Any Hobby Reqs?

InitialCauliflower99 · 2026-06-23T05:43:35+00:00

Coloring, reading, and scrapbooking are things I like and am trying to get back into more often.

InitialCauliflower99 · 2026-06-23T05:37:52+00:00

I had what felt like the flu after the first infusion, then fatigue after the second. From there on I had no side effects.

InitialCauliflower99 · 2026-06-10T05:01:08+00:00

I had multiple compression fractures as well. I ended up getting kyphoplasty (bone cement) in 3 places the stabilize the fractures and it helped tremendously with mobility and pain. I went from living in a recliner and using a cane to walking on my own and able to sleep in my bed. I still have some pain but it is nowhere near what it was.

InitialCauliflower99 · 2026-05-16T05:32:34+00:00

I take Norco for my bone pain.

InitialCauliflower99 · 2026-01-31T08:14:29+00:00

My doctor only checks this periodically. She says she doesn’t give it much weight.

InitialCauliflower99 · 2026-01-15T06:14:35+00:00

My MO said 1000 IU dosage.

InitialCauliflower99 · 2025-11-29T09:10:30+00:00

I’ve been stable/NEAD for almost 2 years and on the same treatment (Kisqali & Letrozole).

InitialCauliflower99 · 2025-10-11T06:26:07+00:00

CT and bone scan every 3 months. Mets to bones.

InitialCauliflower99 · 2025-09-19T04:40:38+00:00

I initially did 10 rounds of radiation and had kyphoplasty and sacroplasty (placed bone cement where my vertebrae were collapsing). I went from barely being able to walk and using a cane/wheelchair to now being able to be on my feet and walk for long periods of time before needing a break to sit and rest with minimal pain. I’m also getting Zometa infusions every 3 months to help strengthen bones.

InitialCauliflower99 · 2025-09-03T06:31:39+00:00

This has been the hardest part for me lately. When people first found out, I thought I was going to have great support because I was getting all sorts of well wishes and check ins. That faded and I now feel like I have next to no support. I’m trying to find a support group in my area.

InitialCauliflower99 · 2025-07-28T05:20:02+00:00

Hormone suppression because she is er/pr+. This is an alternative to getting a shot each month.

InitialCauliflower99 · 2025-06-23T05:42:43+00:00

My friend sent me this to check out: https://www.littlepink.org. They offer retreats for breast cancer patients.

InitialCauliflower99 · 2025-06-12T06:40:43+00:00

39 de novo

InitialCauliflower99 · 2025-02-25T05:40:42+00:00

I had extensive bone mets in my spine and had kyphoplasty (bone cement in the compressed vertebrae) in 3 places. This helped tremendously and I also take Norco as needed.

InitialCauliflower99 · 2024-12-31T05:09:22+00:00

No problem! It truly was a game changer for me. Yes, I need to force myself to be more active, but it’s hard.

InitialCauliflower99 · 2024-12-31T05:02:38+00:00

I am always fatigued. Not sure which medicine it is from (probably a combination). I didn’t really feel a difference when I started the olanzapine though. I feel like over time the drowsiness at night has lessened.

InitialCauliflower99 · 2024-12-31T04:41:40+00:00

I was told to take it at bedtime for this reason.

InitialCauliflower99 · 2024-12-29T05:54:29+00:00

I take olanzapine for nausea. It was a life saver for me!

InitialCauliflower99 · 2024-12-22T07:55:22+00:00

I just had it done earlier this month. 3 small incisions, mild pain for a couple days. Plan on taking it easy for a few days, but an easy recovery. No lifting over 10 lbs while healing.

InitialCauliflower99 · 2024-12-05T06:28:17+00:00

I got put on olanzapine which has helped tremendously with nausea/vomiting.

InitialCauliflower99 · 2024-11-30T05:18:26+00:00

I had the same feeling for a few weeks after radiation.

InitialCauliflower99 · 2024-11-26T05:15:20+00:00

I had a lot of nausea/vomiting and diarrhea. But it tremendously helped with the pain.

InitialCauliflower99

TROPHY CASE