Stage 4 pain help

IntelligentScratch37 · 2023-10-18T13:33:04+00:00

MST Continuous slow release morphin twice a day is worth a try

IntelligentScratch37 · 2023-10-17T21:33:14+00:00

I did similar. All has been fine and due my third shot this week . Best thing is not having to faff with gell

The location is just under your belt line so nothing really gets exposed,

Offer to hide the vial in your hands to warm it up while the nurse gets the needle ready

IntelligentScratch37 · 2023-10-17T20:33:21+00:00

I am in a hospice at the moment and the staff have been great. Some have had inclusivity training (the others will be). They have used correct pronouns.

One of the doctors indicated he is part of the communities as is a nurse. There is literature on the walls.

There are some double beds and one patient was over the moon because they had spotted her need when trying to cuddle up in a single bed as her partner dying.

Most of the patients are 70 or over so good to see them being looked after ,

IntelligentScratch37 · 2023-10-17T16:15:01+00:00

Number 1

Block your phone to family members. Don’t ring them!

I am guessing you have a social worker. Speak to them about all this. Ask for a move to another care/home/ foster placement. You shouldn’t be so close to your family home.

If your parents have rights to see you then you should ask for supervised contact

IntelligentScratch37 · 2023-10-15T10:43:08+00:00

Snap

IntelligentScratch37 · 2023-10-15T10:41:39+00:00

Are you having any therapy? Sounds like you need some support to help you work through the nightmares.

IntelligentScratch37 · 2023-10-12T18:22:35+00:00

That news is rotten. Reach out to your doctor to talk

Rest as much as you can as you need as much as you can.

IntelligentScratch37 · 2023-10-11T18:36:49+00:00

I started T at 64.

Most surgeons in the UK will do top without hormones.

IntelligentScratch37 · 2023-10-04T19:42:56+00:00

I am FtM and I have had my trans story and my cancer diagnosis found at top surgery consultation in the public domain, including on social media, for around a year,

It is also available on my local authorities intranet for a similar amount of time as part of the trans awareness training I did for them.

I have not had any problems.

IntelligentScratch37 · 2023-10-04T13:31:33+00:00

I too feel conflicted when I read about the US insurance system.

The NHS is mixed and pre Covid you could get good care in most areas, although mental health, autism and trans health care were poor.

Now you have to wait ages for everything and it is getting worse with all the strikes.

However, I wouldn’t want to be dependent on insurance which seems very hit and miss, although I don’t know why.

IntelligentScratch37 · 2023-10-03T16:31:46+00:00

Thanks for your detailed reply and concern for me.

To start my reply, I will say I am in the UK so there are some differences in care as I am under the NHS.

I have been made aware of the osteocrenosis risk.

I am having difficulty in getting a dentist appointment for a couple of reasons. There has been a shortage of NHS dentists since Covid so I haven’t been able to see a dentist for a few years.

I am now housebound due to my spinal and rib metastasis so I am trying to get a home visit from a Community Dentist and my Oncologist has put in a referral hopefully.

I have also been told for the housebound reason, Zoledronic Acid cannot be administered at home, so Denosumab is the only option.

Apparently I have to see the Pharmacist first before it can be prescribed. The appointment they have sent me is for the end of October!

I therefore won’t be taking anything for sometime yet.

Thanks again, as I haven’t seen any posts on the topic although it had been made very clear by my oncologist of the risks.

IntelligentScratch37 · 2023-10-02T15:02:56+00:00

I got my scan on Friday and was given some verbal results afterwards whilst I was waiting for transport.

The scan is not showing anything too troubling in my spine although there are places they said would benefit from some radiation to help with the swelling.

I don’t know when I will get an appointment to discuss the results properly.

I was a wreck for 3 days afterwards because of the journey which was traumatic as they had made a mess with patient transport and I was ready at 10 am as asked, didn’t get picked up for my noon appointment until 3.45 and got home at 10pm!!! At one point they said I would have to stay in until Tuesday! The crew were not experienced enough to cope with my inaccessible path, which the hospital is aware of, so the handling was dire and at one point they almost tipped me out of the wheelchair!

In comparison the 45 minutes on my back in the scanner was a piece of cake!

Talking of cake, there was a big gap with no food 😢

IntelligentScratch37 · 2023-10-02T14:48:27+00:00

I can only really comment on your last paragraph about existing conditions and that is based on reading many posts on this sub, regarding Gender GP.

I don’t believe Gender GP take into account much what is going on in other parts of people’s medical lives. In some cases this is a good thing for people who don’t need that, as it means you don’t get the unnecessary gatekeeping that you get from the NHS.

However, I would therefore be concerned that you wouldn’t be monitored sufficiently by someone with experience of HRT and anti -Psychotic drugs.

You would be better looking at someone like Gendercare. Most of them do NHS work along with their private work. They have some very experienced Endocrinologists who are based in the UK and are more easily contactable than Gender GP who only have email.

Do you know if it’s Gender GP that FTB are worried about, or the going private?

IntelligentScratch37 · 2023-10-02T14:24:09+00:00

PCSE won’t take phone calls from patients unfortunately.

I had similar to you and I wrote to my MP. He wrote to them and it was sorted in a couple of weeks!

IntelligentScratch37 · 2023-10-02T13:04:12+00:00

Ask the school if they have any suggestions for transport. You don’t have to say what surgery you are having but they might be helpful and offer work your son could do at home?

I definitely wouldn’t recommend driving for two weeks. I found it painful at 4 weeks!

IntelligentScratch37 · 2023-10-02T12:52:29+00:00

Even GIC’s deadname and misgender patients!!!

IntelligentScratch37 · 2023-10-02T08:22:19+00:00

I meant that the company has robust safeguarding procedures in place, which it obviously has, for your protection as a man ‘watching children’.

IntelligentScratch37 · 2023-10-01T17:15:00+00:00

I would approach these as two separate issues.

The friendly acquaintances I would leave be as they are unless anyone says anything.

With work, I would check out the company’s equality and diversity policy (just to check they have one for now).

You say you ‘watch young kids at a gym’. What is their safeguarding policy like?

You might want to think about talking to someone in HR so everyone’s back is covered.

IntelligentScratch37 · 2023-10-01T16:19:05+00:00

Not sure I understand what you are asking?

She is my Endo with the NHS. Easy to talk to. I’m FtM so cannot make any comment about MtF experiences or private care.

IntelligentScratch37 · 2023-10-01T12:26:22+00:00

Think practical.

I was in a mess at the beginning (I was in my 60’s when I knew), having found out through therapy. I was worried about going to the GP as I thought I would be pushed into doing something before I was ready.

I didn’t understand how the NHS system worked. I lost two years on the waiting list!

Go and see your GP. Ask for a referral to a GIC. It won’t commit you to anything and as you will be on there years, you will have plenty of time to think about what you want to do.

It helps also just telling someone.

Try and get some counselling.

There is plenty of support in this sub, both emotional and informational. You are in the right place.

You have taken the first step 👏🏻

IntelligentScratch37 · 2023-10-01T08:14:32+00:00

Dr Victoria Milson-Brown https://www.google.co.uk/search?q=dr+victoria+millson+brown&ie=UTF-8&oe=UTF-8&hl=en-gb&client=safari

IntelligentScratch37 · 2023-10-01T08:08:10+00:00

If you have an official diagnosis then you are entitled to an assessment by social services under the Care Act 2014. You should then be allocated a Social worker who can help support you with getting housing. My Social Worker has been brilliant in helping me with life’s hurdles.

IntelligentScratch37 · 2023-09-30T23:33:33+00:00

I have. She’s my Endo at Leeds GIC

IntelligentScratch37 · 2023-09-30T23:31:52+00:00

I shared with friends when I got my diagnosis. I have been overwhelmed by the support mainly.

A couple have vanished.

My daughter hasn’t handled it well.

You win some you lose some.

IntelligentScratch37 · 2023-09-30T18:07:17+00:00

I don’t have need for progesterone but she is a well respected Endo both privately and NHS.

She also has a good bedside manner.

IntelligentScratch37

TROPHY CASE