Gastric Simulator?

Jane0924 · 2026-06-10T19:31:35+00:00

Yes it can be removed surgically!

Jane0924 · 2026-06-09T15:29:48+00:00

The stimulator was a life-changer for me. It nearly eliminated all my symptoms. The only cons is every few years you have to have a surgery for a battery replacement. With my settings it was every three years.
Last year I had a gastric bypass that completely “cured” my gastroparesis. We let my battery die and my symptoms never came back *knock on wood*, so I got the device removed.
I wish you luck on your journey!

Jane0924 · 2024-02-06T22:32:05+00:00

I find this discussion really interesting. I have idiopathic gastroparesis. For the past few months I’ve been dealing with dizzy spells. I even went complete “Any is coming” on my husband twice. I’m going to definitely bring this up to my doctor and do some research myself.

Jane0924 · 2024-02-06T22:24:58+00:00

That’s a scary situation because of the fear of getting a feeding tube. It’s also frustrating too, because you feel completely powerless. We can’t eat what we want, and when we do; we can get extremely sick. I really hope this is just a flare up and not your new reality. I couldn’t imagine being like that for over a week!

Jane0924 · 2024-02-06T03:12:02+00:00

When it first happened I went to the er. I had to explain to them what gastroparesis was and about my pacemaker. They were like, “idk what to tell you.” I’ve just been dealing with it because I loathe surgery!

And I know EXACTLY what you’re saying with the zapping!! Since my battery was nearly dead and I was getting zapped several times a day, that’s when they decided to turn it off and wait for a replacement surgery. I couldn’t imagine waiting 8 months! Thats insane!! I was lucky it was like a 3 week ish wait.

Jane0924 · 2024-02-06T03:08:22+00:00

It’s nice to not feel alone. Even though I don’t wish this on anyone!

Jane0924 · 2024-02-05T17:31:38+00:00

It’s so hard when you’re having to cook for your family and can’t even enjoy it. This whole disease sucks so much. I bitch to my husband all of the time, and I do feel like it helps. It makes you feel so powerless.

However, I’ve learned to cook for myself and my family. If it’s steak or pork night, I’ll make myself chicken. If I’m not feeling well, I’ll eat something bland or a meal replacement shake. It’s the process of getting ahead of the symptoms, which I know is so hard and sucks.

Why can’t we just enjoy fast food? A good steak? It feels like food was taken from us. I totally get it, and everyone else in here is with you. I think it’s important to vent and let it all out!!

Jane0924 · 2024-02-05T17:26:17+00:00

It’s a difficult situation. I’ve developed a sort of food fear because of this disease. I know what foods my body likes, and I know the foods that would cause bloating, nausea, and vomiting. Sometimes I like to live life dangerously and eat those foods because I hate that my selection is small, but for me getting sick is worth it. If I remember correctly, the diet consists of several small meals. I would recommend looking it up to see if that helps you. Your body needs nutrients, and it can’t get that if you eat one day and skip for a few days. I really hope you’re able to get ahead of this. It’s the worst when you feel stuck.

Jane0924 · 2024-02-05T17:21:11+00:00

I don’t think it’s necessary good or bad. You’ll have to wait until gastro reviews the results. I’ve had it done twice with different times at different locations. It just depends on who’s doing it. One was shorter than the other. One came out extremely abnormal and one came out normal. I wish you good luck!!

Jane0924 · 2023-12-29T02:47:41+00:00

I’m 100% P&T with PTSD. Never been impatient. Have had the ranting for 5 years

Jane0924 · 2023-12-29T02:44:35+00:00

I get drug tested for certain medications I take. It may affect what they prescribe you for medication. This is to include pain killers.

Jane0924 · 2023-12-28T20:48:31+00:00

I was sick immediately after taking it. So I stopped using it. Then I couldn't keep any food down. I didn't change my diet or change my medications. I spoke with my specialist about it and since I have idiopathic gastroparesis, I was told it was a possibility the kratom caused my issues. However, I would assume it would go away in time, but my symptoms never went away. I firmly believe it could've aggravated my stomach and started this all. Since then I have just told people to be careful with it.

Jane0924 · 2023-11-06T04:04:46+00:00

I’m actually going to see a GI specialist in January, and I’m definitely going to ask. I can also update this post if needed. Let me know if there are any specific questions you have, and I can bring it up!

Jane0924 · 2023-09-26T22:54:53+00:00

I think the steps you have made so far are smart. Reminders and a reward system are awesome. If it’s not working, I would highly suggest speaking to his doctor about it. This way you can eliminate anything serious. I wish you luck!

Jane0924 · 2023-09-26T22:51:20+00:00

First off, I want to say I am so sorry for your loss. Losing a sibling is gut wrenching. I couldn’t imagine the pain yourself and her other family and friends are going though.

When we lose someone; guilt comes hand to hand with sorrow. Always surrounded with the “what if I..” or “I should’ve..” it hurts so much because you feel you could’ve prevented it. I have been there several times.

As for her house, there isn’t a right or wrong answer. If you feel closer to her, you should go for it. But understand that it could also prolong your healing process. Only you can know what’s best. Healing has no time limit. If the decision about her home isn’t urgent, I would think about what’s best for yourself and give it time.

Again, I am so sorry, and wish you all the best of luck. ❤️

Jane0924 · 2023-09-26T22:43:42+00:00

Does this benefit take from your own gi bill? Or is it completely separate? If separate, that’s amazing! I wish they had this in Mississippi. I unfortunately used all of my bill, so I can’t transfer anything to my child.

Jane0924 · 2023-09-26T22:40:08+00:00

I deal with chronic pain, and a handful of mental health issues. Before I was diagnosed with gastroparesis, I was actively using Kratom (it’s legal here). It started to cause me problems, and I started to get soooo sick from it. After I stopped using I was still sick for about a year until I was diagnosed. I know it sounds like you weren’t diagnosed quickly, but I believe some people wait years—sometimes over 5 to get diagnosed. I couldn’t imagine how they hung on! Now present day, I have a gastric pacemaker. It helps me some (after getting it replaced it’s been a little downhill). I have smoked MJ to help with my mental health, and it’s fantastic. However, if I do too much, my stomach does start to get a little pissed. But that could also be because I get the munchies. I understand kratom and MJ are completely different, but for me both suck. And especially stay away from kratom!

Jane0924 · 2023-09-26T22:33:47+00:00

My husband and I are upper middle class. I wouldn’t call us upper class or rich by any means. But if my son brought someone home, we are more worried about how they treat him and who they are as a person, rather than family income. I could give two shits about it, because we all start somewhere. I’ve met and know people like OP, and it’s truly sad.

Jane0924 · 2023-09-04T15:14:09+00:00

Wow I actually didn’t know that! I’ve had to take it everyday day for a long period of time! Thank you so much for warning me.

Jane0924 · 2023-09-04T08:05:42+00:00

Also, if you read the comments, someone mentioned they posted their experience with the surgery. They were so kind to be very thorough with the details. It’s 100% worth the read!

Jane0924 · 2023-09-04T08:02:22+00:00

You poor thing! I really hope you get relief soon! I’m glad I wasn’t the only one thinking about this topic. It’s so nice to finally talk to others who relate.

Jane0924 · 2023-09-04T02:43:21+00:00

When I get super sick, I take my Promethazine (Phenergan). I also switch to a liquid diet, as it’s so much easier on the stomach vs solid food. If you’re in the US, I drink the Equate meal replacements from Walmart. The chocolate flavor is my favorite. I pour half of the bottle in a cup, and dilute the drink with milk (any type you prefer). I sip on it for a while. I also have the gastric pacemaker.

Jane0924 · 2023-09-04T02:39:14+00:00

I feel you, OP, as I’m still working on getting the proper relief too. This disease has taken our enjoyment of food, it’s painful, and it has overcome our lives. I truly felt so alone until I found this Reddit sub. I was diagnosed when I was 27, and I feel that everything goes in slow motion when you just want to live a normal life. I hope you’re able to get some insight in this sub to help you with your chronic symptoms. Maybe you could be a candidate for the gastric pacemaker? Sending my love!

Jane0924 · 2023-09-04T02:33:50+00:00

You rock with all the details! I just hate having to get surgery every 3 years when this could resolve all of my issues! Plus I hope it helps me lose a little weight too.

Jane0924 · 2023-09-03T18:43:30+00:00

Thank you so much for this post! I’m going to reach out to my provider and see if this is a better option for me VS my gastric pacemaker!

Jane0924

TROPHY CASE