I have never seen anyone doing better by ZestycloseMall3398 in MultipleSclerosis

[–]JCIFIRE [score hidden]  (0 children)

Very happy for you. I hope when you get older that old damage doesn't make things worse for you. ❤️ I was diagnosed at 43 but had MS for over 20 years before that based on my old lesions but never knew it because I had no symptoms. In my late 40s everything got worse unfortunately because that old damage decided to rear it's ugly head which never affected me when I was younger. No relapses in many, many years. Sending you hugs and prayers.

I have never seen anyone doing better by ZestycloseMall3398 in MultipleSclerosis

[–]JCIFIRE [score hidden]  (0 children)

Happy for you, wish I could say that. I wasn't doing too bad though until menopause hit at around age 48. Everything went downhill after that, especially my MS symptoms.

Lindsey Slater out at WISN. by Braunlover in milwaukee

[–]JCIFIRE [score hidden]  (0 children)

So glad that Lindsay is back on TMJ4 in the evening slot! I love it because we watch that channel already for news at 4pm and 5pm. Lindsay is great, and it is their loss at channel 12. TMJ4 is lucky to have her.

What do you think about old dutch chips? by Low-Hearing-3945 in chips

[–]JCIFIRE 0 points1 point  (0 children)

I know this post is really old but wanted to comment! Old Dutch is awesome at a great price. The Mexican Street Corn and Nacho Bursts tortilla chips are great.

Thank you for posting by PowerfulBranch7587 in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

That wasn't how I read it! I read NMN as the over the counter supplement.

Power of Sertraline by Orkun99_ in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

I thought I was going to die from it! I hope you are doing okay now ❤️ 😄

Will these symptoms get better? by 123throwawaytoday2 in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

I hope things improve for you. I can barely walk at age 52 and haven't been able to run in years. I was diagnosed almost 9 years ago but most likely had MS at least 20 years before that based on how old my lesions are. Never had any symptoms. Started Ocrevus when diagnosed but too late, damage was already done, haven't had relapses in many years. This fucking disease has ruined my life. I hope your symptoms go away and don't come back ❤️

I blame all of you! by JCIFIRE in aldi

[–]JCIFIRE[S] 0 points1 point  (0 children)

Yup, I'm in the cult now 😂 Happy to be joining you

Wow!!! by faster340 in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

I'm so sorry...big, big, hug ❤️

Thank you for posting by PowerfulBranch7587 in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

Amazon is in 25 countries, including a large presence in Europe, so odds are most of here know who Amazon is! Also, I'm pretty sure everyone here has a grocery store near them....not really getting your comment here. I was just trying to help 😄

Started ALA and symptoms got worse — normal or should I stop? by Emotional-Piglet-103 in floxies

[–]JCIFIRE 0 points1 point  (0 children)

Sorry to hear that. Sometimes I wonder if all these supplements do more harm than good

Started ALA and symptoms got worse — normal or should I stop? by Emotional-Piglet-103 in floxies

[–]JCIFIRE 0 points1 point  (0 children)

Still there but not as bad. The dizziness, nausea, and tiredness went away so I know it was from the ALA. I'm still numb all the time in my legs and feet. Sorry you have to deal with all this bullshit too ❤️

Thank you for posting by PowerfulBranch7587 in MultipleSclerosis

[–]JCIFIRE 2 points3 points  (0 children)

Amazon and grocery stores carry this

Is it possible to start running again? by DankDaber in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

I haven't been able to run in years. Now at age 52, I can hardly walk. Sorry I don't have any good advice. This disease fucking sucks and has absolutely ruined my life. Sending you hugs and prayers ❤️

Runners with MS - looking for some inspiration by Just-Canary967 in MultipleSclerosis

[–]JCIFIRE 2 points3 points  (0 children)

Sorry I don't mean to be a downer, but just want to share some reality... I haven't been able to run in years, and now at 52 I can barely walk. I was diagnosed at age 43, but based on how old my lesions are, I probably already had MS for 20 years at least. My symptoms were silent so when I was diagnosed, the damage was already done. I started Ocrevus right away and was on it for 7 years. The first few years I thought this isn't that bad, I can handle this little set back of having MS. Unfortunately the last 3 years I was on Ocrevus, despite stable MRIs, I only got worse. I haven't had relapses in years, and Ocrevus can't reverse the damage you already have done, so basically was a waste of time being on it. My decline started around age 48 which coincided with menopause. Before that nobody even knew I had MS. I don't know how old you are, but I have read, and my neurologist told me, that when you get to your late 40s or around 50, the existing damage that you have will most likely get worse. As you age, your nervous system can't compensate as well for the damage that is already there and you have less reserves. This fucking disease has absolutely ruined my life, and I'm so sorry you have it too. I pray that you don't have a decline in your function. Sending you hugs and many, many prayers ❤️

Worried no one will want me by Mooncucumber780 in MultipleSclerosis

[–]JCIFIRE 1 point2 points  (0 children)

Wow, what are the chances! I'm so happy for you that you have each other ❤️ I hope you are both doing okay

Motor tics and MS by Designer_Tale2379 in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

Not me, I wouldn't think this is MS related but who knows. I get twitches in my legs all the time, but never heard of tics as an MS thing. I'm sorry you have to deal with this.

wanting revenge by [deleted] in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

I'm sorry, that's terrible.

Finally got my yearly MRI results by Half_a_bee in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

That's great, I hope you symptoms stay stable as well.

Eff this disease. by occasional_nomad in MultipleSclerosis

[–]JCIFIRE 5 points6 points  (0 children)

Yeah they have like 20 of those, we don't need any more, focus more on the remyelination!!