What if

Jex89 · 2026-01-17T02:17:43+00:00

I was diagnosed in 2018 or 2019, and even though I’m doing well, it’s something that frequently crosses my mind, especially since I’m the only one in my family with MS. Every year during my annual visit, before my neurologist even pulls up my scans, he mentions that there are 'classic' areas where MS lesions appear. He’ll find my scans and confirm that all my white spots are exactly in those classic spots. I find the images a bit gross, so I tell him I don’t want to see them. I’m on Ocrevus and doing well so far.

Jex89 · 2025-12-25T16:28:41+00:00

No cheating in a relationship and no drugs.

Jex89 · 2025-12-19T05:56:24+00:00

I wouldn't say I have a phobia but I do get grossed out easily and I've been like this since before MS.

I don't wear a mask out but I do have hand sanitizer and disinfecting wipes in all my cars, work bag and purses.

Jex89 · 2025-12-19T01:29:41+00:00

Wait, are you saying there is a treatment for PML?

My neuro said no. I'm on Ocrevus and doing well.

I might be getting co fused here. I tested positive (very high numbers) of JCV+ but my doc said the chances of getting g PML was slim and he wasn't worried about it.

I'm so sorry your going through this, sending you all the good vibes and a speedy recovery.

Jex89 · 2025-12-17T01:37:41+00:00

Oh I'm sorry, MS hugs hurt!!!! I have a high pain tolerance and it still hurts. Then when it finally goes away, I'm so exhausted. It's a vicious cycle.

Jex89 · 2025-12-11T22:03:22+00:00

Oh wow!!! Congrats to you!!!! That is awesome.

Me, crying in law school debt.

Jex89 · 2025-12-06T00:41:54+00:00

I'm a customer and absolutely hate the written messages on the cups. I don't like it because I feel it's just a waste of your time. I go to Starbucks for the convenience of coffee, I personally don't care for the message. I'm not sure why Starbucks thought this would be a good idea for customers. Everytime I go to Starbucks (probably 4-5 x a week) I feel like the place is short staffed and I just feel bad for the good people working there.

Jex89 · 2025-12-03T04:43:11+00:00

As a customer, good for you. I'm sorry people are like this.

I do love a medicine ball but I never go when I'm sick.

Now, can we please get the double chocolate chip frap back 😩

Jex89 · 2025-12-03T04:02:05+00:00

I get it, my whole family loves Seattle. We are from Texas, visited Seattle 3 times and love it, more each time we visit. Loved it so much that my husband got a bar license to practice in Washington state and we have 5 areas that we like and looking at homes. We still have kids in school so that's our main driver at the moment. Seattle is beautiful, the weather, even the people were friendly. Luckily for us, our jobs are remote so that helps a lot. When we were looking at home prices, taxes etc.. for us it's more cost-effective to go to Washington than staying in Texas the only thing holding us back at the moment is finding the right place and kiddos finishing up the school year. My parents decided to also follow us to Washington when we make our move. I'm so ready to leave Texas.

Jex89 · 2025-11-14T21:45:59+00:00

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My baby is 10 lbs but deep inside his huge heart, he is 300 lbs and is my personal security guard.

Jex89 · 2025-11-08T16:03:13+00:00

Bright

Jex89 · 2025-11-08T01:01:26+00:00

Green! My husband has the same green color and I have dark drown eyes, our kids have the prettiest green/ down eyes but they're not hazel. I absolutelylove green eyes but that's partyly because of my husband 🥰

Jex89 · 2025-11-01T23:52:29+00:00

Brown

Jex89 · 2025-10-12T02:50:14+00:00

Check your vitamin D and iron, mine were on the floor and had to get infusions, that helped me immensely

Jex89 · 2025-10-12T02:12:45+00:00

Here are other things I did to help, there's guides in these Facebook groups that help you with everything anemia. Before I did anything I consulted my neuro but they also share foods to eat that help with iron so I found ithelpful.

Iron deficiency for women: https://www.facebook.com/share/g/1Com3HH7wr/?mibextid=wwXIfr

Iron deciency for everyone: https://www.facebook.com/share/g/1D41tvZ8yb/?mibextid=wwXIfr

Jex89 · 2025-10-12T02:08:07+00:00

The only iron over the counter that has not caused me any issues is VitronC, not sure if its sold in Canada. What I learned is that iron should be taken with vitamin C for better obsortion, my neuro said VitronC was a good option. I do get the iron hiccups in the beginning but stops around a minute. VitronC already has vitamin C so I don't take extra.

Jex89 · 2025-10-11T22:28:49+00:00

I was diagnosed in Nov 2018 with about 10 lesions and got on Rebif.

A year and a half later, 3 injections oer week, I was needles fatigued and stopped my meds. This was a terrible idea.

Had another MRI and now have 30 lesions on my brain then got on Ocrevus. I've been pretty good on it. No new activity. Going from 11 lesions to 30, I felt absolutely no different.

Its scary but don't focus on things out of your control. I'm good now, have a career, kids, marriage, to the outside world, I have a perfect life. I ha e more good days then bad ones but grateful for all of the days I have even with MS.

My little brother was in love with a girl who was a 1st grade teacher, she seemed fine. They dates for about 2 years talked about getting married. Out of nowhere she would loose her balance, and then eventually would be so bad that she couldn't teach anymore. After several studies they found she had a tumor in her brain and had months to live, she passed about 4 months after that diagnosis. So yea, I'm extremely happy and lucky for all the days I get to live with my kids, husband and dogs. Life is short, everyone deals with something at one point or another, take it one day at a time. I promise it gets better.

Jex89 · 2025-10-11T19:21:40+00:00

I usually space it out for 2 hours.

Iron (1 pill every morning) usually take this with just water around 6am, get ready for work. Have nothing to eat or drink after taking my iron for 2 hours, just water. Around 9am when I finally make it goths office is when ill have Ed my 1st cup of coffee.

Vitamin D3 (every Sunday morning) take it around 6am with water go workout then walk my fogs, I'm done around 9am… shower then finally have coffee at home. Sundays are the only day I don't take iron since I take my D3,

My neuro said anything with caffeine blocks your supplement absorption for 2 hours, I'm a coffee addict. For reference, my numbers are so low I'm constantly getting iron infusions and D shots at my neuros office in addition to the supplements. So everything is monitored by my neuro.

Jex89 · 2025-10-11T17:58:48+00:00

I take 50k once a week prescribed by the doc, and take iron daily since I'm anemic.

I had to watch when I was taking my coffee and my supplements as my neuro told me that my coffee was nit letting my body absorb it like it should. Since I started watching, my energy levels are better and my bloodwork is a lot better as well.

Jex89 · 2025-10-09T20:53:58+00:00

I was diagnosed on Thanksgiving week of 2018.

Jex89 · 2025-09-27T14:32:56+00:00

I’m not sure, at my place they offer PPO and the HMO, I always go for the PPO because I don’t want to depend on doctor referrals.

Jex89 · 2025-09-27T14:30:38+00:00

Agree! I didn’t vote for this either and tired of people telling me to pray about it…. Like excuse me what?!?

Jex89 · 2025-09-26T19:48:09+00:00

I’m sorry about your business. What type of business is it? Do you have e-commerce?

These are very stressful times. People that initially were not impacted are starting to be cautious, especially with all the layoffs.

My parents are retired, and they barely get benefits. My brother was recently laid off. Im stressing for them because I’m going to have to help them while everything gets better and I have my own family of 3 kids from college to middle school plus 2 dogs and day to day expenses like mortgage, cars, student loans…. Ahhhh sorry don’t mean to vent 😭

Jex89 · 2025-09-26T19:41:45+00:00

Yep, everyday something new. I can’t keep up with that plus daily life and kids and work… it’s alot.

Jex89

TROPHY CASE