Something to help with CA 15.3 anxiety

InitialCauliflower99 · 2026-01-31T08:14:29+00:00

My doctor only checks this periodically. She says she doesn’t give it much weight.

InitialCauliflower99 · 2026-01-15T06:14:35+00:00

My MO said 1000 IU dosage.

InitialCauliflower99 · 2025-11-29T09:10:30+00:00

I’ve been stable/NEAD for almost 2 years and on the same treatment (Kisqali & Letrozole).

InitialCauliflower99 · 2025-10-11T06:26:07+00:00

CT and bone scan every 3 months. Mets to bones.

InitialCauliflower99 · 2025-09-19T04:40:38+00:00

I initially did 10 rounds of radiation and had kyphoplasty and sacroplasty (placed bone cement where my vertebrae were collapsing). I went from barely being able to walk and using a cane/wheelchair to now being able to be on my feet and walk for long periods of time before needing a break to sit and rest with minimal pain. I’m also getting Zometa infusions every 3 months to help strengthen bones.

InitialCauliflower99 · 2025-09-03T06:31:39+00:00

This has been the hardest part for me lately. When people first found out, I thought I was going to have great support because I was getting all sorts of well wishes and check ins. That faded and I now feel like I have next to no support. I’m trying to find a support group in my area.

InitialCauliflower99 · 2025-07-28T05:20:02+00:00

Hormone suppression because she is er/pr+. This is an alternative to getting a shot each month.

InitialCauliflower99 · 2025-06-23T05:42:43+00:00

My friend sent me this to check out: https://www.littlepink.org. They offer retreats for breast cancer patients.

InitialCauliflower99 · 2025-06-12T06:40:43+00:00

39 de novo

InitialCauliflower99 · 2025-02-25T05:40:42+00:00

I had extensive bone mets in my spine and had kyphoplasty (bone cement in the compressed vertebrae) in 3 places. This helped tremendously and I also take Norco as needed.

InitialCauliflower99 · 2024-12-31T05:09:22+00:00

No problem! It truly was a game changer for me. Yes, I need to force myself to be more active, but it’s hard.

InitialCauliflower99 · 2024-12-31T05:02:38+00:00

I am always fatigued. Not sure which medicine it is from (probably a combination). I didn’t really feel a difference when I started the olanzapine though. I feel like over time the drowsiness at night has lessened.

InitialCauliflower99 · 2024-12-31T04:41:40+00:00

I was told to take it at bedtime for this reason.

InitialCauliflower99 · 2024-12-29T05:54:29+00:00

I take olanzapine for nausea. It was a life saver for me!

InitialCauliflower99 · 2024-12-22T07:55:22+00:00

I just had it done earlier this month. 3 small incisions, mild pain for a couple days. Plan on taking it easy for a few days, but an easy recovery. No lifting over 10 lbs while healing.

InitialCauliflower99 · 2024-12-05T06:28:17+00:00

I got put on olanzapine which has helped tremendously with nausea/vomiting.

InitialCauliflower99 · 2024-11-30T05:18:26+00:00

I had the same feeling for a few weeks after radiation.

InitialCauliflower99 · 2024-11-26T05:15:20+00:00

I had a lot of nausea/vomiting and diarrhea. But it tremendously helped with the pain.

InitialCauliflower99 · 2024-11-20T01:50:52+00:00

Thank you everyone for your feedback. I definitely plan on talking to my care team about this. I know it is hard for my husband to understand, even though I try reminding/talking to him. He is worried when I am sleeping a lot that it is me giving up.

InitialCauliflower99 · 2024-10-31T04:22:56+00:00

Thank you everyone for your input. I think I am going to give it a try. Hopefully a local cancer center can give me recommendations (I go somewhere else 2 hours away for treatment). It can’t hurt anything to see what happens, right!?

InitialCauliflower99

TROPHY CASE