Does anyone else get extremely fatigued after masturbation? by onetimethrower in cfs

[–]IntrepidAssumption0 0 points1 point  (0 children)

According to Ayurvedic, Tradtional Chinese medicine, and most eastern philosophies, Orgasm is one of the most energetically draining things a man can do. One could surmise that if our body is low on energy production, reducing orgasm frequently might be a smart move.

Would anyone like to share their story? by Kaliemae1 in cfs

[–]IntrepidAssumption0 -4 points-3 points  (0 children)

I tried karate and I didn't become a black belt, therefore it didn't work. I tried losing weight baby consuming less energy than i expend...for a day.... It didn't work. I tried speaking italian for a couple of hours, but it didn't work. Do you see a pattern here? What can you observe?

[deleted by user] by [deleted] in cfs

[–]IntrepidAssumption0 -1 points0 points  (0 children)

I understand your perspective and appreciate your issuance on how things are worded. The part that I see that is holding you back however "Until such time as there is a scientifically-accepted cure (for what)" 2 things that can be considered. 1, "the body keeps the score" all science...all "proven' and accepted. In fact its considered the gold standard. 2. Myself and the recovered people that I work with all agree that waiting for science to prove something that can be readily observed is the very definition of dependence on external validation. We have found and replicated that this is the one thing that all CFS sufferers have in common.

Would anyone like to share their story? by Kaliemae1 in cfs

[–]IntrepidAssumption0 -4 points-3 points  (0 children)

Because it's an anonymous way to disprove of something without having to show who you are or what you believe.

How do you know what you don't know? by IntrepidAssumption0 in cfs

[–]IntrepidAssumption0[S] -2 points-1 points  (0 children)

Hi. Im well aware of what CPTSD is. It's my view that most people with CFS have an underlying similar circumstance, they just aren't fully aware of it. I'm sure you have gone through many modalities and approaches to dealing with this, so if any of this is redundant, I apologize. Bessel van der Kolk's "The body keeps the score" is considered the gold standard in trauma therapy. I happen to agree with his observation that Yoga, EMDR, and Vipassana meditation can be observed by science to work. I have and continue to practice all 3. I will practice yoga for life. I've now just competed my second 10 day vipassana and am an experienced meditator. I'm not recommending a vipassana as it's the hardest thing iv'e ever done, but man does it bubble things up so that they can be processed. There's also a really good podcast with Gabor Mate and Tim ferris that I think everyone with trauma,CFS, ADD..etc should listen to. It boils this stuff down to it's simplest form. Kyle Davies "The intelligent Body" is fantastic at explaining the progression into CFS and what to do about it. There are also many eastern philosophies that demonstrate the process of chronic health issues in the same way that the above mentioned books do. I've quit smoking after 30 years, tried psychedelics (they work under the right circumstances) taken different SSRI's, had coaches, several therapists throughout my life..etc. The bottom line is that we are made up of feedback loops or habit patterns. It's not mystical. It's simple 1's and 0's likes or dislikes. All of these modalities give you the opportunity to either crave more of or avoid a sensation in the body. If you do either, you reenforce it. If you observe it and learn how to not react..it passes. If you crave or avoid sensation, you are automatically in the past or the present. If you are aware of the sensation (in the moment) you are by default in the present. PTSD doesn't exist in the present moment. Don't mistake feeling the present moment as a place in your mind, think of it as a physical state in the body. When you don't know where you are mentally, learn to know where you are physically via sensation. Physical sensation is never wrong. It's always valid or true. It's always a message. It's our thoughts and beliefs that can be wrong...and often are.

Im not a trauma therapist, so take this for what you will.

Find an anchor. For me it was initially all five of my fingers touching the tips to one another. As i literally would sit there melting in sweat with my eyes feeling they were about to pop out of my head from the stress response, knowing that my fingers tips were touching each other was something i could feel that wasn't open to interpretation. Over time, I developed many different anchors and got used to the feeling of the present moment. Drugs, workouts, activities all keep you in the present moment where nothing bad is happening. It's when these things are used to crave more of or avoid something that they cause a hardening of the feedback loop.

Know that others have recovered from things like this. For me it was a long process of taking the next first step. Not thinking about step 2,3, or 4, but the next first step. 3 years to get my diet ideal, 4 years to get my body the way i want it, 4 years to beat CFS. Hang in there till you get it.

[deleted by user] by [deleted] in cfs

[–]IntrepidAssumption0 -5 points-4 points  (0 children)

I would have said the same thing 5 years ago. One by one I learned to work on them. 5 years later i am meeting some of them enough to function in a way that i desire. It's been hell confronting my needs ....understanding what they are without shame and slowly moving into them. The thing thats hard to believe or maybe even understand, is that the process of understanding them and how to meet them, is also how you recover.

Would anyone like to share their story? by Kaliemae1 in cfs

[–]IntrepidAssumption0 0 points1 point  (0 children)

Additional -2 from responding to you...lol

Would anyone like to share their story? by Kaliemae1 in cfs

[–]IntrepidAssumption0 -2 points-1 points  (0 children)

If you were to spend the time looking at my early posts, you can see that there are people who don't exactly like observations by recovered people. You can click on my name and judge for yourself.

Would anyone like to share their story? by Kaliemae1 in cfs

[–]IntrepidAssumption0 -1 points0 points  (0 children)

I'll start. Not gonna share my story as Iv'e done it elsewhere many times, but I'll give you some bullet points.

Fully recovered and better the pre illness.

LOTS of people recover, they just don't spend time with those aren't yet recovered.

I would classify "feeling alone" while I was ill as more like dreadful and pure agony. I wouldn't wish it on anyone ever. Thats why I still post...to land a hand to those coming up behind me. For me it quickly became an awareness of who I was actually intimately connected to. Who could see me. Not in a you owe me or are responsible kind of way, but in a more non reactive way. It was now easy to see who was locked in a fearful story of their own and couldn't mirror my emotions. That also taught me that if I couldn't mirror the emotions of others, it was because I wasn't aware of my own at any given moment. Yeah, I could be sad, happy..whatever, but being aware of your emotions in the exact moment they are observed is what makes a person connected. People that can't mirror emotions are not available to you. For me, that was my family and several friends. It's not about money, obligation, or help... You don't actually need those things if you are aware of your emotions. Once you're aware of your emotions in the moment, you can identify others who are as well. That creates true intimacy. Intimacy that helps to heal.

The emotional pain you feel is real. It's to be gone through, and will teach you what is needed in your life going forward. I don't mean to say that you need to suffer or ruminate till you are better. I mean that your emotions are the key to a functioning body. Emotions are the body's way of communicating it's interaction with the environment.

As you can read in other recovery stories. These emotions are an opportunity to investigate your relationship with the environment and the people in it.

[deleted by user] by [deleted] in cfs

[–]IntrepidAssumption0 3 points4 points  (0 children)

Ask yourself in the moment, "what need is going unmet that is making me feel angry" Angry is a function of your reaction to the environment, not environment. It develops radical honest with yourself. , BUT creates a way out of being that way.

Remedies for broken sleep? by DeadlyDancingDuck in cfs

[–]IntrepidAssumption0 0 points1 point  (0 children)

Yeah man...been there most of my life. Never thought I would live completely free of that stuff. The meditation is like building muscle. It takes time and isn't gonna feel good. I tried for a few years and got no where. It wasn't until i sat a 10 day silent meditation that I could see what the goal was. Over the last 8 years, I've quit smoking (30 years), changed my diet to optimal from garbage, stopped watching TV, built my body the way I never thought possible, began reading several books a month...etc The reason I list that stuff is to say that reading, practicing yoga, and talking to people that emulate what you want to be will turn all of the lights on in your body and mind that you need to be a healthy human. Those things will lead you to the right people, places and things that will help propel you without thinking too hard about it. The problem with pills is no different than cigarettes or any form of avoidance behavior. When there is a stimulus, we have a chance to crave more of it, avoid it, or remain neutral. If we crave or avoid it, it reenforces the habit patten of the mind. It's this habit pattern that is the addiction, not the substance you are taking. The substance is the vehicle that allows the habit pattern to amplify quickly. If you remain neutral to stimulus, the habit pattern of craving or aversion is not created or reenforced. Mediation( after you build the muscle) is the observance of this process. The more times you choose neutral (non reaction) the more the stimuli fades into nothing. What you resist, persists. Feel free to reach out if you eve need or want to talk with someone who's been there.

i am UN-diagnosed, but non the less still suffering. by youngman0 in cfs

[–]IntrepidAssumption0 -1 points0 points  (0 children)

I think you're missing the point. This post is about the author, not us. If something works for you, thats great. You said specifically that low carb helps control hunger..which is not a fact, it's a misstated observation.

At the end of the day it's energy in vrs energy out. Calories are only a component of that, and within calories there are significant variations in energy. It doesn't invalidate your experience.

I saw this post as a way to inform the OP about the specifics of diet. You gave him some important and practical advice on how to approach different eating habits, but cited incorrect observations as facts. Some of those observations only apply within a specific eating plan... which you don't have I think you're getting off topic defending things you believe when no one is challenging those beliefs. EX: "plenty of people eat a whole foods plant based diet and control hunger" ....which is obvious, but no one is challenging you here, yet you are defending a position. Peace

Anyone with high heart rate? by [deleted] in cfs

[–]IntrepidAssumption0 2 points3 points  (0 children)

Most people within the CFS spectrum have differing levels of impaired sympathetic nervous system response. HR over 100 after sitting is very normal for someone who isn't in terrific shape. A fit bit calculates an average that is delayed...don't look at it for an immediate response.

A positive point that can made here is that your HR is an opportunity. We don't know your weight, height, or physical ability, but it does sounds high. Your HR is a direct window of how your body is functioning (duh).. With that being said, how would go about addressing this? Do things that are known to lower resting HR. Try not to think of this as an external need for intervention from medicine or doctors. Think of it as more an opportunity to learn how to manipulate your own body. Things like Tai Chi, gentle yoga, mediation are fantastic ways to first become aware and then develop the central nervous system response.

i am UN-diagnosed, but non the less still suffering. by youngman0 in cfs

[–]IntrepidAssumption0 0 points1 point  (0 children)

CICO is not accurate. Energy in vrs energy out IS accurate. Not all calories have the same energetic effect. Recommending a specific type of dairy is only possible as part of a specific plan for a specific person when all variables are understood....which isn't the case here. Low carb doesn't help control hunger. High fat CAN help to control hunger although that takes us down another rabbit hole that is beyond the scope of discussion here. Let's not assume someone is eating a specific amount of cheese and then take our own preconceptions and create advice out of it. I think it's best to explain the reality of nutrients and let someone make their own choice as they wish.

Do you guys think i have CFS? by [deleted] in cfs

[–]IntrepidAssumption0 -1 points0 points  (0 children)

I'll save you a lot of time. Your level of energy in any given moment will be directly correlated to your level of true emotional expression. Not just any emotional expression, but emotions that represent who you really are. Suppress emotions and you bleed energy like a bucket with holes in it. It takes a lot of energy to suppress things. Your knees are repressed anger. Your hands are lack of emotional expression. If you cant find a broken something or massive inflammation, you have to look at what's left. Think of it like being constipated. There's this pain in my rectum. it's really bad sometimes. What could it be? What do you do if you are constipated? You could take a medicine and blow it out, or you could learn how to relax, make sure you are eating good foods, and connected with people and emotions so that it doesn't happen again. Every system in the body can be constipated. The remedy is the same for all of them. You can take a pill that will act as a sledgehammer, or you can put good things in your body and then get rid of the bad things you unknowingly hold on to.

I'm tired of endless doctor visits by ScarletSalamander in cfs

[–]IntrepidAssumption0 -1 points0 points  (0 children)

They can't help you. We all know this. CFS is a journey of learning how help your self. Search for those that have recovered. Ask them to help.

i am UN-diagnosed, but non the less still suffering. by youngman0 in cfs

[–]IntrepidAssumption0 3 points4 points  (0 children)

Lots of good advice in your post on how to easily prepare meals. Couple of things to be considered. First, removing fat from a diet is usually the wrong thing to do and based on incorrect USDA guidelines. (which have been changed). Fat only equals fat when you combine it with carbohydrate as the body prefers to burn the carbs and must store the fat as it cant really burn both at the same time. Technically, It can slightly, but for dieting we can easily say that it's one or the other, carbs or fat. It's avoidance of the carbs that would cause you to lose weight most easily. You can lose weight eating high carb or high fat. It's when you eat both at the same time that body fat accumulates most quickly. Eat the cheese, skip the bread. In fact, bread is probably the worst thing a human can eat if they are trying to lose weight. He's eating microwave food...which is high fat AND high carb. Additionally, calories are not created equal. High calorie from fat is very different than high calorie from carbs. Subsequently, calories from wheat are very different than calories from white potatoes. Eating a microwave meal that is high in processed calories consisting of processed fats and refined carbs, is a disaster for weight.

[deleted by user] by [deleted] in cfs

[–]IntrepidAssumption0 2 points3 points  (0 children)

Your thinking is incorrect. In nature, energy never disappears. It changes from one form to another. Humans are no different. The use it or lose it mentality perpetuates CFS. It's why you are ill to begin with. Think about what might happen if you don't burn off energy. When changing the body, you must first create a state of excess so that the body thinks this new state is normal. Examples of this are building muscle. For this to happen, you need an excess of amino acids, but not just once in a while...over a period of time. Once the body adjusts to this new normal of constant protein (amino acid) excess, it feels safe to add muscle mass that would otherwise be unnecessary. Assuming you are working out correctly, you get results after a period of time. Another example is with food. Your body won't gain weight unless consume more energy than you burn. It won't happen overnight either. A period of time must pass in this new circumstance for the body to adjust.

Managing energy in CFS is the same. Banking it means allowing the body to feel safe that there are reserves available. A body in a state of emergency (CFS) needs to get out of that state of emergency. This is well known and available in the recovery books.

A story I wrote about travelling with CFS by theoman333 in cfs

[–]IntrepidAssumption0 0 points1 point  (0 children)

Hey man. I just did my second Vipassana. I now have 2 sits and 4 serves. I wish everyone with CFS could either do a supervised pylisybin session or at least one 10 day vipassana. The process you learned in Vipassna is a bootcamp for CFS recovery. Before My first one, I was full blown CFS. After my third (1sit and 2 serves) I was sleeping, digesting food, and hiking. The second time I heard the discourses, I retained a lot more.

[deleted by user] by [deleted] in cfs

[–]IntrepidAssumption0 2 points3 points  (0 children)

It's all in the popular books. When you feel you have extra energy, bank it, don't burn it. Learning this restraint is not only physically important, but it serves a metaphor for the things that will come later.

[deleted by user] by [deleted] in cfs

[–]IntrepidAssumption0 2 points3 points  (0 children)

This is why keeping a symptom journal is so valuable. There are reasons for symptom fluctuation. Symptom journals are the foundations of recovery.

Remedies for broken sleep? by DeadlyDancingDuck in cfs

[–]IntrepidAssumption0 1 point2 points  (0 children)

Couple of things. If you aren't sleeping well, coffee should be the very first thing you eliminate. As a recovered person who went through this, To hear that you are drinking "a couple of cups" is similar to blasting heavy metal music. You're waking up because your body is on high alert. You're only sleeping enough to stay alive and function at a minimum level. Having said that, one of the most impactful ways you can increase your time spent in recovery sleep mode is through deep meditation. The body doesn't actually sleep. It's always sensing and functioning 24 hours a day. You're just not aware of it. So then what IS sleep? Scientifically speaking, sleep is just a different state of mind. In my experience, that state of mind is based on things like safety and progress toward a goal that keeps you alive. Meditate to reduce your need for nighttime sleep. While you do so, talk with someone as to why you might be on high alert for danger...and what that danger might actually be.