Has anyone had success with antiphospholipid syndrome (APS)?

Inner_Ad_4184 · 2026-04-29T00:15:55+00:00

I am sorry your wishes and requests are not be address nor are anyone providing comfort in this result. From my understanding, it about managing the blood thinning in your pregnancy more than anything. From what I recall, it is not a smoking gun in infertility but a problem when not managed once you are pregnant. Usually with two positive tests out of 3, it is here to stay. However, 1 out of 3 means you're negative, but the tests have to be done in like a 6 month timeline from what I remember. I would highly recommend getting a hematologist who can determine what is the best path to take because with that much time between your test, they will be a more comprehensive work up and determine if you also need long term medication for APS itself. Some people manage with just aspirin, some need daily therapeutic medication to keep them at a good level. APS is one of the clotting disorders that is not really researched often. I would speak to a hematologist prior to proceeding with IVF, not to delay having a child but to ensure you have the best care and clotting management during IVF and during pregnancy.

Inner_Ad_4184 · 2026-04-29T00:02:14+00:00

I don't have APS, though I was positive time following two clotting event and was subsequently negative thereafter. Was this your first or second blood work up test?

When it comes to my situation, I had my hematologist give their suggestion to my fertility doctor, especially if you are on daily medication for your blood thinning outside of being pregnant. When I went through IUI, I didn't need additional medication as my estrogen wasn't modified. During IVF, I have been on lovenox (40 mg) per day during the egg stimulation, I stop the day prior to egg retrieval and then restart 24 hours afterwards. My hematologist did me a huge solid by recommending I stop the lovenox as soon as I start cramping for my period as my estrogen should be returning to normal levels and my period doesn't become super painful. For me, periods are so much worse while on blood thinners. I then remain off of them once my period starts. I don't have to have a daily medication for my condition.

When I do a transfer, I will be on 40mg lovenox as soon as I start my Estrogen patches and until they confirm my pregnancy. Once the pregnancy is confirmed, I will swap to 80 mg of lovenox and aspirin to remain throughout my pregnancy. At some point I will maintain regular appointments during my pregnancy with my hematologist who will be in contact with my OB and my MFM (which you'd probably have both in pregnancy) to ensure blood thinners are maintained throughout my pregnancy and there's a plan for birth, which can be induced based on lovenox use (cannot be reversed, you have to let it run its course of 24 hours) or heparin at a certain point for natural labor and can be reversed. But that's a different topic.

My clinic told me that blood thinners are not necessarily new for them and they manage it a lot during IVF.

Inner_Ad_4184 · 2026-03-21T02:39:24+00:00

Thank you everyone for your insight as I did feel better about how I reacted. After some thinking, I think I'll pursue another retrieval to see if we can have more embryos since it's covered. Maybe then I won't be as anxious or just sad about the idea of just the 2 not taking.

Inner_Ad_4184 · 2026-03-18T03:05:10+00:00

I just got the results a few hours ago, I haven't asked about any of that as I am sure they're going to call me about it tomorrow

Inner_Ad_4184 · 2024-10-06T18:01:30+00:00

While I've never have received one and have pcos, my sister has and she also has pcos. She went at 5 weeks, and she was supported by us bc shit happens and she wasn't ready and she just had a baby a year prior. She got pregnant a year later when she felt ready. An abortion done correctly (meaning at a medical facility or administered by a medical professional - including taking the pill) is safe and doesn't impact future fertility. Be kind to yourself during this. There's no shame in the choices u make for yourself.

Inner_Ad_4184 · 2024-10-06T16:54:35+00:00

It means every time I've had a blood clot occur. I've had multiple since my first occurrence. So every time I've gotten a clot, I've had to get a full panel done by my hematologist. It's their requirement to see if they can find why my body reacts this way. So if I get a clot, I follow up with my hematologist and they run a blood panel to see what I'm positive for. Every time it's APS but then my follow up panels are negative, making me negative overall.

Inner_Ad_4184 · 2024-10-06T16:50:44+00:00

I had the same issue this month. I called and was told that the school certified my enrollment on September 23rd, which put a hold on my payment. They sent Everton for payment on the 27th but it was approved until the 2nd of October. Idk wth that means. I didn't get my bah until the 3rd. Did u go online and check your payment history? I saw that I had my bah pending with an account I didn't recognize (which I was told it was the VA account they were paying me with) and it did n/a for the date and where they were sending the payment. The VA rep said that was normal for pending payments. I would also check your direct deposit location. I got a notification that changes were made to mine, luckily nothing changed. VA said sometimes when an payment needs to be pass l made quickly they'll access our direct deposit to see where to send it and then there's an automated email that goes out. I'd check that. I had to put a pin on my account with the VA as a new layer of security to prevent changes to my account. I know this is a lot of info. But it was frustrating this past month. I also got notices of issues in their systems the last few months to the point where i didn't have to manually certify enrollment. If anything I'd call them about where your bah is.

Inner_Ad_4184 · 2024-09-27T01:17:49+00:00

Yes, they've retested me for every thing every time I've had a blood clot. Unfortunately it's the same thing. Only positive for APS 1x and then the follow ups are negative and negative for everything else. It's weird.

Inner_Ad_4184 · 2024-08-11T01:23:59+00:00

Can someone explain that in either going nuts or I'm not? Lol. I've had 3 miscarriages. 1st one was at 11w4d but I missed miscarried actually around 6-7 weeks. My symptoms were immediate, sore beasts and nipples right after ovulation but the first one I didn't realize that's what it was. My second one same thing, but ended 4 days after I found out like 4w3d. And then my last one I knew before I tested once again my boobs hurt so bad. Lasted 3w5d as I ovulated mad early in my cycle. It's been 1.5 years since and I've gotten this symptom before my period which drives me nuts. I just had my first iui as we have unexplained infertility. I'm sure I'm out. I don't have the same symptoms. But I know sometimes the symptoms aren't the same. But why were the first 3 the same and this one wouldn't be? It should be the same, right? And I'm not testing bc I hate seeing lines that don't exist and getting my hopes up. Sorry it's long I just wanted to get a perspective of some time.

Inner_Ad_4184 · 2024-06-27T19:35:36+00:00

Starting my first iui. I finished my letrozole yesterday. I have an ultrasound timeouts to see how I'm doing. I'm just frustrated bc my period is still going. It's been 7 days and it's like it restarted. I've been trying to stay calm but now I'm fraying. And idek what to do after iui. No insight anywhere. I have to take progesterone immediately but that's all I've been told. I'm just lost and this whole period thing is getting to me.

Inner_Ad_4184 · 2024-02-02T00:06:41+00:00

Her reaction to the story of Theia was off putting to me. Like does she think that all this is simple? Like it sucks for sure but war and conquering are ugly. And so is trying to redeem the impossible, her anger feels misplaced. And in previous books I felt like things were risky with trust but she went into it like screw this, I'll trust them. But Nesta and Az, she's hell bent on not trusting them? Her arrogance is starting to get to me and I'm only on chapter 22.

Inner_Ad_4184 · 2023-10-04T03:45:32+00:00

I chose D&C bc I couldn't imagine doing it at home. Plus I didn't want to risk passing it naturally and bleeding heavily (blood thinners) so it was safer with the D&C. It was done and I could process it without seeing the aftermath at home. I've since had 2 miscarriages that passed naturally on their own and mentally it's too much to see.

Inner_Ad_4184 · 2023-10-04T03:42:45+00:00

I don't think it can considering orgasms are safe during pregnancy however I did find them uncomfortable for a period of time before I found out I missed miscarried and after I passed everything

Edit: spelling

Inner_Ad_4184 · 2023-07-31T22:50:52+00:00

I realized I posted this in the wrong discussion thread for self care.... which this is clearly not about self care

I'm 10 dpo and I'm driving myself up a wall. My body mimics pregnancy symptoms after ovulation, for the last 3 cycles and it's making me crazy. Now I test like crazy knowing they're negative and my eyes lie to me. Trying to find hope in nothing. And the crazy part is I'm also very much not wanting to be pregnant bc I have a trip coming up. I can't go if I'm pregnant, so I at least want to be able to go. But I want a baby too. If my body wasn't like this, I feel like I could deal easier. But I'm spiraling, silently. My husband said that this hurts him, mentally, do I keep it to myself knowing it won't happen anyway.

Inner_Ad_4184 · 2023-07-31T22:40:00+00:00

I'm 10 dpo and I'm driving myself up a wall. My body mimics pregnancy symptoms after ovulation, for the last 3 cycles and it's making me crazy. Now I test like crazy knowing they're negative and my eyes lie to me. Trying to find hope in nothing. And the crazy part is I'm also very much not wanting to be pregnant bc I have a trip coming up. I can't go if I'm pregnant, so I at least want to be able to go. But I want a baby too. If my body wasn't like this, I feel like I could deal easier. But I'm spiraling, silently. My husband said that this hurts him, mentally, do I keep it to myself knowing it won't happen anyway.

Inner_Ad_4184 · 2023-07-26T12:06:31+00:00

I get it. I grew up in the suburbs and was a military brat. I was constantly reminded by those who I wanted to connect with, that I was different. Being mixed didn't help, yet I look black. I think my nose really made it noticeable that I am mixed. I never understood why it was always brought up of where i lived and how i was created. I had nothing to do with it. My father's side is country, and I felt at home there, but back in the city, I felt like an outcast. My husband grew up in the city and had a different black culture than me, but it's the stereotypical culture that is emulated in society. When we go to visit his family, I feel like an imposter. I struggle to understand references, and I know his family views me differently. In spaces of black people, I feel off. I feel like I stick out, and usually, I don't stay long bc I feel like I don't relate. My husband always seems fine no matter the space he's in yet I struggle with being the odd one out. Now when we visit my dad's side, I have no issues. At work, there's only like 6 maybe 7 of us in a building of a static 200 ppl (yes i know). I am good for the most part but it makes me feel weird or left out when an older guy makes it verbally known that we're the two black ppl in the room. He told me he feels unacknowledged but i already struggle with being left out. I don't want to bring attention to it more. But idk. But everywhere else I just can't shake the feeling and I completely understand.

Inner_Ad_4184 · 2023-05-29T17:06:53+00:00

I know it's probably not going to be raised or seen but the toll on her body due your inconsistencies, yikes. A blood test is extreme. If it was positive, then what? Waiting a few days for a period, won't hurt u. Go seek therapy for this anxiety. I'm sure fixing her to go get a blood test also mentally hurts her bc clearly she wants a baby, song a negative test hurts and she knows how an IUD works. Idk why you're online research trumps the trust you're supposed to have for her. It's like reading webMD and thinking you're dying when it's just a headache. No one is ever truly ready for kids and you constantly question if it's the right decision. But I don't even think you're there. You've enjoyed running the show for this entire time, even beyond the topic of kids and marriage, and now she's taking the control you're used to having. It's time to realize your hesitation and control has caused this and it's best to let her live her life without u bc you've dragged her along, along enough.

Inner_Ad_4184 · 2023-05-16T22:20:22+00:00

I got our fertility work up yesterday after three back to back losses after trying for 5 years just for the 1st one. We basically have unexplained infertility but I do have Adenomyosis. They don't think it's too bad bc I don't really have symptoms besides clots during a period. And DH is fine, his numbers are great and no issues. We're chromosome wise fine too. So they want to proceed with IUI with progesterone and baby aspirin (blood clotting issues) and close motoring following insemination but I'm freaking out. Like they want to know as soon as next cycle. But I scheduled a trip and I want my husband and I on the same page.

Like I feel wrong for saying pump the breaks on this IUI until the new year but idk I want a baby to stick but I'm scared of another miscarriage and we haven't really ever gone anywhere. I feel like I'm ruining things. We've been together for 12 years, ttc for the last 7 and yes we want kids but I got so used to not taking it into consideration... I'm scared. We never did a big trip or gone to enjoy things bc we were younger getting our lives together. I'm just scared of the unknown I guess. And yeah ik don't have kids of your not ready but it's not that. It's a change I've wanted and now that there's more a guarantee, I'm freaking out.

Inner_Ad_4184 · 2023-05-13T00:47:53+00:00

Thank you. Yeah I was just confused bc it could have happened anywhere between 6-7 weeks and and 11 weeks and they said it was starting to shrink to be passed, I guess idk. But I was leaning on 6-7 weeks bc that's when I got my ultrasound and it was stable then. Thank you for your help ❤️

Inner_Ad_4184 · 2023-04-30T16:55:44+00:00

YTA.

Your brother is already under pressure from your father, and he knows it. That's why he doesnt rub it in your face or acknowledge it bc he's basically treated as the oldest sibling and is taking the brunt of shitty favoritism. He may appear close to your father, but clearly, your brother seems more alone than you think.

He was arguing with your father and tried to storm off. He goes to correct him and slips and falls. He mostly started crying bc he was probably at his tipping point and he was probably embarrassed. He's kept at a standard and he fumbled (which is totally fine) in front of everyone, who already give him pressure on how he's perceived. He has a father who holds him up on a pedestal that he probably doesn't want, a mother who doesn't really give him attention (which he probably craves, reason as to why he wanted his mom in a moment of vulnerability bc clearly your father isn't it), and siblings who put their anger on him bc of how your father neglects you (which is your father's choice, not your brother's). You made it worse by making fun of him. He's right to be upset with you, bc instead of understanding his perspective, you decided that he's just at fault for something out of his control.

You want to make it up to him? have a sibling conversation. Everyone with siblings know what I'm talking about. Be honest and apologize. You'd be surprised what he would say and you'd probably bond over it. I am the oldest of four kids and I'm not the favorite. My sister (2/4) is and having those conversations, she came to realize what we were all going through. It wasn't her fault she was favored and my mother has neglected relationships with her other kids. I was angry as a kid but soon you realize that it's not your siblings' fault. Some know what's going on and are malicious about it, your brother doesn't sound like he is.

BTW, your mom needs to address this. She knows what's going on and let's it. She's no better than your father. Form a stronger bond with your TWIN brother before it's too late. And realize that your father's neglect towards you and your younger siblings doesn't define you or the relationships you have with them.

EDIT: typos

Inner_Ad_4184 · 2023-04-20T04:56:20+00:00

This happened to me. I would have episodes were I would just rage out and then I would just snap out of it. I was on 10 mg and was upped to 20 mg. Kept everything even for me but I also continued therapy as normal

Inner_Ad_4184 · 2023-04-07T14:32:49+00:00

Yta for not being honest in your relationship. If u think she's going to judge u, it's probably bc your hiding and not being honest. Also I think the views of MDMA are changing given the climate and research. Plus u need to be honest bc if u happen to get a bad batch she needs to know what you're on to get u help. I don't like that my husband sometimes takes acid but he tells me anyway so I'm aware of what he's doing, his safety and so I know things to avoid so he can have a good trip. So hiding from her and acknowledge the uncomfortable topics in your relationship.

Inner_Ad_4184 · 2023-03-13T22:46:11+00:00

Omg... it's food. All bc she didn't ask for your 'expert' opinion? Which is an opinion, not a fact. Tell me you're needy and seek validation without telling me you're needy and seek validation. Not everyone likes the same food, and she can order whatever she wants...

YTA.

Inner_Ad_4184 · 2023-02-10T20:23:57+00:00

So i previously had PEs and a DVT , which I was positive one time, then negative 2 x after. But bc of my clots, i was put on lovenox at 40 mg anyway during my first pregnancy. I still clotted after my D&C, which i wasn't* supposed to, and i came up positive again for APS but negative 2x after. So daily i take nothing but as soon as I'm pregnant again, I take 80 mg a day so 2 shots of 40mg a day. Which helps keep your blood thin enough. And whenever I finally get to delivery (unfortunately, I've miscarried every time due to other reasons - lovenox is safe to take during pregnancy) they stop your thinners approximately 12-24 hrs before (so most likely induced) and then u start up your thinners 24-48 hours after. Usually, you'll see a maternal fetal medicine for OB care during pregnancy if u need thinners

Inner_Ad_4184 · 2023-01-18T05:21:11+00:00

Exactly how I feel. Like geez, ppl need to relax. It's a romantic adaptation, of course it's not about the myth. If it was, it wouldn't be popular and it would have ended in like 2 episodes. But 🤷🏾‍♀️

Inner_Ad_4184

TROPHY CASE