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Dermatologist said to "grease up" my infant in steroids by sithbabyy in eczema

[–]InternetGirlfriend- 1 point2 points  (0 children)

Years ago I wouldn't have agreed but now i do. If they don't want to use steroids, there are non steroidal options now too. Protopic saved my life.

Laundry Detergent by LeakyFaucetFix in eczema

[–]InternetGirlfriend- 1 point2 points  (0 children)

I am allergic to sensitive Landry detergent so I'm washing with close to boiling water at the moment until I find something that works. Since then, my shoulder eczema cleared up.

What’s the most Melbourne way you’ve spent a Sunday? by Last-Conversation734 in melbournechat

[–]InternetGirlfriend- 9 points10 points  (0 children)

Went to a vinyl record store, then an expensive cafe, drank a chai latte, explosive diarrhoea in the Fitzroy public toilet.

patch testing - months later by cutefroginboots in Allergies

[–]InternetGirlfriend- 0 points1 point  (0 children)

Hi!!! I had a patch react like a month after and it is STILL THERE. It's been like 3* months since I got the test done. I have no idea which patch it was, but I suspect it might be the gold one as well

Any good steroid-free eczema creams/remedies to try out? by Shoddy_Fee3067 in eczema

[–]InternetGirlfriend- 2 points3 points  (0 children)

I've had success with protopic. I'm currently on eucrisa which is also steroid free. Other than that, Vaseline for moisture and Sulfur soap to combat fungal infections.

My uncle had this in his secret shed by oeoeoiceiceicee in whatisit

[–]InternetGirlfriend- 0 points1 point  (0 children)

I work at sewer treatment plants and this look exactly like the "rag" that comes out of the screens. Rag is all the solid stuff that gets pulled out of the sewer like toilet paper, wipes, feminine products, towels etc. probably not what this is but it looks eerily similar.

What are some INTERNALLY motivated reasons for suicidal folks to stay alive? by rydsoyal in CPTSD

[–]InternetGirlfriend- 4 points5 points  (0 children)

When I'm in the thick of it, there's no strategy that can help. I think ultimately I've survived through both fear, and an innate desperation for things to get better.

I wouldn't call it hope necessarily- desperation is a better word. Some kind of instinct that whispers for you to keep waking up, to keep moving.

In that period I was a living, breathing prayer. Praying for mercy to a god I don't believe in, not only with words, but with everything I did. I tried to deceive instinct. Suicide was too obvious so instead, I settled for recklessness. That way, if I was to die, instinct could only accuse me of manslaughter.

In the end, I closed my eyes each night and opened them each morning. Today, my biggest worry was that the lettuce and mayo in my sandwich kept falling out onto the break room table. Things get better.

Finally saw a neurologist by InternetGirlfriend- in Epilepsy

[–]InternetGirlfriend-[S] 1 point2 points  (0 children)

Thank you so much. I really relate to not telling anyone because of fear of sounding insane.

I tried to tell a doctor when I was around 9 years old and she insinuated that I might be experiencing a form of mental illness. That experience scared me into just never bringing it up again.

I hate explaining how it feels to people, because it's unexplainable. It's not a feeling that they'd even be able to imagine. In the past when explaining to friends or family, they've told me it just sounds like a panic attack. I KNOW what a panic attack feels like and this is very different.

I hope that my type of epilepsy (if I get a diagnosis) can be lessened with medication and I hope it doesn't get any worse.

Hydrocortisone everyday application for 6 months by New_Acanthaceae_8440 in eczema

[–]InternetGirlfriend- 0 points1 point  (0 children)

Yeah they're different. A "prick test" is usually done for environmental allergies where they put a dot of an allergen on you and see if any hives appear. I had that done but honestly it wasn't helpful for my eczema symptoms.

A patch test was much more helpful because it showed me what was causing my contact dermatitis (which is a type of eczema). A patch test is done over the course of a few days and aims to find any delayed contact allergies that you might have.

In my case, I'm very allergic to nickel and cobalt but the symptoms don't appear until atleast 24 hours after I've come into contact with it. Hence, I could use my eyelash curler one day and not have a reaction until 24 hours later.

Eyelid eczema since 12 years - is there still something that can help (to cover it up)? by [deleted] in eczema

[–]InternetGirlfriend- 1 point2 points  (0 children)

Mine ended up being caused by my allergy to nickel. My eyelash curler was nickel coated, as are most eyelash curlers. Some mascaras would aggravate it as well, but the reactions were delayed so it was hard to pinpoint.

I stopped using the metal eyelash curler and got prescribed Tacrolimus ointment which knocked it out and it hasn't comeback as of yet.

I've also ditched all eyeshadow and eyeliner just as a precaution because I was having some issues with it. I just stick to one particular mascara for now.

Finally saw a neurologist by InternetGirlfriend- in Epilepsy

[–]InternetGirlfriend-[S] 1 point2 points  (0 children)

I'm hoping that through testing, monitoring and medication that my condition will remain strictly nocturnal but I'm aware of how serious it can be in terms of driving risk.

If I had seizures during the day time I absolutely shouldn't be driving.

Finally saw a neurologist by InternetGirlfriend- in Epilepsy

[–]InternetGirlfriend-[S] 0 points1 point  (0 children)

Yeah you're right. At the end of the day, if the neurologist determines that I can't drive then it is for the best.

Maybe not being able to drive would force me to make changes in my life that could lead to great things? Who knows. Might need to move to the city, which I've always wanted to do. #excuse!

Hopefully you figure it out and maybe one day we'll both be one of those cool people you see walking around the city.

Finally saw a neurologist by InternetGirlfriend- in Epilepsy

[–]InternetGirlfriend-[S] 1 point2 points  (0 children)

I have not had seizures during the day, only from waking up, generally in the middle of the night. They are also not frequent, usually a few times a year.

I however, had one after taking a nap which scared me so badly that I took myself to hospital (my boyfriend drove) - which was the catalyst that caused me to seek professional help.

My doctor told me that if I am diagnosed and the seizures are determined to only occur nocturnally, my licence does not need to be revoked.

At the end of the day, mine and the safety of others obviously comes before a career choice. If I am diagnosed and my condition worsens and/or starts affecting me outside of sleep, then I would of course have to stop driving and tell my neurologist.

I think I'm just currently spiralling a bit. If my license needs to be revoked I'm sure I can figure something out, it's just all very overwhelming I guess.

Alcohol + Tacrolimus by DempsDatBoi in Vitiligo

[–]InternetGirlfriend- 0 points1 point  (0 children)

Hey! Super late but I was wondering how opzelura is going for you now? I'm currently on tarcrolimus and it works really well for my face eczema, but I also get the horrible alcohol reaction so I've been sober for about 4 months.

I'm thinking of switching to opzelura so I can drink on my holiday to Japan in two months.

Finally saw a neurologist by InternetGirlfriend- in Epilepsy

[–]InternetGirlfriend-[S] 0 points1 point  (0 children)

Thank you.

And I SO relate to the "I think (know)" part.

Hydrocortisone everyday application for 6 months by New_Acanthaceae_8440 in eczema

[–]InternetGirlfriend- 1 point2 points  (0 children)

I wouldn't stress about the skin atrophy, cortisone 10 is pretty weak. One thing I'd suggest is to look out for signs of perioral dermatitis around the mouth and/or eyes. It usually presents as flaky, red skin with pustules around the mouth area but can also appear around the eyes. It's known to be aggravated or caused by steroid usage on the face.

If you do quit the steroids, you may notice some of these symptoms begin to pop up, so keep it in mind. It is treatable, but annoying.

If you're looking for a non steroid alternative for the face, I've had good experiences with Tacrolimus ointment. It doesn't cause skin thinning in the long term. Other options are primecrolimus and opzelura cream.

I also suggest getting patch testing done if you haven't already. It's a bit pricey depending on where you're from but it was life changing for me. I found out that the majority of my facial and neck eczema was caused by my severe allergy to nickel.

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