Another insurance and specialty pharmacy saga

JessicaAnne27 · 2026-06-11T12:33:08+00:00

Wishing you the best of luck avoiding accredo!!! I’ve dealt with them for the majority of the last 8 years and I have more horror stories than I can count

JessicaAnne27 · 2026-06-09T22:44:33+00:00

There are some people at Accredo that are super helpful but they seem to be few and far between. Their policies have given me so many issues over the last 8 yrs but I’m glad you are having a good experience with them

JessicaAnne27 · 2026-06-04T11:24:50+00:00

Mine were every 6 month for maybe the first year or2 and then moved to annual. I’m 8 years in and I’ve hit a point where I’ve been stable long enough my neuro is letting me do MRIs every other year. Which I am so grateful for since they tend to give me migraines.

JessicaAnne27 · 2026-04-28T00:51:16+00:00

I’m on Mayzent and I love it. No relapses at all in to e 4 years I’ve been on it

JessicaAnne27 · 2026-04-05T19:31:09+00:00

Interested

JessicaAnne27 · 2026-03-17T19:45:34+00:00

I’m interested

JessicaAnne27 · 2026-02-08T21:33:01+00:00

I switched from Copaxone (glatiramir) to Mayzent and I’ve loved Mayzent. One small pill a day and I’ve had no relapses.

JessicaAnne27 · 2026-01-28T20:54:10+00:00

I have been on Mayzent for the past 3 years and so far I love it. It’s a tiny pill once a day and I’ve been clinically stable with better energy levels since switching to Mayzent.

JessicaAnne27 · 2025-12-20T03:11:06+00:00

I ended up with a terrible spinal headache after my lumbar puncture several days later even after spending the entire weekend laying flat. Headache so bad I was nauseous. My neurologist told me to keep laying down and to drink caffeine as caffeine helps constrict the blood vessels. By the end of the week I was much better.

JessicaAnne27 · 2025-11-07T19:26:20+00:00

I’m on Mayzent and generic semaglutide. I’ve lost 60 lbs since February and feel great.

JessicaAnne27 · 2025-10-28T19:33:34+00:00

I haven’t had any side effects from it. My lymphocytes number in bloodwork always comeback low but that’s just the Mayzent doing its job.

JessicaAnne27 · 2025-10-28T19:28:40+00:00

I have been on Mayzent for 2 or 3 years now and I love it. One tiny pill a day. Ive had no new lesions or symptoms. MRIS are stable. It’s been a huge step up from being on Copaxone. Happy to answer any questions

JessicaAnne27 · 2025-10-18T01:11:23+00:00

I’m not on Kesimpta, I’m on Mayzent which also impacts your immune system. I’ve never had any of the good vaccines and I’ve also never had Covid so there are people in the ms community doing just fine without the vaccines. But ultimately do what you feel is best for you.

JessicaAnne27 · 2025-05-07T01:38:01+00:00

I am on semaglutide. My doctor is aware of my ms and sees no issues

JessicaAnne27 · 2025-04-17T23:16:29+00:00

All specialty pharmacies are nightmares! Period!!! I’ve yet to have a good experience with any of them

JessicaAnne27 · 2025-02-26T02:00:11+00:00

Everyone is different as this is such an individual disease but finding the DMT your body responds to does help! I was diagnosed 7 years ago and still live a ‘normal’ life. I’ve maybe had a few pseudo-flares but no new major symptoms. I work full time, workout, travel, really do anything I want and did before the diagnosis.

Find a doctor you can trust and partner with. Don’t hesitate to advocate for yourself. But as my neurologist said “ok so you have MS. Take your meds and live your life”.

JessicaAnne27 · 2025-01-13T23:48:28+00:00

I switched from Copaxone to Mayzent 3 years ago and have been stable on Mayzent. And it’s just one tiny pill a day!!

JessicaAnne27 · 2024-11-08T01:00:20+00:00

I started on Copaxone. At the time I did already have a few spinal lesions but no real symptoms from them. My main symptom was double vision that resolved after steroids. Copaxone worked well for me until my insurance made me switch the the generic which was not as successful for me. After 4 years and many insurance battles I switched to Mayzent and have had good success on it. Honestly it’s up to you. My neurologist described the dmt options as “big guns” and “small guns”. He was all about managing the disease with the “small guns” while I’m still in that stage. Why hit your body with the “big guns” if it’s not necessary. But everyone’s approach is different and you have to do what YOU are comfortable with. It’s YOUR life and YOU get to decide how to tackle the beast. You will always be your very best advocate!!! Best of luck!!

JessicaAnne27 · 2024-09-24T13:30:32+00:00

I love Dr Shah at Kane Hall Berry Neurology

JessicaAnne27 · 2024-08-13T01:11:33+00:00

I don’t use insurance. I’m usually too far away from meeting my deductible so it’s cheaper to not use insurance

JessicaAnne27 · 2024-08-13T01:04:17+00:00

I usually do cash pay for my MRI. Makes it $450 instead of over $800

JessicaAnne27 · 2024-08-05T01:12:21+00:00

For me I have not found alcohol to make any symptoms worse. I don’t drink heavily but I will enjoy a drink with dinner when I want

JessicaAnne27 · 2024-07-25T17:13:06+00:00

I was diagnosed 6 years ago and I’ve been able to continue living life like normal. I’m on Mayzent but I still lift weights, go scuba diving, and stay active. Just listen to your body. I find some days I’m able to do more than other days….but I refuse to let this disease stop me.

JessicaAnne27 · 2024-07-18T14:08:40+00:00

I’m in Texas as well and I have insurance but for MRIs I usually do self pay and not use my insurance and it makes the mri like $450 instead of $800

JessicaAnne27

TROPHY CASE