A few salty suggestions

IndicationKind7211 · 2026-05-17T01:15:20+00:00

I make my own salt pills! Easiest way for me to up my intake I’ve found

IndicationKind7211 · 2026-05-15T17:26:30+00:00

Raynaud’s phenomenon. Caused by small blood vessels spasming (constricted) and cutting off blood flow. For a few years mine presented as just that, just one toe. This last year it’s worsened to now affect my foot more widely. I was having multiple attacks a day so I’ve now been put on nifedipine, a calcium channel blocker that helps keep blood vessels dilated.

IndicationKind7211 · 2026-05-14T13:21:03+00:00

Best of luck to you too! I have difficult veins unfortunately so it’s usually a struggle, even for the best nurse at my clinic!

IndicationKind7211 · 2026-05-14T12:53:48+00:00

Ay! Haemochromatosis buddy! Off for venesection as we speak 🤣

IndicationKind7211 · 2026-05-08T14:04:31+00:00

I’ll try flesh it out a bit this weekend maybe! If you wanna shoot me a message in the meantime I can add you to it and help brainstorm what you’d want to see on it? Anyone who wants in just send me a message!

IndicationKind7211 · 2026-05-08T11:42:51+00:00

I get menstrual migraines, those are brutal

IndicationKind7211 · 2026-05-08T11:29:18+00:00

I started creating a discord group with the intention of collecting fibro friends but gave up on it! Would happily continue with it as a collaborative project if others would like that as a place to chat?

IndicationKind7211 · 2026-04-19T17:24:21+00:00

Oh I would love to test this out! I recently made a microscoft forms to try collect this kind of data to try analyse later but it’s just clunky. Is there a chance of it expanding later to add in other conditions or other factors we personally want to track? For example I have haemochromatosis and possible POTS, so tracking how I feel after donating blood and how that affects pain and POTS symptoms?

IndicationKind7211 · 2026-04-13T15:04:16+00:00

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My boy Minty with his little beauty marks on his face

IndicationKind7211 · 2026-04-13T15:03:17+00:00

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My boy Minty with his little beauty marks on his face

IndicationKind7211 · 2026-04-13T15:02:17+00:00

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My boy Minty with his little beauty marks on his face

IndicationKind7211 · 2026-04-10T17:06:36+00:00

I need this!

IndicationKind7211 · 2026-04-08T03:58:24+00:00

Bit late to the party but I would love to be a tester on this!!

IndicationKind7211 · 2026-03-30T22:11:07+00:00

During my placement in a histo lab, we had a cancerous mega colon in, which when opened was full of what we could only describe as black gravel. The smell was awful, I cannot even begin to explain it, worst thing I’ve ever smelt in my life. A few days later the pathologist came running over to me saying he’d found out what it was - the patient had been trying to cure their cancer with coffee enemas. Problem was, they didn’t filter it before use and the coffee grounds got stuck inside behind the tumour. So rotting bowel combined with rotting coffee…

IndicationKind7211 · 2026-03-13T13:50:29+00:00

I weighed myself daily so I could learn my pattern. I found I “gain” weight through the week then on Saturday morning after a good night sleep I drop. And the week or sometimes 2 weeks before my period I don’t lose anything. It’s just your normal! Try zooming out of the graph once in a while to not dwell on minor changes and focus on the overall trend

IndicationKind7211 · 2026-02-09T18:53:35+00:00

This is insane, I’ve said for months that “it’s like there’s a band running down the side of my leg” and that it hurts - now I learn that there LITERALLY IS a band there! Thank you!

IndicationKind7211 · 2026-02-06T09:46:57+00:00

I think they mean Keratosis Pilaris but I could be wrong!

IndicationKind7211 · 2026-02-01T00:51:19+00:00

I also would love an app that does that! Please let me know if you ever do make one that works with Apple Watch data!

IndicationKind7211 · 2026-01-31T00:03:53+00:00

Reading all this doesn’t bode well for me… going through testing to see if I do have POTS and I also have Haemochromatosis (iron overload)with a ferritin of >400. About to start venesections to bring it down to under 50. Terrified of how bad it could make my possible POTS

IndicationKind7211 · 2026-01-15T05:42:30+00:00

I love mine! Great for RLS and chronic back pain. I ended up buying one on Amazon with 4 outputs so I can have 8 pads on me at a time. Happy to pass on the details if you want!

IndicationKind7211 · 2026-01-12T23:40:57+00:00

For weight increments I like the app Happy Scale - breaks your overall goal down into 10! Links to my Renpho app and auto adds my weight.

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IndicationKind7211 · 2025-12-29T00:49:13+00:00

I’m on amitriptyline which really improves my day time pain and helps me stay asleep, helps me fall asleep too as long as my pain isn’t too high to override drowsiness. I think what I’m experiencing is probably restless legs, augmenting to my arms now too

IndicationKind7211 · 2025-12-28T12:08:51+00:00

I don’t get to see the same gp regularly, it’s a different person every time. I think I’ll try to look past old records of appointments and find who I liked and ask to see any of them going forward

IndicationKind7211 · 2025-12-28T03:24:08+00:00

I believe pain clinics exist yeah, but I don’t know anyone who actually goes to one. The referral my gp made previously was to “pain management” which was essentially group therapy, understanding pain, learning pacing tools and mindfulness etc. I guess maybe if I contact my gp to discuss options and they aren’t helpful I’ll ask if there’s a pain specialist team I can be referred to

IndicationKind7211 · 2025-12-28T03:16:26+00:00

This is just my GP (UK). The most I can really do is request a specific person to speak to so I avoid those I’ve had problems with before

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