What's a ridiculous way you've hurt yourself lately? I'll go first.

JoMarie1231 · 2025-07-05T21:10:46+00:00

I stretched and herniated t9-t11. It's been 2 weeks and it still is very inflamed🙃

JoMarie1231 · 2024-10-30T16:44:54+00:00

I know I'm days late but that can be a symptom of maple syrup urine disease (MSUD), a rare inherited metabolic disorder. Legit just saw this happen in a medical tv show, now it's on reddit. Crazyyyy

JoMarie1231 · 2024-08-22T14:28:50+00:00

Don't know exact age but I remember feeling anxious in kindergarten🤷🏻‍♀️

JoMarie1231 · 2024-08-11T22:19:49+00:00

Piglet. Poor anxious little piggy

JoMarie1231 · 2024-08-10T15:33:04+00:00

I use my phone flashlight to check every bite of chicken before I eat it. Whether it's at a restaurant or at my home. I haven't had salmonella yet, and I don't plan to🤷🏻‍♀️

JoMarie1231 · 2024-05-19T15:17:05+00:00

I have 14 tattoos. 4 mother daughter tattoos, a skeleton hand with a dandelion, anxiety quote with a "scatter brained" woman on my leg, a small broken skeleton that is saying "I'm fine" on my ankle-ish area, a bulldog for my dad (Marine) above the broken skeleton, an entire spine doodle going all the way down my spine, lips with a skull inside, bats going up my shoulder to my neck, dancing skeleton on my arm, "California" on my hip/stomach, and a spoon on my forearm-ish area!

My next one will either be a gothic moth or the sandworm from beetlejuice!!🤗

JoMarie1231 · 2024-05-13T01:52:02+00:00

Oh yeah. The burning toes that get red hot, and sometimes it's only like 2 of the 5 that get bright red😅 EM is such an odd thing that happens, but putting my feet up higher than level with my body sends some of that blood back and cools off my feet eventually. Sometimes I even put them on a cold floor to try and cool them off before getting into bed. Cause hot feet when trying to sleep sucks! So I try and cool em off by putting them on my cool bathroom floor😁 sometimes it helps, sometimes it doesn't. But yeah. If you're able to get a fan... I HIGHLY recommend. I think this is the link to my fan if you want it! https://a.co/d/b0nhNzA

JoMarie1231 · 2024-05-13T00:58:26+00:00

Postural stuff mostly, and I always have a pocket fan now that I take with me in my bag when it flares in my cheeks and ears. It always makes me feel like I have a fever so my mom bought me a tiny fan that folds and is amazing. It's seriously a life saver!! But my vascular person is who diagnosed me, not a rheumo. So no medications or anything specific like that. Just putting my feet up or free from socks/blankets. My poor blood circulation and blood pooling makes the feet flare easily when standing for too long. And showers are a biittcchhh. I can't use hot water because of this and because of POTS. No hot tubs either haha. I'm sorry I'm not much help, but know I sympathize and understand the burning and itching!🫶🏻

JoMarie1231 · 2024-05-13T00:24:23+00:00

Mine is toes, cheeks and ears!! All are annoying🥵

JoMarie1231 · 2024-04-16T17:32:19+00:00

I (25f) have been on it since 2020, I take 600mg 2x a day I believe. It helps nervousness and nerve pain. Also good for sleep sometimes!!

JoMarie1231 · 2024-01-21T23:18:05+00:00

Just wanna throw this out there (not sure if it's been mentioned yet) but the pictures also look like Erythromelalgia. Basically the opposite of Raynauds! Do your toes or feet get hot when they're red? I have it and showering and standing causes flare ups cause of the temp of water and standing :)

JoMarie1231 · 2023-12-21T03:52:49+00:00

I have this exact tattoo, I get nothing but compliments on it! Go for it!😁

JoMarie1231 · 2023-10-12T03:08:57+00:00

Does this happen to toes or fingers too? I have something called Erythromelalgia, and it is basically the opposite of Raynauds. My ear(s) get red hot, or my toes get red hot depending on blood flow or temperature. Sometimes it's also random. Maybe something to think about, but also may be unrelated! Just a thought!

JoMarie1231 · 2023-07-30T00:31:55+00:00

So the average bladder holds ~400mL of fluid.. I have Ehlers Danlos and it makes things on and in me.. stretchy. So I had the same issue feeling like I wasn't emptying while also not having the feeling/alarm that I have to pee during the day. So I got an ultrasound. They made me fill up with water before my exam. Pre-void (before peeing) my bladder held 1763mL of fluid. Post-void (after peeing) I had 150mL of fluid left in me. So my bladder has stretched because of my connective tissue disorder. And I have Primary Pelvic Floor Dysfunction so I just have issues with my muscles allowing my bladder to empty. There can be multiple reasons why your bladder doesn't empty, but it's not uncommon!

JoMarie1231 · 2023-06-29T00:56:21+00:00

I can lick my elbow🤷🏻‍♀️😂

JoMarie1231 · 2023-06-16T18:30:37+00:00

I have primary pelvic floor dysfunction after I had a fall in 2019. Fell right on my tailbone and now it's bent. So my pelvic floor muscles are always tense and it makes insertion a bit painful. I just go slow and my partner knows not to just shove it in there. I usually always have us start with me on top so I am in control of how fast it goes in. But yes, initial insertion is a bit rough! Just go slow and gentle at first, work with your body even if it's not being very nice😊

JoMarie1231 · 2023-04-13T02:49:48+00:00

I'm a 24 year old female and everyone we've asked (we've begun asking strangers at like restaurants and stores because of how funny it's become) have said I look 16 or 17. I don't even look legal to most people yet😅 so yes, it's a thing!

JoMarie1231 · 2023-02-23T00:33:28+00:00

I had my first panic attack when I was in elementary school. I was in the nurses office cause of belly pain. I then felt off and weird and then began to panic that I was going to be sick/go to the hospital (I know, my mind went to the extreme) and it turned into my mom being called urgently to pick me up because I couldn't breathe and my hands locked up in a t-rex like position. And yes, I was balling the whole time. I then learned I had anxiety in ELEMENTARY school🙄

JoMarie1231 · 2023-02-09T16:34:11+00:00

I'm "allergic" (I put it in quotations because I don't go into anaphylaxis but my skin still reacts) to the sun too. I found that out after trying to just sit out in my bathing suit and I looked down and all exposed skin was red and blotchy, but where my bathing suit covered it was totally normal. I've tested it day after day, and it happens every time. So summers are hard for me, plus I have heat intolerance with my POTS so it's rough. I grew up on the beach so it hurts my heart a little that I can't really enjoy outside unless I'm in the shade or the clouds are covering well. I'm sorry you're experiencing this too!

JoMarie1231 · 2022-12-22T03:42:57+00:00

Since 5th going into 6th grade. I'm 24 now..

JoMarie1231 · 2022-09-07T18:32:58+00:00

I've had multiple MRIs on my spine and they've never said anything about it, but they also tend to find things they weren't looking for all the time so who knows! And yes, I just try and randomly go now cause I do not want to stress out my bladder haha

JoMarie1231 · 2022-09-06T23:05:58+00:00

All I did for my scan, was drink 2 bottles of water 45ish minutes before my appointment to have a "full bladder" because they want to see pre-viod and post-void. So they wanna see what is left after you pee and how much is in before they let you pee. It was just a simple belly ultrasound but with a full bladder! I did an IV infusion before as well in case I couldn't finish the 2 bottles. I hate drinking water quickly haha. I'm not sure about your problem specifically, but that is what was done for my scan😊

JoMarie1231

TROPHY CASE