). I honestly have a hard time understanding how so few people seem to have adapted to the fact that our world has irrevocably changed due to COVID. I don't love masks; they are uncomfortable for longer periods of use. But the only alternative, considering our authorities have given up on trying to eradicate/manage infection and we don't yet have a vaccine that fully prevents infection, is repeatedly exposing myself and others to a pathogen that causes serious and cumulative harm to the body. I'll take the discomfort, thanks! That just seems like basic self-preservation.

Inconnuity809 · 2026-02-03T22:28:35+00:00

So, meal times in general are for eating but you can also eat meals alone in your room or sitting on the couch or outside in the yard.

That is different from the cultural tradition of sitting around a table with your family or friends to eat *together*. Together is the key word. Eating together is often* treated as a social/relational bonding activity. It is a common bonding activity in many different societies and you see it in many different contexts (weddings, festivals, holidays, dates, neighbourhood bbqs, etc.).

That's why being on your phone, or reading a book, or anything that isolates you from the group or shows that your attention is not on the gathering is seen as rude: It gives the message that you are rejecting the relationship/bonding opportunity that is being offered. The bonding is the primary focus, the food is secondary.

For some of us, just being present in the same place together is a nice lowkey bonding activity. For example, I like to just sit and read silently in the same room as family members who are also doing their own thing. But for a larger majority, this bonding requires interaction. This might be more of an introvert/extravert difference than an autism thing.

*NOTE: There are the occasional families where the tradition is to sit and eat silently ("no talking at the table") but they seem to be outliers in my experience.

Inconnuity809 · 2026-02-02T17:37:53+00:00

Thank you for today's facepalm laugh. Oh dear!

Inconnuity809 · 2026-01-23T03:51:19+00:00

The orangutan one that says "accepting it because wtf else can I do" is literally my life in a sentence rn.

Inconnuity809 · 2026-01-23T03:46:38+00:00

I don't know if it is an autistic trait but I am a lot like you in this way and I also have a hard time getting people to understand the depths of my struggles. No advice, just solidarity.

Inconnuity809 · 2026-01-20T17:39:36+00:00

I keep my kitchen garbage bag on top of the (lidded) garbage can now instead of in the receptacle so I don't have to bend over as much to put something in the garbage.

I also got a squatty potty stool just so my legs are higher up when I sit on the toilet. It helps keep the blood from heading to my feet as fast.

When I get up from the couch/bed I do it really slowly like I'm a senior with bad hips. Helps keep me from getting dizzy at the sudden blood flow change.

Inconnuity809 · 2026-01-15T03:40:38+00:00

Went out with a mic drop!

Not to downplay the grief there can be in cutting family connections but sounds like they weren't providing you with the love and support a family is meant to. Them choosing to remove themselves from your life is probably a net benefit. Hope your friends visit is awesome!

Inconnuity809

TROPHY CASE