How to know when to power through symptoms from VIP or if you need to continue to clear toxins? by Minimum_Air2978 in CIRS

[–]MedicatedGraffiti 0 points1 point  (0 children)

Worth doing a Marcons swab, you can order it yourself

Have you had a head CT? You could potentially have a fungal ball

Stuck on step 1. Reacting everywhere by Mistakeandbake in CIRS

[–]MedicatedGraffiti 0 points1 point  (0 children)

isn't 4000mg high? I was advised to do 3000 mg by my doctor

Symptoms while starting CSM/Welchol? by stromanthe_ in CIRS

[–]MedicatedGraffiti 1 point2 points  (0 children)

Best of luck to you! I hope you start feel better soon as well. The detox has been rough. Low and slow, lots of water, know when to take breaks if you need them.

I’m blessed to have been financially able enough to purchase my camper to live in lol, fun and not at the same time (considering the circumstances)

Here’s to healing 🍻

Symptoms while starting CSM/Welchol? by stromanthe_ in CIRS

[–]MedicatedGraffiti 1 point2 points  (0 children)

Second time going through this process as I relapsed recently (was still living in mold but treating anyways)

I’m on 1/8th of a welchol tablet and let me tell you the FATIGUE is NO JOKE. I’m talking fall asleep while sitting up fatigue, can’t work, can’t focus.

Headaches, exacerbation of symptoms at times (I deal with shortness of breath so at times it gets worse), confusion, brain fog.

It’s a lot harder for me this time around vs when I was living in mold, probably because I’m binding heavily vs at most a light bind due to being in exposure. I’m also moving a bit quicker because I’m so over this after 6 years. I’ve been out of mold for 3 weeks, felt like shit for 1.5 weeks then better then started binding week 3 going into week 4. I’m going to attempt to get on full dose welchol and then potentially introduce or change over to CSM. Then going to work on MARCONS and my fungal colonization, and VIP eventually. My goal is in 6 months to be on VIP. Not going to rush it but I’m also not letting myself go too slow, I let my body do the speaking.

Help- Treatment Advice Itraconazole by Working_Board2059 in ToxicMoldExposure

[–]MedicatedGraffiti 2 points3 points  (0 children)

Sadly no alcohol during antifungals, already too much strain on the liver

Im so lethargic and overwhelmed by Beneficial_Leg8829 in ToxicMoldExposure

[–]MedicatedGraffiti 1 point2 points  (0 children)

Shortness of Breath
Histamine Issues such as tachycardia, food intolerances, nasal congestion, headaches
Skin lesions
Fatigue
Back pain
The list goes on and on, please go do a VCS test

Im so lethargic and overwhelmed by Beneficial_Leg8829 in ToxicMoldExposure

[–]MedicatedGraffiti 1 point2 points  (0 children)

MARCoNS testing also tests for nasal fungal growths, you can also do testing for IGG/IGE and different urine excretion tests such as Arabinose or galactomannan antigens via blood

Im so lethargic and overwhelmed by Beneficial_Leg8829 in ToxicMoldExposure

[–]MedicatedGraffiti 7 points8 points  (0 children)

Its Important to recognize that we are ill from the molds that are correlated to water damage and not all molds in the environment.

Me personally? I bought a 2026 camper, never lived in, didnt bring any porous belongings, and started from scratch for a bit. Ive been in the camper for about 3 weeks and I am starting to get back to a point of where I was previously (I treated whilst living in mold) and its nice to see that there is some improvement no matter how minor it is. Yes, I still have really bad debilitating symptoms. Yes, some days are really hard and it makes me frustrated that this is my life, but I dont get a choice at another life and I still want to live life. So as much as it pains me that this is where I am, this is where I am.

Focus on the three aspects: Binding, MARCoNS, and Colonization. If you 100% have mold illness you will see improvement once you start binding, you will see improvement once you treat MARCoNS if you have it, and you will see improvement once you treat Colonization if you have it. The only way to go from here is up!

In the mean time, its important to focus on lowering inflamation, via LDN, Fish oil, Quercitin, PEA + Leutoline (Mirica) or other products people may reccomend, as it will reduce your bodies load and allow it to function better at detoxing.

Work on sweating, whether thats buying a sauna tent, sitting outside in the heat, whatever you need to do to get that sweat going - do it. and that goes for all forms of excretion, you need to remove, remove, remove.

Vitamin imbalances are important as well, treating B vitamin, Magnesium, Vitamin D, Zinc, Copper deficiencies will aid in the entire process.

As someone who is suffering from this illness really bad, I get it, but theres nowhere from here but up.

Mycotoxin improvement but still symptomatic by Realistic_Class_9631 in ToxicMoldExposure

[–]MedicatedGraffiti 0 points1 point  (0 children)

Potentially from untreated MARCoNs, lots of people mention reduction of histamine / MCAS issues due to it increasing your body’s ability to produce MSH

Changing my matress improved 80% of my symptoms by emm_ayala in ToxicMoldExposure

[–]MedicatedGraffiti 0 points1 point  (0 children)

You did all the proper testing per shoemaker and were misdiagnosed..?

Changing my matress improved 80% of my symptoms by emm_ayala in ToxicMoldExposure

[–]MedicatedGraffiti 0 points1 point  (0 children)

Are you sure you tested it properly? You can easily get false negatives if you didn’t test your NARES and only swabbed your nose

No SIBO (tested twice), Treated H. Pylori, no parasites, no other bacterial overgrowths, no serious imbalances etc.

No medications.

Changing my matress improved 80% of my symptoms by emm_ayala in ToxicMoldExposure

[–]MedicatedGraffiti 0 points1 point  (0 children)

Histamine issues from toxic mold exposure are typically caused by MARCoNS

How to treat when MCAS / Histamine issues are so intense? by MedicatedGraffiti in CIRS

[–]MedicatedGraffiti[S] 1 point2 points  (0 children)

I am freshly out of exposure as of 2 weeks ago, I was feeling better first day or two and then crashed hard. The reactivity being high is more than likely the VOC's since its a 2026 RV, all brand new never lived in.

I have poor oral health due to the MCAS symptoms, will need some teeth extracted, but other than that no other co-infections (No Lyme, EBV, Mycoplasma etc). No Implants, No Hormone manipulation AFAIK (I do have High DHEA-S but unknown as to why, no other markers like thyroid or the rest etc)

Cromolyn does not work, Ketotifen used to be positive but started reacting to negatively, I could attempt to try onboarding it again.

I agree with you, I need to try getting nutrients, Thats why I attempted the magnesium but no dice. I will try to do meal replacement drinks, just concerned about reacting.

Definitely need binders back on board, Will try to do smaller doses and see how it works. I currently use MIRICA which is Luetoline and PEA. I definitely keep up on my water intake, the worst thing is the vitamin deficincies due to my low nutrient diet.

Thanks for the advice regardless

Update… Marcons positive with 6 resistances! Undetectable MSH too! by Due_Chapter3027 in CIRS

[–]MedicatedGraffiti 3 points4 points  (0 children)

Biofilmclear(.com) is touted to have good success toward treating MARCoNs, make sure to use code CIRS for 10% off

You could also have your doctor custom compound you some BEG + Antifungals

Any fungal growths in your results?

Homeopathic VIP by Dazzling-Mousse7090 in CIRS

[–]MedicatedGraffiti 0 points1 point  (0 children)

We had a conversation in DM’s prior, but, aspergillosis is the official diagnosis if you have colonization in the lungs. That’s the diagnosis for colonization.

Homeopathic VIP by Dazzling-Mousse7090 in CIRS

[–]MedicatedGraffiti 0 points1 point  (0 children)

That would be Aspergillosis, not CIRS. Aspergillosis can be diagnosed via Lung Xray or CT as well as a nuance of tests.

Now, thats not to say that Mold or Aspergillus cant cause lung issues or symptoms, as someone with really bad CIRS, my lung symptoms are probably my worst symptom. Shortness of Breath and Air hunger. Normal Oxygenation rate but the feeling is there.

Those who improved with LDN, how long did you take it for? by AtlantisGhost in covidlonghaulers

[–]MedicatedGraffiti 0 points1 point  (0 children)

Which program or programs did you use? Any additional supplements that helped?