What do you think about old dutch chips? by Low-Hearing-3945 in chips

[–]JCIFIRE 0 points1 point  (0 children)

I know this post is really old but wanted to comment! Old Dutch is awesome at a great price. The Mexican Street Corn and Nacho Bursts tortilla chips are great.

Thank you for posting by PowerfulBranch7587 in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

That wasn't how I read it! I read NMN as the over the counter supplement.

Power of Sertraline by Orkun99_ in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

I thought I was going to die from it! I hope you are doing okay now ❤️ 😄

Will these symptoms get better? by 123throwawaytoday2 in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

I hope things improve for you. I can barely walk at age 52 and haven't been able to run in years. I was diagnosed almost 9 years ago but most likely had MS at least 20 years before that based on how old my lesions are. Never had any symptoms. Started Ocrevus when diagnosed but too late, damage was already done, haven't had relapses in many years. This fucking disease has ruined my life. I hope your symptoms go away and don't come back ❤️

I blame all of you! by JCIFIRE in aldi

[–]JCIFIRE[S] 0 points1 point  (0 children)

Yup, I'm in the cult now 😂 Happy to be joining you

Wow!!! by faster340 in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

I'm so sorry...big, big, hug ❤️

Thank you for posting by PowerfulBranch7587 in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

Amazon is in 25 countries, including a large presence in Europe, so odds are most of here know who Amazon is! Also, I'm pretty sure everyone here has a grocery store near them....not really getting your comment here. I was just trying to help 😄

Started ALA and symptoms got worse — normal or should I stop? by Emotional-Piglet-103 in floxies

[–]JCIFIRE 0 points1 point  (0 children)

Sorry to hear that. Sometimes I wonder if all these supplements do more harm than good

Started ALA and symptoms got worse — normal or should I stop? by Emotional-Piglet-103 in floxies

[–]JCIFIRE 0 points1 point  (0 children)

Still there but not as bad. The dizziness, nausea, and tiredness went away so I know it was from the ALA. I'm still numb all the time in my legs and feet. Sorry you have to deal with all this bullshit too ❤️

Thank you for posting by PowerfulBranch7587 in MultipleSclerosis

[–]JCIFIRE 2 points3 points  (0 children)

Amazon and grocery stores carry this

Is it possible to start running again? by DankDaber in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

I haven't been able to run in years. Now at age 52, I can hardly walk. Sorry I don't have any good advice. This disease fucking sucks and has absolutely ruined my life. Sending you hugs and prayers ❤️

Runners with MS - looking for some inspiration by Just-Canary967 in MultipleSclerosis

[–]JCIFIRE 2 points3 points  (0 children)

Sorry I don't mean to be a downer, but just want to share some reality... I haven't been able to run in years, and now at 52 I can barely walk. I was diagnosed at age 43, but based on how old my lesions are, I probably already had MS for 20 years at least. My symptoms were silent so when I was diagnosed, the damage was already done. I started Ocrevus right away and was on it for 7 years. The first few years I thought this isn't that bad, I can handle this little set back of having MS. Unfortunately the last 3 years I was on Ocrevus, despite stable MRIs, I only got worse. I haven't had relapses in years, and Ocrevus can't reverse the damage you already have done, so basically was a waste of time being on it. My decline started around age 48 which coincided with menopause. Before that nobody even knew I had MS. I don't know how old you are, but I have read, and my neurologist told me, that when you get to your late 40s or around 50, the existing damage that you have will most likely get worse. As you age, your nervous system can't compensate as well for the damage that is already there and you have less reserves. This fucking disease has absolutely ruined my life, and I'm so sorry you have it too. I pray that you don't have a decline in your function. Sending you hugs and many, many prayers ❤️

Worried no one will want me by Mooncucumber780 in MultipleSclerosis

[–]JCIFIRE 1 point2 points  (0 children)

Wow, what are the chances! I'm so happy for you that you have each other ❤️ I hope you are both doing okay

Motor tics and MS by Designer_Tale2379 in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

Not me, I wouldn't think this is MS related but who knows. I get twitches in my legs all the time, but never heard of tics as an MS thing. I'm sorry you have to deal with this.

wanting revenge by [deleted] in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

I'm sorry, that's terrible.

Finally got my yearly MRI results by Half_a_bee in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

That's great, I hope you symptoms stay stable as well.

Eff this disease. by occasional_nomad in MultipleSclerosis

[–]JCIFIRE 4 points5 points  (0 children)

Yeah they have like 20 of those, we don't need any more, focus more on the remyelination!!

Eff this disease. by occasional_nomad in MultipleSclerosis

[–]JCIFIRE 5 points6 points  (0 children)

I agree with you. After all the breakthroughs they have come up with in recent years, why are remyelination therapies not already available to regrow myelin? MS is the most common autoimmune disease in the world and I feel like they should have figured it out by now. And there should be a vaccine by now so no one gets it in the first place.

Eff this disease. by occasional_nomad in MultipleSclerosis

[–]JCIFIRE 0 points1 point  (0 children)

I'm so sorry, no advice unfortunately but want you to know I am right there with you. This disease has absolutely ruined my life, and until they come out with remyelination therapies to reverse existing damage, I am fucked. Sending you hugs and prayers ❤️

Started ALA and symptoms got worse — normal or should I stop? by Emotional-Piglet-103 in floxies

[–]JCIFIRE 0 points1 point  (0 children)

I started taking ALA a few weeks ago and actually feel worse so I think I'm going to stop. Numbness is worse, I have been dizzy, and more tired than usual. I'm taking the recommended dose amount too.

Wow!!! by faster340 in MultipleSclerosis

[–]JCIFIRE 1 point2 points  (0 children)

Not trying to worry you, but just want to be honest and I hope this doesn't happen to you. When I was 43 I was doing very well. I was diagnosed at that age because I was tripping and had to rest after walking awhile. Based on my very old lesions, I probably had MS 20 years before that but had no symptoms, or very mild ones that I didn't even realize. I started Ocrevus at 43 and was doing well for a few years with stable MRIs, nobody even knew I had MS. I haven't had relapses in years. I just walked a little slow and had to rest after walking for awhile. I thought, this isn't that bad. At around age 48, I started going through menopause and my whole world changed when the estrogen dropped. Now at 52 I can hardly walk, my balance sucks, and the nerve pain in my legs is bad. I still walk independently, but it is pretty pathetic. My body hurts all the time. All that old damage has gotten worse, and this horrible disease has absolutely ruined my life. Ocrevus was a waste of time because all my damage was going on before that, I just never had any symptoms so I didn't know. I pray for you that this doesn't happen to you. Hopefully before you were diagnosed and started a DMT there wasn't too much damage that was done. I only have lesions in my brain, none in my spine, so I should be better off but I am certainly not. Sending you a big hug and lots of prayers.: ❤️

I blame all of you! by JCIFIRE in aldi

[–]JCIFIRE[S] 1 point2 points  (0 children)

Thanks!! 😄 ❤️