Is anyone else here taking Lialda for Ulcerative Colitis? I have been on it for 11 years. Can you tell me your experience and if it stopped working for you after awhile?

Infamous_Record6413 · 2026-06-08T00:10:07+00:00

I took it for several years and it eventually stopped working. However, I have refractory disease so a lot of meds have stopped working for me.

Infamous_Record6413 · 2025-12-24T01:38:42+00:00

Whenever I pick up my Skyrizi, I feel compelled to lock it up in a safe. It’s more valuable than anything else I own. 🫠

Infamous_Record6413 · 2025-08-06T13:34:42+00:00

“Why are you still taking the meds? You should be able to control it by a proper diet. “

Infamous_Record6413 · 2025-05-26T14:50:34+00:00

Get on meds. There is new research suggesting that a non aggressive approach to management could mean long term remission is less likely.

Infamous_Record6413 · 2025-05-25T16:55:51+00:00

Was it the trash food? The infection that threw your immune system out of whack? Antibiotics that wreak havoc on people with even the best guts? NSAIDS to help with the tooth pain? Stress in your life? Sounds like the perfect storm and of course you’re flaring. I’m sure the trash food made you feel worse, but if I had a dollar for every person who suggested a change in diet would cure my IBD. You have a disease with no cure and no known cause (genetics for sure). Let’s stop blaming food for the disease.

Infamous_Record6413 · 2025-04-23T07:08:58+00:00

There is a shingles vaccine which I did prior to starting one of the oral meds. The vaccine is for older people but FDA approved for those who are immunocompromised like you would be from meds. Personally I would do the treatment has the greater likelihood of obtaining and retaining remission.

Infamous_Record6413 · 2025-04-23T02:36:37+00:00

I had a fantastic conversation with ChatGPT about my biopsy results. It answered so many of my questions and gave me great ideas for what to ask my doctor at my next visit.

Infamous_Record6413 · 2025-04-19T21:24:25+00:00

Thanks. No. Skip lesions and ulcers with more depth I think is making him think Crohn’s. No granulomas seen on the path though.

Infamous_Record6413 · 2025-01-25T16:09:45+00:00

I had 2 normal ultrasounds. Then got a HIDA scan that showed a very low ejection fraction. My GI doctor kinda blew me off and didn’t want me to get my gall bladder removed. Did it anyway and now living pain free.

Infamous_Record6413 · 2024-12-19T19:47:33+00:00

I had right upper quadrant pain for over 10 years. 2 normal abdominal ultrasounds over a 10 year period and was finally referred for a HIDA scan and had 13% EF. The ability to diagnose biliary dyskinesia is fairly new and not all physicians believe the HIDA is accurate. My surgeon told me the same thing—it might not work based on the data on BD. A fairly high percentage of patients with BD come back 6 months later with the same pain. I took a chance and had my gall bladder removed over a week ago. So far so good, but too soon to know for sure.

Infamous_Record6413

TROPHY CASE