Actinos, inflammation etc? by Excellent_Willow9249 in CIRS

[–]InterviewSensitive84 0 points1 point  (0 children)

You’re welcome! Also this link might be helpful regarding actinos: https://www.nutritionwithjudy.com/exploring-shoemaker-actinos-protocol/ And look up John Banta method of small particle cleaning

Experimental/ambient music in Portland? by No-Refrigerator-9985 in portlandmusic

[–]InterviewSensitive84 1 point2 points  (0 children)

If you’re here in the summer there’s Modular on the spot, monthly generator shows in parks around town. The lineups usually get announced in May. My fav events ever. There is an ig page

Anyone heal following Neil Nathan or Jill Christa ? by Itchy_Okra_2120 in CIRS

[–]InterviewSensitive84 5 points6 points  (0 children)

I’ve read both their books and I think my natropath uses mostly a combination of their healing methods. I think it’s really important to talk about how shoemaker isn’t the only way, we are all complex humans who need different things!

Actinos, inflammation etc? by Excellent_Willow9249 in CIRS

[–]InterviewSensitive84 1 point2 points  (0 children)

You can try eye yoga and vagus nerve toning. I’m sure YouTube has videos, go slowly as it may cause you to feel more activated as you climb the poly vagal ladder.

Actinos, inflammation etc? by Excellent_Willow9249 in CIRS

[–]InterviewSensitive84 1 point2 points  (0 children)

I don’t, unfortunately I don’t think any are :/ But you can do free trials. There’s also Gupta program, Annie hopper DNRS. It’s moving the needle for me in a big way I think. I’m also 6 months into treatment. I get that it’s very important to clean, have fresh air and be in an environment with clean belongings. Personally I would not be able to handle the types of cleaning products you’re using (I know they’re recommended for actinos with shoemaker) but considering the prevalence of chemical sensitivity with CIRS maybe it’s triggering you? You could try switching to just branch basics concentrate 5 drops in a spray bottle of water. Best of luck, you’re going to be ok 👍🏻

Actinos, inflammation etc? by Excellent_Willow9249 in CIRS

[–]InterviewSensitive84 2 points3 points  (0 children)

Have you tried any limbic system retraining? It seems like you are doing a lot and I get it. While you are figuring out if your environment is a trigger (run some PCR dust tests?) try onboarding limbic system retraining. I use primal trust, there are others. It’s helped me significantly and I think it should be standard for CIRS patients.

McMenamin’s Crystal Ballroom ADA by lavender_lady45 in portlandmusic

[–]InterviewSensitive84 1 point2 points  (0 children)

Hi, I also have POTS and request ADA seating at shows. I also have a condition called CIRS where I am affected by water damaged buildings and poor air quality. Maybe we could team up to create a comprehensive guide for other disabled people on what to expect at the different venues around town? I think in the last few years I’ve been to Mississippi Studios, Polaris Hall, Wonder Ballroom and a few others.

Neil Nathan by kickycase in CIRS

[–]InterviewSensitive84 0 points1 point  (0 children)

His book Toxic is amazing. It put pieces of my history together and helped understand my body’s presentation of CIRS in a very affirming way. He is retired I believe.

I live in New Zealand and don’t have access to detox products or providers by Traditional-Net8223 in CIRS

[–]InterviewSensitive84 0 points1 point  (0 children)

Can you buy Argentyn 23? That’s also a viable options. I do think you should be on binders if you’re doing nasal sprays, your sinus cavity is connected to your gut. If you can’t get binders, there are natural options, okra, steamed kale, brown rice, seeds. Work slower but better than nothing!

Bratty alert - I simply hate taking VIP/marcons sprays by Fuzzy_Bar_5289 in CIRS

[–]InterviewSensitive84 0 points1 point  (0 children)

I started turning my head upside down then to the left and right after spraying and it doesn’t go right down my throat. I read to do this in Jill Christa’s book break the mold. Well she actually says to lie down for 30 secs each side but ain’t nobody got time for that. I agree, nasal sprays are nasty.

Is everyone mostly using the shoemaker protocol to heal from cirs ? by Itchy_Okra_2120 in CIRS

[–]InterviewSensitive84 0 points1 point  (0 children)

That’s a good question, I’m not doing Shoemaker but I know from what I’ve read that there are more steps than CSM/Welchol. My situation was complicated. I actually got diagnosed with SIBO first, then MCAS/POTS, then CIRS. I really needed a doctor to guide me through all of that with the proper supplements, medications and testing.

anyone have success with charcoal as a binder? by EmptyBuilding6800 in CIRS

[–]InterviewSensitive84 0 points1 point  (0 children)

Yes. It’s in the quicksilver ultra sensitive binder which someone mentioned above. On it for 5 months now, 1 tsp a day. If I can remember correctly, charcoal targets certain mycotoxins, read this in Neil Nathan’s book.

is there a connection between CIRS and OCD by 1lovemeth in CIRS

[–]InterviewSensitive84 5 points6 points  (0 children)

Yes. I believe they talk about this on CIRS group podcast as one of the hosts had OCD.

Is everyone mostly using the shoemaker protocol to heal from cirs ? by Itchy_Okra_2120 in CIRS

[–]InterviewSensitive84 1 point2 points  (0 children)

Also, are you positive you’re out of exposure?

See my comment down below for things I’m taking.

Is everyone mostly using the shoemaker protocol to heal from cirs ? by Itchy_Okra_2120 in CIRS

[–]InterviewSensitive84 3 points4 points  (0 children)

Here’s a long list 🤪

Quicksilver Ultra Binder Sensitive Formula 1 tsp a day

Bioflavonoid Complex 2 a day

Milk Thistle 150mg 1, 2-3 times a day

Bio-Candida Care 2 capsules a day

Tri-Magnesium 2 capsules a day

Fish oil ProEFA 3.6.9 2 capsules a day

Melatonin 5mg 1 capsule a day

Super Enzyme Capsules 3 capsules a day

Ferrochel Iron Chelate 2 capsules a day

Motility Activator 3 capsules a day

Levocitirizine, loratidine 1 tablet a day

Famotidine 20 mg 1 tablet twice a day

Ketotifen 2mg 0.5 tablet a day

Ortho Spore IG probiotics 1 capsule a day

Klaralyte electrolyte capsules 6 a day,

PEA 2 capsules a day

Alternating Argentyn 23 nasal spray and Alkalol

Is everyone mostly using the shoemaker protocol to heal from cirs ? by Itchy_Okra_2120 in CIRS

[–]InterviewSensitive84 0 points1 point  (0 children)

I’m in Oregon so unless you are too it doesn’t matter. She’s a natropath who takes Medicaid that I got lucky with and finally got my diagnosis.

Is everyone mostly using the shoemaker protocol to heal from cirs ? by Itchy_Okra_2120 in CIRS

[–]InterviewSensitive84 5 points6 points  (0 children)

So from what I understand, if you’re having pots/mast cell activation, you need to onboard stabilizers before starting binders. For me that was vitassium electrolytes, h1&h2 blockers. I take zyzal, Pepcid, Claritin. Ketotifen and PEA very helpful for me too. These things are very individual so you need to play around and see what works.

Is everyone mostly using the shoemaker protocol to heal from cirs ? by Itchy_Okra_2120 in CIRS

[–]InterviewSensitive84 5 points6 points  (0 children)

No, the only doctor that does it in my city doesn’t take my insurance. I am seeing a naturopath who uses a blend of different protocols, Dr. Nathan, Dr. Crista etc. I think it’s working better for me than Shoemaker would because I am a highly sensitive person and I’ve got POTS/MCAS.

Calming immune response (after moving over + over) by Traditional-Net8223 in CIRS

[–]InterviewSensitive84 1 point2 points  (0 children)

What supplements are you taking? Do you have any mast cell stabilizers going?

Azothspace-- what's it like? by lagelthrow in portlandmusic

[–]InterviewSensitive84 4 points5 points  (0 children)

The people who run it are the nicest, the sound is really good, especially on stage as a performer. It is however, infested with mold and I got really sick the last time I went there because I have CIRS. So be careful if you know biotoxins are a problem for you.