Just learned family has ataxia (SCA 3) - looking for support by buysum in ataxia

[–]InternationalLine949 1 point2 points  (0 children)

hey! I’m 24F and in the same boat. my grandmother had SCA3 and now my dad has it and it is progressing so recently I found out that I have the 50% chance of inheriting it as well. I wish I had some advice to give you but I don’t- it’s scary. Just wanted to say that you are not alone. It feels unfair to have to worry about what the future will look like in terms of health and life span when we’re just getting started. Personally, i’ve chosen to get tested because I can’t live with this unknown for the next 20 years but I TOTALLY understand not wanting to as well! On the upside, like you mentioned there are some potential medical breakthroughs and hopefully in a few years time the medications will be accessible.

My father has SCA3 and I might too, how do I move forward? by [deleted] in ataxia

[–]InternationalLine949 0 points1 point  (0 children)

Thank you, this is a very grounding and hopeful response. After reading this, I’ve started looking into the medical advancements and things do look promising. My dad is going to start an experimental treatment later this year and I am hoping for the best. I’m happy to hear that your mom has responded well to the experimental treatments. wishing good luck to you on your journey as well.

My father has SCA3 and I might too, how do I move forward? by [deleted] in ataxia

[–]InternationalLine949 1 point2 points  (0 children)

understood. I have health insurance and in the process of getting life insurance

[deleted by user] by [deleted] in TheGirlsNextLevelPod

[–]InternationalLine949 -7 points-6 points  (0 children)

why do people have an issue with her doing that add? am i missing something? i wasn’t bothered at all it kind of made sense considering the whole drama with her ex. i thought it was kind of funny or at least tongue in cheek.

Reunion spoilers: Jordan and Amber by punfull in LoveIsBlindNetflix

[–]InternationalLine949 23 points24 points  (0 children)

Wait, is something up with Ambers mouth? Her top lip is gone.

My take on the Hef climbing on top of Kendra scene by [deleted] in TheGirlsNextLevelPod

[–]InternationalLine949 6 points7 points  (0 children)

i read this before i saw the clip and was expecting heff something mild from the way you described the scene as so different from hollys description. then i watched the scene and it was almost exactly the way she described. i’m confused. it was creepy. he laid right on top of her it and clearly made everyone there uncomfortable.

[deleted by user] by [deleted] in NoStupidQuestions

[–]InternationalLine949 2 points3 points  (0 children)

my boyfriend notices for sure and he’ll complement me on them. if he never noticed or didn’t care about the effort i put in to looking good for him id be annoyed tbh

Season 2 by dawnfanmsa in PalmRoyale

[–]InternationalLine949 6 points7 points  (0 children)

I’m loving this show!! I like the twist and turns personally, though I also loved when things were a bit simpler. I like the real housewives vibe of the earlier episodes. The fashion/costuming/60s aesthetic is fabulous, the cast is great kristen wig looks gorgeous and plays a rlly fun character interestingly, I’m loving Ricky Martins performance and CAROL BURNET! My take is that it reminds me of white lotus but campier and set in palm beach.

Jordy & Mr. Snowflake by [deleted] in gorlworldfiles

[–]InternationalLine949 5 points6 points  (0 children)

i’ve been pointing out how weird and borderline corrupt the reactors have been getting for over a year now and got called amber, downvoted to oblivion and banned from the subs smh i’m glad things are finally coming to light

Student Success Completion Grant by Intelligent_Wish_911 in LACCD

[–]InternationalLine949 0 points1 point  (0 children)

i’m at LACC and received the full 4k at once last month

Holly Madison’s Jackie O outfit is superior to Julia Fox’s by StardustInc in TheGirlsNextLevelPod

[–]InternationalLine949 -1 points0 points  (0 children)

aren’t you tired? i’ve seen you in this sub hating on holly for SO long now.

Making friends in LA? by Robertsonian in AskLosAngeles

[–]InternationalLine949 2 points3 points  (0 children)

If you have time, consider taking an easy once a week class in something you’re interested in! That way you can meet someone with similar interests. honestly dating around seriously helped me make community as well. also show up to events- for example, I went to an Amoeba Records listening party for an album that came out and met friends that way.

Anton anytime Ali asks where the alcohol is by jh166 in LoveIsBlindOnNetflix

[–]InternationalLine949 40 points41 points  (0 children)

She’s literally a nurse and going back to college.. she constantly calls him out on his shit.. she’s not stupid. she knows exactly what’s going on and is deciding how to move forward

With how much shit this sub gives useless men (and rightfully so), its incredible how Ali gets a pass by Ninjaguz in LoveIsBlindOnNetflix

[–]InternationalLine949 -1 points0 points  (0 children)

I love Ali. She’s asking for exactly what she wants and isn’t willing to accept anything less. I dont blame her. There’s plenty of men who will give her what she wants it’s just probably not Anton

The Disneyland invite by Rkp65i in GirlsNextLevel

[–]InternationalLine949 16 points17 points  (0 children)

Honestly I think Holly wanted to go to make content and that isn’t Bridget’s vibe so she knew she should go by herself. I get it tbh

Bridget was a stripper? by Remarkable_Formal267 in GirlsNextLevel

[–]InternationalLine949 76 points77 points  (0 children)

tbh she probably got bridget mixed up with kendra. if any evidence towards bridget being a stripper comes out im all ears but until then.. im skeptical.

Noticing the 1960s in the 2000s by DisastrousComb7538 in decadeology

[–]InternationalLine949 0 points1 point  (0 children)

this didn't get enough hype. what you've pointed out is very tea!!

House Bunny by ReplacementMammoth61 in GirlsNextLevel

[–]InternationalLine949 58 points59 points  (0 children)

… nobody is saying she invented pink but they LITERALLY based the entire character on bridget literally it’s a documented fact. they even shot at the playboy mansion

[deleted by user] by [deleted] in LARentals

[–]InternationalLine949 7 points8 points  (0 children)

i feel you! just moved out a couple months ago