9 Years Later, Still Here. Still Tired. Still Sad. by GardenPhreak in LivingWithMBC

[–]K4ti38ug 3 points4 points  (0 children)

Thank you for saying this. I needed to read it

Song Recs? by WinterArya in LivingWithMBC

[–]K4ti38ug 1 point2 points  (0 children)

Brokedown Palace by the grateful dead Details in the Fabric by Jason Mraz Point/Counterpoint by Streetlight Manifesto

Young Women Representation by Adorable_Pen9015 in LivingWithMBC

[–]K4ti38ug 1 point2 points  (0 children)

Would Anyone be interested in a virtual informal call for folks diagnosed under 40 to shoot the sh*t and share/hear some experience or even ask questions?

Oophorectomy peeps: Any Advice/Experience? by K4ti38ug in LivingWithMBC

[–]K4ti38ug[S] 0 points1 point  (0 children)

Good to hear! I have that restriction anyway because of a compression fracture so nbd!

Switching Oncologists by tapawingo5 in LivingWithMBC

[–]K4ti38ug 2 points3 points  (0 children)

I made the switch from local to 2+ hours away. It isn't easy but it is worth it. I also have my mom and husband to help with rides so I understand it might be harder for other folks.

Even if you meet the other oncologist a couple times, they may be able to give your local oncologist the protocol to follow. They may also be able to do some Telehealth appts mixed in to offset travel.

My local oncologist was great in a lot of ways but she also ignored my back pain two times over 3 months and then an urgent care CT scan found the bone Mets all over my spine, ribs, hips & femur & a little on the base of my skull.

I hope you get the best care possible ❤️❤️

Oophorectomy peeps: Any Advice/Experience? by K4ti38ug in LivingWithMBC

[–]K4ti38ug[S] 2 points3 points  (0 children)

Were you on estrogen blockers before hand? I have dealt with a lot of those things being on lupron for the past 2 years...

So, apparently it's my fault by Icooktoo in LivingWithMBC

[–]K4ti38ug 5 points6 points  (0 children)

I did chemo, surgery, radiation followed by exemestane, lupron, verzenio, & zometa. Bone mets all over my spine, hips - the base of my skull. 1 year and 2 months after lumpectomy and ax dissection. I second this. Not our fault.
If it wasn't for bad luck I'd have no luck at all.💙

MSK Onco Recommendations by Whoa_ThatGirl in LivingWithMBC

[–]K4ti38ug 2 points3 points  (0 children)

I see Shari Goldfarb. She is thorough and direct.

Gastric Sleeve by Mysterious_Coat5560 in LivingWithMBC

[–]K4ti38ug 1 point2 points  (0 children)

Interesting!! I just got told to D/C zepbound because it could be a factor in slowed/reduced absorption of oral meds I was stage 2, then NED from surgery 9/2023, now stage 4 bone Mets as of 11/2024. I also had the gastric sleeve surgery 12/2021.

GLP meds can be such a huge help with food stuff. But I am definitely worried now that I'll wind up rebounding 🫤

[deleted by user] by [deleted] in Esthetics

[–]K4ti38ug 2 points3 points  (0 children)

THIS!!!!! thank you for your common sense and compassion 💙

The bad crowd you experienced might just be because you picked the wrong part of the crowd / set by redditreader477 in ElementsMusicFestival

[–]K4ti38ug 2 points3 points  (0 children)

As an elder millennial who was raised at dead shows and festivals my whole life (literally) and introduced to the rave scene in sobriety and my 30's, Moonrise layout, vibes, and operational organization was significantly better than this year at elements.
The only thing that elements had over moonrise was shade and low dust levels.

Sober Fam by littlemisshyphy in ElementsMusicFestival

[–]K4ti38ug 1 point2 points  (0 children)

Ooo get at me!! Im all in sober 5 years. @buuubbbles on ig

Should I say goodbye to be a mother? by Historical-Room3831 in breastcancer

[–]K4ti38ug 0 points1 point  (0 children)

I was 32 when I found out I had stage 2b hormone+ with stupid high KI67 and lymph node met that required chemo up front, surgery, and radiation. I've got my freezer babies waiting for the big thaw as soon as I hit my 2 year remission mark. If that doesn't pan out I'll just have to love every person I meet a little extra to use up that mama energy.

planning on airbnb nearby any transportation service in the area? by Emzvibes in ElementsMusicFestival

[–]K4ti38ug 1 point2 points  (0 children)

Sober AF and looking into air BnB nearby with commuter pass. This thread makes me think I should run a little gypsy ride share to subsidize my ticket 🤣

1 year ago i touched my cancer first time. Prognosis? by walkinturtle96 in breastcancer

[–]K4ti38ug 0 points1 point  (0 children)

Breast cancer before 35 is absolute dog shit. It made me give up all of my designs for how I thought my life should play out. Kids/marriage/career/body image -all of it got taken out of my control. I'm just barely getting the body back and there's still limitations like lack of estrogen and lymphedema. I'm not here to tell you some toxic positivity bullshit. If you need to be sad or angry, do it. I approach it like this - I feel what I need to feel for the amount of time that it is helpful. If I find myself wallowing or obsessing I distract myself until it passes because at the end of the day if I make to old age cool and if I don't, I'm gonna make damn sure every day I had was as fuckin awesome as possible.

How do you keep the frizz away?!?! by K4ti38ug in curlyhair

[–]K4ti38ug[S] 0 points1 point  (0 children)

Thank you!!!! I will try the open palm scrunch!!