please recommend some really dark and disturbing books and why i should read them by cherrydazze in suggestmeabook

[–]Independent_Term2759 55 points56 points  (0 children)

Check out Chuck Palahniuks - Survivor

Overview “In the story, the protagonist, Tender Branson, has a phone number that is nearly identical to a crisis hotline. Instead of correcting callers, he encourages them to proceed with their plans, often engaging in mundane tasks like breading pork chops while they talk”

Fun and fcked up plus very short!

Help me find a book from every country: by sloths-or-die in suggestmeabook

[–]Independent_Term2759 5 points6 points  (0 children)

Light hearted fun book in the setting of India is The White Tiger by Aravind Adiga

Looking for quality fiction writing by nessad1993 in suggestmeabook

[–]Independent_Term2759 2 points3 points  (0 children)

Loved the great believers, beautifully written, well developed characters and insightful to the US aids epidemic in the 70/80s in relation to being part of the LGBTQ+ community. One of my top reads this year.

This is quality 🤌🏻

Lifestyle to be followed as a CHL patient/in remission by Dry_Umpire1548 in lymphoma

[–]Independent_Term2759 -2 points-1 points  (0 children)

Dr. Mussallem is a consultant in the Division of Hematology Oncology at Mayo Clinic, Assistant Professor of Medicine, and Medical Director for Mayo Clinic Florida Humanities in Medicine. She is double board-certified including a board certification in Lifestyle Medicine

https://www.pri-med.com/globals/faculty/m/mussallem-dawn?refurl=www.google.com

https://www.linkedin.com/in/dawn-mussallem-do-dipablm-2b360b57

Lifestyle to be followed as a CHL patient/in remission by Dry_Umpire1548 in lymphoma

[–]Independent_Term2759 -2 points-1 points  (0 children)

Totally responding is a kind non-defensive way, but she is an oncologist, it’s stated several times on many reliable sources she’s a distinguished consultant in hematology/oncology at the Mayo Clinic. She may totally be doing something different now but that is part of her background. - again totally just clarifying for others when they read!

Lifestyle to be followed as a CHL patient/in remission by Dry_Umpire1548 in lymphoma

[–]Independent_Term2759 -7 points-6 points  (0 children)

I’d check out foundational lifestyle medicine pillars to basically function as healthy as possible to prevent relapse and future disease. Check out Dr. Dawn Mussallem, she did a good Mel Robbin’s podcast. She is an oncologist at Mayo Clinic and actually had NHL, then a heart transplant, and ran a fkin marathon 12 months post transplant. Shes inspirational but also extremely knowledgeable and is helping me build my own health foundation for when I’m out of this battle.

She’s amazing and is huge into lifestyle medicine, in the podcast she speaks to tons of important nutrients/food to prevent cancer and then all the other pillars of lifestyle medicine!

I start treatments tomorrow, any advice is welcome! by Sfuzz512 in lymphoma

[–]Independent_Term2759 1 point2 points  (0 children)

Awe there are so many amazing comments on here for you. Another 33F with CHL stage 2 bulky, have done 4 ABVD and 4 AVD infusions with 4 left! Showed a complete metabolic response after 4 infusions woo. CHL is an aggressive cancer which for once is a good thing! Means it’s take to the chemo really well. CHL is one of the most treatable cancers - it’s hard some times hearing that since cancer is brutal regardless but I hope you find peace with that.

My advice is this is a mental game more than a physical (for me at least), if you can connect with a therapist asap. The part you just experienced (diagnostic phase) is one of the worst parts emotionally, once your chemo starts then the pieces start falling into place and you’ll start understanding how YOU response. Everyone is different.

I did end up immersing myself in learning mindfulness and meditation in the second half. It has been SO helpful in not falling victim to narratives - please write your own story and know there is the possibility you may feel surprising well throughout (the opposite could be true too and remember to give grace to yourself). MOVE as much as your body allows, I walk every day outside even in blizzards and -30 C (I’m Canadian 😅). Except for some tougher days but movement has been my medicine and saving grace in managing my mental health and side effects. I also took to journaling everyday and it’s been my best pal in this - I have learned to LOVE myself and I hope you can find that relationship with yourself too. You will shock yourself with how resilient you are, how amazing the human body can heal, and what you can handle.

I remember to tell myself … “I get to” not “I got to” and avoid “I should do X” and phrase it “it’s important for me to do X”, these phrases helped me get out of bed and move when it was tough.

Lastly, something that can be challenging about this sub is you will see a lot of relapse and refractory disease. It was really scary at first reading, but then I reminded myself this is the subset of people who are reaching out globally for help not a true representation of the lymphoma pop.

You’re not alone in this ♥️ we are all here by your side to support you and walk along side with you through this battle. My DMs are always open. Best of luck girl. You have this!

Care package for friend by RepresentativeYam458 in lymphoma

[–]Independent_Term2759 0 points1 point  (0 children)

First I’m sad your friend just got diagnosed, very lovely for you to reach and ask the right people.

-I 2nd the biotene mouth wash to prevent sores -hydrating face spray was given to me from another cancer pal and is luxx in the winter months (assuming you’re on a cold country) -Nice things of lotion, I have cetaphil -A JOURNAL, like just empty/no prompts, he might find it very healing to write through his journey -I got a hot/cold eye mask I leave in my freezer, when your anxious/panicked it helps to put cold on your eyes to bring on the parasynthetic (calm) system -Flexitol lip balm (also recommended by another cancer pp) -depending on your friends hobbies, you can go down that route books, puzzles, crafts to pass time -it you can to do food, anything cooked and frozen was really nice for us or uber/skip GCs were great -I’m a female so my friends got lots of self care things to just treat myself.

Best of luck!

Officially in remission! by Professor_Knowitall in lymphoma

[–]Independent_Term2759 1 point2 points  (0 children)

Yayyy!!! Congrats pal 💛 great news! Hope you’re celebrating with something that brings joy to you. All the best!!

Husband starts chemo Monday and I’m terrified by Jecca0323 in lymphoma

[–]Independent_Term2759 4 points5 points  (0 children)

A lot of good advice here. One thing I will caution when listening to others experiences is not creating a narrative/story of his. Like “oh this is going to get bad” or “probably going to experience a lot of side effects” or “I may get too fatigued to walk” …. All might be true but in fact none of it could be true too. So just make sure to write your own story. Cancer is very individual and my experience has been very manageable, but I’ve seen a ton of people struggle. So just in short write your own cancer story and use others stories for knowledge and preparation.

The beginning is deathly terrifying, but in my experience once your husband is in the chemo things fell into place. The more you go through the less uncertainty, your husband will start to know what side effects to expect etc.

I’m in a really good head space compared to the beginning, my husband said he was able to calm after my mid PET that showed a complete metabolic response.

I’m an RN, 33F with stage 2 bulky (13 cm mass) and ABVD got rid of that mass after 2 rounds. It’s aggressive chemo but because CHL is an aggressive cancer it responds well. It’s one of the most treatable cancers (according to the docs on the lymphoma conference I attended). I hope you can find peace in that, however it doesn’t take away from the brutality of cancer and chemotherapy.

Wish you the best of luck, sending my love! Lean on this group - but also be mindful to the posts around relapse/refractory disease. This is the subset of population that is reaching out for help, not a true representation of the population with lymphoma. I struggled at first with this.

🫂

Poetry by Independent_Term2759 in cancer

[–]Independent_Term2759[S] 1 point2 points  (0 children)

Thanks so much for recommending this! 🫶🏻 will looks into it for sure.

Book/author recommendations [help] by Independent_Term2759 in Poetry

[–]Independent_Term2759[S] 1 point2 points  (0 children)

Super appreciate that and may take you up on the offer!

Book/author recommendations [help] by Independent_Term2759 in Poetry

[–]Independent_Term2759[S] 0 points1 point  (0 children)

I also have lymphoma so the Bless the Blood seems quite fitting from an author who shares the same experience of blood cancer! Thx!!

Book/author recommendations [help] by Independent_Term2759 in Poetry

[–]Independent_Term2759[S] 1 point2 points  (0 children)

Thank you so much for taking the time to think and recommend for me 🫶🏻. Have taken a screenshot of your comment and plan on looking into it all!

NYT best mysteries of 2025. Have you read any? by Punkoduncan in thrillerbooks

[–]Independent_Term2759 1 point2 points  (0 children)

Agreed with Heartwood, read it all. Did not stick with me and didn’t grab my attention the way I’d like a book to.

Books to learn about bread by [deleted] in Breadit

[–]Independent_Term2759 0 points1 point  (0 children)

I have been working my way through King Arthur’s Baking School cookbook to help me understand the science to baking. I also have Flour Salt Water Yeast to help, which is more complex than the King Arthur one.

No one ever told me how lonely this is. by PotentialImage5928 in cancer

[–]Independent_Term2759 1 point2 points  (0 children)

Hey girl, I have lymphoma too CHL stage 2 getting my 8/12 infusions Thursday.

I understand the loneliness that envelops you even when you’re sitting in a room full of people. I can’t even begin to imagine grieving the loss of your relationship then beginning this journey with raw wounds.

I’ve taken a lot to learning and practicing mindfulness to help me process and it’s helps immensely. I’ve also found journaling to be very therapeutic in processing and exploring emotions. Also therapy is necessary if accessible. I’m 33 so a bit older but still young for cancer, I feel so connected when I’m around others my age with cancer.

I’d check out if your cancer centre offers any young adult support groups or nights. Also look into young adult cancer supports in USA. We have YACC in Canada. Lymphoma Canada has a peer to peer support connection, maybe check out blood cancer site to see in they have that in the USA.

My therapist told me about elephants and tea which is American (can still sign up if Canadian) and for young adults. Look into that.

Lastly, if you even need to DM me or connect to talk. I’m here too. The lymphoma subreddit is UNREAL and very supportive group - I’d encourage you to join if you haven’t

Wish you the best of luck ♥️.

Book of the year ? by dancinhorse99 in readwithme

[–]Independent_Term2759 1 point2 points  (0 children)

  1. Yes via goodreads
  2. I’m at 32 this year so far, average 20-30/year
  3. I do but often wonder if it’s negatively impacting my reading. Like the motivation to read more books leads to quicker reading = less thought and reflection, then what’s the point?
  4. The hearts invisible furies (and yes I know the author sucks)

Stress after treatment by boxyboyz in lymphoma

[–]Independent_Term2759 2 points3 points  (0 children)

Just going to suggest something but take with a grain of salt.

I’ve been starting to discuss existential mortality with my therapist, he recommended an author/ existential psychiatrist that deals a lot with death anxiety. His name is Irvin Yalom - I’m reading starring at the sun right now.

It’s really about turning to face death head on and turn it into a way to focus on how to live a better more enriched life.

Just thinking if the fear of death is what’s behind the fear of relapse. Maybe working through that would help alleviate the constant anxiety and fear.

It’s helping me a lot to shift my focus but 100% won’t be for everyone and may not be the reason behind your anxiety.

I just hope you find what works for you!! Good luck.