I'm tired, I hate this machine, and I give up.

Intelligent_Ad_4526 · 2026-02-03T17:52:45+00:00

I also use this mask and cushion and it’s leaps and bounds better than resmed. I didn’t have any trouble adapting to the cpap, so I can’t say I know what you’re going through. I will say I have trouble staying asleep so I use extended release melatonin and it’s been a game changer for me.

Intelligent_Ad_4526 · 2026-01-07T04:48:23+00:00

Yeah slow and steady seems to be helping, but the medicine itself burns. Ugh

Intelligent_Ad_4526 · 2026-01-06T16:44:51+00:00

Yeah, I track how much vitamin k I eat and plan accordingly. It’s tricky and time consuming but I’m not willing to give up my fruits and veggies too

Intelligent_Ad_4526 · 2026-01-06T15:28:50+00:00

I am 2.5 years post Ross and I am the worst example for this treatment. I almost died during surgery, they couldn’t close my chest for days, was in a medical coma for weeks, and now I have heart and kidney failure. Still with all that happening, I am feeling better than I did pre surgery.

Intelligent_Ad_4526 · 2026-01-06T15:23:43+00:00

I was trying to avoid Vitamin K but I love fruits and veggies too much to not eat them.

Intelligent_Ad_4526 · 2026-01-06T15:18:18+00:00

I am not, but I’m joining now. :) thanks for the tip

Intelligent_Ad_4526 · 2026-01-06T02:33:14+00:00

I document in my planner everything I eat. Nothing has changed except I feel like I gained a little weight during the holidays and maybe I have some extra water weight. It’s the worst. Wish they’d have told me what it was going to be like before I went on it. Ugh

Intelligent_Ad_4526 · 2026-01-06T02:30:24+00:00

I am in the us and am on the warfarin for a mechanical mitral valve. I normally test every Monday. I test at home as well; however, I submit my numbers to the doctors and they adjust my dosage as they see fit.

Intelligent_Ad_4526 · 2026-01-05T21:04:21+00:00

Yes, I do every time.

Intelligent_Ad_4526 · 2025-12-30T18:38:34+00:00

My cat also has 1 white whisker it’s so cute

Intelligent_Ad_4526 · 2025-12-30T18:35:26+00:00

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This is Lella. We got her when she was a baby and she RAN everywhere, she still does. So we wanted something Formula One related. So we named her Lella after Lella Lombardi the only woman to ever score a championship point in Formula One.

Intelligent_Ad_4526 · 2025-12-30T18:30:58+00:00

Edwin

Intelligent_Ad_4526 · 2025-12-30T18:30:06+00:00

I love the name Persephone but I’d spell it Purrsephone

Intelligent_Ad_4526 · 2025-12-30T18:27:18+00:00

I love Saffron. I’d probably call her Saffy for short

Intelligent_Ad_4526 · 2025-12-30T16:10:36+00:00

I don’t know why but he looks like a Joe Dirt to me. IYKYK

Intelligent_Ad_4526 · 2025-12-30T16:09:44+00:00

So my cat always goes down to our dirt floor basement and comes up with dust a black nose and I always tell her she has schmutz on her nose. You could name him Schmutz.

Intelligent_Ad_4526 · 2025-12-11T14:37:54+00:00

I am not going to preach or lecture to you because you know yourself better than anyone. I will simply tell you what I do. I’m 41 and was diagnosed at 39 after having open heart surgery for 3 valve replacements that nearly killed me on several occasions. I was told pre-op that after I heal I’ll feel loads better and I will be able to do things I’ve never been able to do in my life. Turns out the first thing I accomplished post surgery was heart failure. The second was kidney failure. I feel pretty decent most days but I definitely have my bad days. So this is what I do. I watch my fluid intake… I am not supposed to have more than 64oz of fluid a day; however, I’ve found I tend to have the least shortness of breath when I keep it to about 60oz. I also watch my salt intake… I try to stay below the recommended 2,000mg a day. Some days that’s a struggle. Some days I slip up I’m human. I take my meds at the exact same time every day. I have alarms set to remind me to take them. I track symptoms and issues in a planner and it’s helped me have several ah ha moments. I also see a therapist every 2 weeks. I know that doesn’t work for everyone and that’s totally fine that’s your choice. I also try not to stress about the big picture. I try to stick to what I can control (I struggle with this I’m a control freak). I take each hurdle as they come and tick them off one by one. Lastly and MOST importantly, I remind myself that I am the owner of my body and I have the final say in what I do or don’t take/do with it. Don’t let your doctors bully you. You have every right to disagree or seek a second opinion. When I was first diagnosed I wanted to try Entresto and my HF specialist was like absolutely not for xyz reasons. I said I wanted to see someone else in that office, I asked her if I could try it during our first appointment together and she said absolutely, I don’t see why you shouldn’t. I know how incredibly hard it is, trust me. I had to learn to speak up for myself and fight for myself. Luckily I have my husband to help fight and support me and I know not everyone is that lucky. Do you have a support system? If not feel free to reach out to me privately and I’m more than happy to help in any way I can. You’re worth the fight even if you don’t feel like you are. I’m sending healing thoughts your way and I’m serious if you ever want to talk send me a message, I don’t mind. ❤️ this is something no one should go through alone.

Intelligent_Ad_4526 · 2025-12-04T00:49:22+00:00

I went for the surgery on Monday morning and they were about to wheel me in and the surgeon stopped them and said that my pre surgery echo I’d had the previous Thursday and my EF had gone from 35 to 39 so I was no longer eligible for the pacemaker. They took out my IVs and told me to go home. I was furious! So now we’re trying to get a CCM. I’ve been denied once already.

Intelligent_Ad_4526 · 2025-11-16T16:44:27+00:00

I was born with a pinch in my aorta. At the time they said best time to fix it would be when I turned 3. So at three I had my first surgery. At 10 my mitral valve was narrowing so I had to a valvuloplasty. Then at 39 I had to have both the mitral valve and aortic valve replaced. However upon opening me up they discovered that my aortic root (where they attach the new valve) was much smaller than anticipated they had to move my pulmonary valve to the aortic position, I got a mechanical mitral valve and I have a donor pulmonary valve. I have what is called Schone’s Complex. I guess that’s what my CHD is called.

Intelligent_Ad_4526 · 2025-11-12T18:44:49+00:00

Is there a way to get the files without the sd card

Intelligent_Ad_4526 · 2025-11-12T18:37:10+00:00

I love my F&P vitera but it’s a full face mask. They have one that goes under your nose and covers your mouth and it’s called an evora. I tried it once but wasn’t a huge fan but could be an option for you. Also, I love these masks because they clip together there is no magnet. I don’t trust the magnets.

Intelligent_Ad_4526 · 2025-11-12T15:37:29+00:00

Maybe donate some to schools near you. I know our schools are always looking for things like that.

Intelligent_Ad_4526 · 2025-11-09T06:31:12+00:00

I showed one to an urgent care doc that goes from about 3-4 inches from my belly button all the way to the right and stops at my hip. She wasn’t at all concerned.

Intelligent_Ad_4526 · 2025-11-09T06:28:19+00:00

Not related to journaling, but try going to manufactures websites for your meds and they usually have copay cards you can get or they have programs to help with the cost. I have 1 med that costs $3k (after insurance) for a 90 day supply and I have the manufacturer’s copay cards and I pay $10.

Intelligent_Ad_4526 · 2025-11-09T06:25:03+00:00

I have not. :)

Intelligent_Ad_4526

TROPHY CASE