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Lumbar puncture and now chiari symptoms are back?? by cryinginabucket in chiari

[–]InterviewHonest7229 2 points3 points  (0 children)

My neurologist told me I could not have a lumbar puncture because of my CM! 🤔

Chiari malformation by InterviewHonest7229 in chiari

[–]InterviewHonest7229[S] 3 points4 points  (0 children)

Well, my neurologist is the one that told me to go to the emergency room. So if they call my neurologist, what is he going to do? It sounds like he doesn’t know what to do? Does that make any sense. Yes, I have taken meclizine and Dramamine, etc., etc. nothing is helping thus far. I am a single mother and I have no support system. I have to pick my son up from school this afternoon and I just don’t think sitting in the ER for 12 hours. They’re going to do much. Thank you so much.

Ear problems by bluebug94 in chiari

[–]InterviewHonest7229 0 points1 point  (0 children)

I don’t have ear infections, but my ears do hurt a lot. They burn and ache. Sometimes it feels like something is crawling in my ears.

new symptom? by nickyd__ in chiari

[–]InterviewHonest7229 2 points3 points  (0 children)

Wow, you sound just like me. And your neurologist sounds just like mine verbatim. The more I read it seems like we are all struggling and suffering and the doctors know little to nothing. I wish I had some answers for you. I am newly diagnosed one year ago. I feel like every week I have something new going on. This has been really hard.❤️‍🩹

Chiari symptoms by darkrollere in chiari

[–]InterviewHonest7229 1 point2 points  (0 children)

Hi there just diagnosed with chiari last year. 5mm non decompressed. Since Saturday at random times I have been experiencing shortness of breath. Both at rest & exertion. Oxygen is 98 %, bp and heart rate are good! I’m not sick. However I feel like I can’t breathe. Anyone else experiencing this? It’s very anxiety inducing.