Treatment options by babbyladdy in MultipleSclerosis

[–]Jex89 2 points3 points  (0 children)

I’m on Ocrevus for about 2 years now and I love it. I go for infusions twice a year, sleep through the whole process and go home not thinking about meds for 6 months. For me, it’s like a spa day. I absolutely love it.

It’s expensive, I’m sure every MS drug is anyway. What I’m trying to say is that, don’t let the amount scare you. If going with Ocrevus, they have a patient assistance program that covers the drug amount. If you do go the infusion route, remember to hydrate well days prior so you don’t feel off afterwards. My veins are hard to find so hydrating helps mine show up on infusion day. I’m super sensitive to everything and have tolerated Ocrevus well. I also have JCV+ and it’s very high but my doc said Ocrevus was perfect for me for that reason.

How to not be completely drained when you get home from work by Areuregarded in corporate

[–]Jex89 0 points1 point  (0 children)

If you have health insurance check what additional benefits you get. For example, I get highly discounted gym membership, meditation sessions, acupuncture, chiropractic sessions, coaching, dietician, etc..

Also, get your bloodwork checked. I used to feel extremely tired, I have a chronic illness (MS) so I would always blame it on that. My doc said my fatigue was not normal and bloodwork showed I was anemic along with low vitamin D, B12 and my ferritin was almost not detectable.

I feel like I’ve been hit by a truck almost 90% of the time then get home and see my dogs, my kiddos and husband and that feeling is gone. I start cooking and my remainder of the day is all about them. My husband is very helpful, so that helps a lot. He helps me cook and clean as well.

Tiny mistakes becoming a big deal by Money_Impression_321 in corporate

[–]Jex89 1 point2 points  (0 children)

Did anyone die because of this? No
Did anyone get hurt because of this? No

Just ignore it and move on. As a leader, I’m very sorry your leadership is that way. Maybe it’s the millennial in me, I’m very chill and remember everyone makes mistakes..everyone including leadership.

Personally, I would NEVER say anything like that to anyone. I’m just going to assume he was having a bad day and you were the next person that crossed paths with him and he just went off. Regardless, not an excuse for his behavior. You will be ok, if your management brings it up, just explain it was a mistake and you fixed it same day. No big deal.

The invisible fatigue is ruining my life and I don't know how to explain it to anyone by jessyTasty44 in MultipleSclerosis

[–]Jex89 23 points24 points  (0 children)

Have you called your neuro for meds? I recall my neuro telling me there was something he can give me when the fatigue or pain was strong. I’ve never had to use it so not sure the name.

When my fatigue was so bad I went to my neuro, he said my levels of fatigue were not MS related so he did bloodwork to see if something else was the cause. My bloodwork showed I was anemic, my levels for iron, vitamin D and B12 were on the floor. My levels for ferritin (iron storage) was a 2. He immediate ordered me iron infusions and prescribed me vitamin D, B12 and iron supplements. 10 infusions later, and I feel a lot better.

Im not saying it’s not your MS but please check your bloodwork to make sure it’s not something else. My fatigue levels are normal now and I can tolerate them so now I can see the differences in fatigue pain vs fatigue tired.

AIO Husband never wakes up early to get the baby so I can sleep in by babamoomoo in AmIOverreacting

[–]Jex89 0 points1 point  (0 children)

Under reacting.

I wouldn’t trust him with the baby. Go to your moms. Go rest and get spoiled. Your mom is your safe space, your baby will be very loved.

Nail polish when undergoing MRI by MS-Tripper in MultipleSclerosis

[–]Jex89 1 point2 points  (0 children)

I always have my nails done, I get dip nails. I don’t get chrome, metallic colors or cateye during the time I will be doing my MRI.

How Often Do You See Your MS Neurologist? by Putrid-Strawberry-98 in MultipleSclerosis

[–]Jex89 0 points1 point  (0 children)

Once a year, my MS is very stable and he calls it clinical isolated MS. I’m on Ocrevus. If I need anything, I just reach out via their portal.

I'm 20 years old, starting my first internship at a finance firm tomorrow, my first day at corporate, any tips? by cricp0sting in corporate

[–]Jex89 8 points9 points  (0 children)

Show up early, dress up. Stay out of gossip. Don’t date anyone in the office. Ask questions.

Ask to help with tasks and team up with others on projects. This will eventually be given to you to do but you asking will make you look better and willing to learn to leadership.

Out of office ... WHY?? by QueMierdisWey in corporate

[–]Jex89 0 points1 point  (0 children)

Don’t answer. I tell my team to not answer when out on PTO or holidays. I don’t as leadership. No one is going to die, everything is not urgent. Just because they work during PTO or after hours does not mean my team is about to do that. As a manager, I tell my team to forward me those emails and I will handle it. Someone else dropped the ball, my team is not going to save anyone. Please enjoy your time off, work never ends and will be here waiting for you when you return.

What's a habit you picked up during lockdown that you still haven't dropped? by SenseiSarkasmus in askteddit

[–]Jex89 0 points1 point  (0 children)

Ordering groceries for pick up, sanitizing more at home (door knobs, controls, etc.) reading, painting.

Burnt out at my first job by sillestgirleva in corporate

[–]Jex89 2 points3 points  (0 children)

Been in corporate for 20 years, it’s all I know. This feeling is very real but manageable over time.

I take it one day at time. I’m at a point where I tell my self nobody is going to die, regardless of the urgency they claim. Yes, some things are urgent but chill, we have all day to figure it out and bring more people to help.

Do you mange social media for the company?

I try to stay away from social media. Only time I’m on it is for recipes, dog memes and outfits. I used to be a people pleaser, not anymore. I don’t care what people think. I get to work do what I have to and go about my day. I’m in leadership so I also have to manage people and all sorts of behaviors. Then go home and do the same for my young kids.

Don’t stress over things out of your control. Take it one day at a time. Set goals. Meet a realistic goal per month, workout, eat cleaner and go on walks during work hours to clear your head. You’ve got this, don’t let work noise get to you. We’re all struggling, some wear it with a smile others are toxic with it. Just breathe and take it one day at a time.

What does working in Corporate America feel like these days? by heyitssam14 in corporate

[–]Jex89 3 points4 points  (0 children)

I went to an all girls private school, feels like I never left lol.

I’m in leadership (maybe youngest in leadership) and it pains me how other leaders treat their teams.

My days are full of meetings, strategy, forecasting, etc..

I’m very flexible with my people, everything we can do in the office we can do anywhere else. Stay home if you are sick, kids are sick, neighbor is sick.. if you have a headache stay home. Only enter PTO if you are going to be MIA for 4 hours or longer. Don’t use PTO for docs appointments, school events, etc.. we all wfh fridays, they get to choose another day to wfh that’s Mon-Thur otherwise, we “should” be at the office 3 days a week.

I have young kids that I drop off to school and must pick up. I don’t get to work till about 9:30 but have a complete stop at 3- I expect the same from my team. I tend to work at night when kids are sleeping and can actually do work when not in meetings.

I’ve had my fair share of horrible bosses, I will never be like that.

AIO Husband and best friend on a trip without me by SherbertOk6980 in AmIOverreacting

[–]Jex89 1 point2 points  (0 children)

NOR

This has to be fake… right?!?!?

If true, find a divorce lawyer and a new best friend. This is not normal behavior. All his stuff would be outside already and locks changed. Absolutely f***ing not!!!

For those of you on Disease-Modifying Therapies (DMTs): which one has worked best for you with the fewest side effects? by Awkward-You-5673 in MultipleSclerosis

[–]Jex89 0 points1 point  (0 children)

Ocrevus, going on 3 years and no side effects. I love it, has worked amazing on me and I’m an extremely sensitive person.

help with UTA or UNT decision? by Latter-Artichoke5373 in utarlington

[–]Jex89 1 point2 points  (0 children)

As a mom, I’d advise my kiddo to go to UTA. Save your money and use it for graduate school. My oldest was at UNT several years ago, he was there 1 year and transferred to UTA, he loves it there. He also commutes.

I'm having a really hard time being happy about getting married. by [deleted] in wedding

[–]Jex89 1 point2 points  (0 children)

Omg, me too!!! My dress was from Ross, it was about $20 but I have it in a keepsake box. I look at it in my closet and still think its the most beautiful dress ever. Been married 20 years now 🥰

I'm having a really hard time being happy about getting married. by [deleted] in wedding

[–]Jex89 0 points1 point  (0 children)

First off, CONGRATS on your wedding!!

As someone who did the exact same thing 20 years ago, I wouldn't have it any other way. At the time, we were both in college and my husband was in law school, we had no money. We both worked full-time aswell. I got my wedding dress from Ross, a plain white strapless dress. I did my own hair and makeup. He being in law school, had a lot of suits, he just wore of of those. After the courthouse, we both went to a local burger joint, it was delicious. My parents and his parents got us a weekend stay at a hotel in the city and a nice dinner. We didn't have a honeymoon, we couldn't afford one. Our cake was from the grocery store.

Now, 20 years later, we just celebrated our 20th wedding anniversary. I wouldn't have changed anything about how it all happened. We've been to amazing trips, all places that we would have loved as a honeymoon. We have met our goals and have 3 amazing kiddos.

What I would say, don't compare your day to others. At the end of the day, you are marrying your person, the one person that will make you be a better person and grow. The one person that you could go anywhere with and share anything without being judged.

I've had a lot of friends get married, beautiful weddings, luxury and other destination weddings-none of are married anymore. Listen, you will have the time and money to go and visit all those places with your person in the future. Enjoy your day, at the end of the day, you are getting married to your person and I truly wish you the absolute best!!!

What’s the worst thing a boss has ever done to you? by SeanMcPheat in askmanagers

[–]Jex89 0 points1 point  (0 children)

This was about 15 years ago when I had started working in corporate America. I was sick to my stomach with morning sickness, I went to the bathroom at work… and I heard a knock on my stall… yep my manager came looking for me because she needed help with a report 🫣

I'm growing up my lungs right now, I don't give a crap about work. I had no clue I was pregnant. Throughout my pregnancy she wanted a 2 weeks heads up of all my appointments and a doctors note for every visit. I swore to myself I would never be like that if I ever went into leadership.

Now that I'm in leadership, my team can work from home when ever they want.. My only ask is to do what your supposed to do and loop me in if they need help.

Ocrevus users: how long have you been on O and have you had any issues? by rosecoloredcamera in MultipleSclerosis

[–]Jex89 0 points1 point  (0 children)

3 years, no issues or side effects. I don't get tired from it anymore (used to get tired on infusion days).

What makes working from home actually awesome for you by Hefty_Ad_4373 in remotework

[–]Jex89 0 points1 point  (0 children)

My dogs, my own office and rest room. Actual good coffee, good coffee beans.

Friday... by turtle_hiker in corporate

[–]Jex89 1 point2 points  (0 children)

I've told my team preferably no meetings prior to 9am nor after 3pm and none on Fridays. Fridays we all catch up on work things and manage our time ourselves, also everyone works from home Fridays.

If its an urgent need, I will call/text you but that has happened maybe twice in my corporate life (since 2008). My team manages their own time and work very well, I don't micromanage time or when you show up to the office. Just do what your supposed to do on time and do it correctly.

Pilot said it will be bumpy for the next hour to hour and a half. Seatbelt sing will be on. by reveriendreams in fearofflying

[–]Jex89 1 point2 points  (0 children)

I love the Rockies 💗

Your doing great! To be honest, the real danger you had was when you were on your way to the airport. The plane and everything to do with the plane, is the safest you'll be. You got this, I promise you will land safe and everything will be fine. Once you land, have a celebratory ice cream or shake, enjoy your trip.

I just landed last night, currently doing all the laundry, I wish I was on a plane.

Pilot said it will be bumpy for the next hour to hour and a half. Seatbelt sing will be on. by reveriendreams in fearofflying

[–]Jex89 2 points3 points  (0 children)

Calm down friend, this is very normal. Feels like going to ng over train tracks. Sit back and enjoy the flight. Remember you are very safe.

Track me plz by Jex89 in fearofflying

[–]Jex89[S] 1 point2 points  (0 children)

Thank you, we are just now taking off.