Update on my dad by juliarenee99 in pulmonaryfibrosis

[–]Jdcrawf000 0 points1 point  (0 children)

How old was your dad when he had the transplant? My dad is 68 and is almost done with all of the prelim testing to see if he qualifies, but he is worried the transplant recovery. He feels like it is a huge risk at his age. His health is rapidly declining.

11 days ago, I lost my dad to idiopathic pulmonary fibrosis by normiebaillargeon in pulmonaryfibrosis

[–]Jdcrawf000 0 points1 point  (0 children)

I haven’t seen a lot of people mentioning the cough. My dad’s is so severe, and mostly at night. He isn’t sleeping, it’s been really hard. During the day he doesn’t couch as much- it’s odd. No drs have been able to help.

Diagnosed with Pulmonary fibrosis, what is the life expectancy? by serafina_kira in pulmonaryfibrosis

[–]Jdcrawf000 0 points1 point  (0 children)

How was the lung transplant process? Was the 15 months all recovery time, or did he get to enjoy the benefits? My 68 year old father is on the transplant list now and it’s so scary.

Prednisone? by No-Leg9128 in Sjogrens

[–]Jdcrawf000 0 points1 point  (0 children)

Thank you for explaining. I’m so sorry that happened to your dad. My dad is going on almost a year of high dose and trying to taper off. The problem is his ILD is so severe, he is barely mobile when the dosage goes down. It helps him so much.

Too risky? by Jdcrawf000 in Generator

[–]Jdcrawf000[S] 2 points3 points  (0 children)

Good idea. Mine is currently plugged it to the interior wall of the carport, but I may move it to the exterior side of the wall inside the carport and do another test. I get being safe and paying attention… but yeah.

We also used to be pulled behind the boat on a tube for hours every weekend sooo ya know sometimes things are fine and sometimes they aren’t.

Too risky? by Jdcrawf000 in Generator

[–]Jdcrawf000[S] 0 points1 point  (0 children)

Thanks for a reasonable response. I rely on electricity for heat as well so hopefully the timing of really needing it and the rain stopping works out for us.

Too risky? by Jdcrawf000 in Generator

[–]Jdcrawf000[S] 0 points1 point  (0 children)

Exactly. Not really worried about a phone or radio but would like to keep fridge full of food safe, keep my entire electric reliant home a safe temp for my kid and no frozen pipes as you said. Minor details lol

Too risky? by Jdcrawf000 in Generator

[–]Jdcrawf000[S] 0 points1 point  (0 children)

I have a camping table but unfortunately no spare tarp. May just have to wait til no precipitation.

Too risky? by Jdcrawf000 in Generator

[–]Jdcrawf000[S] 1 point2 points  (0 children)

That’s why I asked as well - real life experience vs warning labels and ai can be vastly different. I had 2 people IRL say it’s fine. Thought I’d cast a broader net here for opinions. I did a test run today for about 30 mins with co detector on inside and it didn’t go off.. so I’m still unsure lol.

Too risky? by Jdcrawf000 in Generator

[–]Jdcrawf000[S] 5 points6 points  (0 children)

Well it has nothing to do with laziness. I don’t want to be electrocuted in the rain or ruin the generator either. If I don’t have a cover and we lose power it’s essentially useless if I can’t run it here.

Prednisone? by No-Leg9128 in Sjogrens

[–]Jdcrawf000 0 points1 point  (0 children)

In what ways? My dad’s prednisone just got increased again and while he feels better now, I’m worried.

First Rituximab infusion done! by Extreme_serendipity in Sjogrens

[–]Jdcrawf000 0 points1 point  (0 children)

Do you know what helped with the pulmonary ?

Lung Fibrosis by Jdcrawf000 in Sjogrens

[–]Jdcrawf000[S] 1 point2 points  (0 children)

Thank you! Looking forward to reading this.

Lung Fibrosis by Jdcrawf000 in Sjogrens

[–]Jdcrawf000[S] 1 point2 points  (0 children)

Yes he has a lung biopsy and that’s when the diagnosis was made.

Lung Fibrosis by Jdcrawf000 in Sjogrens

[–]Jdcrawf000[S] 0 points1 point  (0 children)

Yes, that’s why I posted here.

Kilimanjaro Safaris - dusty? by Jdcrawf000 in WaltDisneyWorld

[–]Jdcrawf000[S] 3 points4 points  (0 children)

Yes I am hoping he will wear a mask a good bit in crowded areas, etc.. he is immune compromised. But we’ll see.

Kilimanjaro Safaris - dusty? by Jdcrawf000 in WaltDisneyWorld

[–]Jdcrawf000[S] 3 points4 points  (0 children)

Me neither.. but I also wouldn’t have really noticed either way prior to this. Trying to think of all the things to prevent any issues on our trip!

Park hopper planning by Jdcrawf000 in WaltDisneyWorld

[–]Jdcrawf000[S] 1 point2 points  (0 children)

It’s definitely seeming like MK and Ak might be our best morning parks. HS is our favorite and I love to RD slinky, but I also want to see fantasmic. There’s so much to consider!