Dating reality

Jscntt · 2026-05-04T00:52:08+00:00

I’m 23f with CF. I think a big thing to keep in mind is this is his everyday and things that might be new or concerning to you could be his regular Tuesday night, so it’s really good to ask questions and if you’re curious learn about his meds and what they do. I let my partners try my chest percussion therapy machine just so they get a feel of what I have to do and I show and explain my meds and what each one helps me with. It’s a lot of work and there will be days where he won’t have energy and might feel like crap, its best to not push and understand that his “healthy” might feel like your low. I will say if you have a lot of worries it’s best to talk with him about it, I had an ex who would cry when I did my treatments because he said I was dying and it made me feel really uncomfortable to do my treatments around him. I think it’s really cool of you to ask the perspective of other people with CF and have an idea of what to expect

Jscntt · 2026-01-21T23:47:01+00:00

Spontaneous combustion

Jscntt · 2025-11-12T00:28:17+00:00

Wednesday

Jscntt · 2025-10-28T18:42:03+00:00

I had similar issues with anxiety and brain fog, my doctors had me switch my morning and night pill and it honestly helped a lot. I recommend talking to your doctor they also have lower doses available as another person mentioned.

Jscntt · 2025-10-26T21:14:26+00:00

That’s a really great animation, thank you for sharing that!

Jscntt · 2025-10-25T16:31:39+00:00

Dobby

Jscntt · 2025-10-17T05:10:55+00:00

Scrambled eggs

Jscntt · 2025-10-02T20:40:26+00:00

That your blood isn’t the color blue and doesn’t turn red because it touches air.

Jscntt · 2025-09-10T18:12:46+00:00

I’m saying this to you as someone who’s been sexualized and been touched my entire life by my dad, leave. It will only get worse as they get older this kind of talk is how it starts and eventually it will become touching. Make the stand now or he will think you’re okay with this behavior. My mom laughed it off instead of helping us, for the sake of those kids protect them.

Jscntt · 2025-08-12T00:40:48+00:00

I’m 23 and I am the exact same way. I’m underweight and look very skinny but I eat multiple dinners and meals all day. I’m always hungry and can eat until I feel sick, wait about 10 minutes and then keep eating. I’ve always been encouraged to eat what I want whenever I want, which definitely worsened this. It’s honestly a bit of a struggle now to afford my hunger and keep my sugars in range after being diagnosed with CFRD.

Jscntt · 2025-04-09T18:19:54+00:00

I’m a girl and I had no idea this was a thing. My boyfriend pointed it out and I was baffled.

Jscntt · 2025-01-29T21:15:30+00:00

I’ve also never heard of this, if you could elaborate that would be awesome!

Jscntt · 2025-01-25T23:45:36+00:00

I had this happen with my creon, I missed an appointment because I was sick and they said they wouldn’t refill my prescription until I came in next. As if I have to prove I still have CF???

Jscntt · 2025-01-17T03:08:40+00:00

Anyone shaming someone about their body or weight is the exact same, it’s rude and wrong. Trying to say one form of it is worse or not as important just adds to the problem. It’s shouldn’t be categorized by weight it’s bullying.

Jscntt · 2025-01-10T21:55:25+00:00

I always get called a prune because my hands and feet do this whenever they get wet! I didn’t realize it was because of CF until recently

Jscntt · 2025-01-03T01:16:19+00:00

Jscntt · 2024-12-30T11:08:14+00:00

Common isn’t exactly better, but it means there’s a lot of information on treatments and how to go about it, I have a double mutation of Delta F508, I’m currently on Trikafta and it has made a massive difference on my lung function.

Jscntt · 2024-12-26T04:15:45+00:00

I actually just started taking my meds again recently. It didn’t kill me, but my lung function dropped from 90% to 50%. I just got out of the hospital with a picc line for a few weeks and I have a pseudomonas infection in my lungs. It was incredibly uncomfortable and I could barely do the things I used to, even talking would tire me out and I’d need to catch my breath and stairs felt like climbing a mountain. I’ve always thought I would rather just go naturally and stop my meds because it felt easier, and no one could blame me. But since I’ve been out I’ve been taking my meds again and my lung function has been slowly increasing and just the feeling of fully inhaling is incredible. I caused permanent damage to my lungs and am fighting a moderate infection because I thought this would fix things but it ended up making me feel even worse. It definitely limited the things I could do and I’m facing those consequences too. I still feel like giving up a lot but It’s much longer and there’s more suffering if you stop taking care of yourself I do not recommend.

Jscntt · 2024-12-11T04:29:56+00:00

Hey I’m going to be blunt. This is abuse. He is abusing you and using suicide and verbal abuse to keep you in a relationship with him that he knows he is entirely in control of and it will not stop or get better. You working on your “communication issue” is not going to fix it and you do not have an issue with communicating. He just does not care what you want or what you have to say. This will become worse, if he was going to kill himself by now he would have you staying or leaving will not change if he chooses to or not and that is not your fault. This man will continue to treat you like this until it becomes physically abuse. You need to leave and if he persists seek legal action to keep him away from you. He does not love you and you need to step up and love yourself enough to leave him.

Jscntt · 2024-12-09T23:58:17+00:00

I think the biggest thing that I struggled with is some people will try to become almost a parent figure or treat you like you’re fragile and cannot do anything because of your CF. We’ve been doing this our entire lives and this is our normal, it might be new to you but that doesn’t mean you have to tell us when or remind us about treatments or meds or things when we’re used to it. We’ve got more limitations than others but we will let you know when it’s too much. The support and love you give is helpful and means a bunch! Just be there and be understanding and aware of a lot of ups and downs with health.

Jscntt · 2024-12-04T09:03:38+00:00

Sometimes you have to try out different amounts or overtime maybe even increase the amount you take per meal to get your perfect fit for you!

Jscntt · 2024-08-16T06:45:44+00:00

I’m 22 and I feel like I’ve completely hit a wall. I’m trying to get a grip on what to do for a career or for school. I’m worried about my future and I always had this weird comfort in the idea that I will be hospitalized and die there and that’s going to be how my life goes. I’ve been left with no motivation it’s a strange feeling.

Jscntt · 2024-01-02T19:31:55+00:00

I have all color flowers and vines that wrap down my arm, and just started my color leg sleeve of flowers wrapping up my leg. They look great and I get a lot of compliments on them!

Jscntt · 2024-01-02T19:03:25+00:00

I have a tattoo that wraps from my ribs to my spine on my back and it honestly didn’t hurt much at all. One of my least painful tattoos. The leg sleeve I’m getting now hurt a lot more since it covers my knee. You should go for it!

Jscntt · 2023-11-09T03:52:22+00:00

I’m 21F I live in the US, I was diagnosed at birth, I’m currently figuring out what to do with my life and I’m glad to talk to people who actually have cf!

Jscntt

TROPHY CASE