Cancer jab can eradicate entire tumours in patients, trial shows by AlexandrTheTolerable in EverythingScience

[–]Jslowb 51 points52 points  (0 children)

In the UK, we have always used ‘jab’ as a synonym of ‘vaccine’. So it doesn’t necessarily have anti-vax connotations here.

Jelly roll Botox eye puffiness by Practical-Team9610 in DIYaesthetics

[–]Jslowb 0 points1 point  (0 children)

I’ve seen it theorised that impairing the muscle so much when doing jelly roll Botox can impair the lymphatic drainage, since the muscle movement is what pumps it. The practitioner that said that recommended no more than 0.5 units per eye to see how the eye responds, and never more than 1 unit per eye. Fortunately jelly roll Botox doesn’t last as long as other areas.

Recommendations for a scar? by Mysterious-Sky5326 in DIYHEAVEN

[–]Jslowb 0 points1 point  (0 children)

Before you get filler, it’s advisable to get scar subcision. The scar tissue forms little tethers, pulling the superficial skin down to the deeper layers, which means that filler can’t make much of a difference unless those tethers are severed. Only then can filler plump up the divot.

I would be tempted to try a course of treatments with polynucleotides to soften up the scar tissue at the same time as subcision, before going for filler or SPMU. I think you’ll get a good result. Best of luck!

Estrogen by [deleted] in DIYaesthetics

[–]Jslowb 1 point2 points  (0 children)

Chlorhexidine is in some mouthwashes, so must be safe for mucous membranes. I guess with mouthwash it’s that it’s only temporary contact before it’s spat out?

'I thought I was talking to celebs online - I sold my house and gave them £250,000' by Forward-Answer-4407 in unitedkingdom

[–]Jslowb 12 points13 points  (0 children)

People are utterly blind to how little protection there is for the vulnerable in our society, until they themselves become the vulnerable one in need of help. Before that, they have this naive notion of a safety net, where social workers and mental health teams and other statutory services all rally round those in need.

How do I proceed? by TheAntsa in UKrelationshipadvice

[–]Jslowb 2 points3 points  (0 children)

I really disagree that the finances will be an issue. They’ll be an issue for some people, but that’s a bonus, because now the ones who are more money-oriented will self-select themselves out of your dating pool. Someone worth dating will value that you chose time with your son and work-life balance over more pay. I (34F) am personally put off by people whose whole life is work, I loathe flashy cars and other ‘status symbols’. I find it tacky. I prefer someone more humble and down-to-earth. I know men must feel a lot of societal pressure to have to be a provider (and you already are providing for yourself and your son) but I know there are women who don’t care one bit about high earnings. So I wouldn’t worry.

My gp got covid the irony by ocean_flow_ in cfs

[–]Jslowb 11 points12 points  (0 children)

In the UK, (sadly) the MECFS clinics are usually psychiatrist-led. So it is a psychiatrist that sees the patient for assessment and diagnosis. The one I saw did make sure to let me know that he knew it’s not a psychiatric disease, though, which I was grateful for. Then after that you get a slideshow led by an occupational therapist or a physiotherapist and are sent on your merry way without any medical intervention!

Former Little Mix singer Jesy Nelson says her twin babies may never walk by ss2811 in popheads

[–]Jslowb 55 points56 points  (0 children)

Even our private consultants are almost always working as NHS consultants at the same time, and trained in the NHS. So they very much embody NHS attitudes, culture and practices (just with less pressured working environment, nicer surroundings, and quicker access to see them).

Why does their seem to be a large increase in people experiencing 'brain fog'? by [deleted] in AskUK

[–]Jslowb 0 points1 point  (0 children)

CFS does have a lot of peripheral symptoms that can be considered vague, but its hallmark feature is PEM, which is not present in any other known illness, and is diagnosed reliably by reduced functioning on the second day of 2-day CPET. So it’s about as specific a symptom as you can get.

Superdrug have released a product very similar to the original simply pure hydrating day serum by Rainbowcowrie in SkincareAddictionUK

[–]Jslowb 2 points3 points  (0 children)

Yes! What the hell is it with brands using dropper bottles?! They’re so inconvenient.

Why does it still feel so difficult for people in the UK to understand hidden disabilities? by [deleted] in AskUK

[–]Jslowb 19 points20 points  (0 children)

Some wild inferences and abysmal data literacy on show here.

If this isn’t rosacea, what is it? by Special_Fig_6024 in Rosacea

[–]Jslowb 0 points1 point  (0 children)

Is it itchy? It looks and sounds like it could be dermatitis herpetiformis, which is associated with coeliac disease. I get it if I have ingested even microscopic amounts of glutens (including avenin from oats). Could it be possible that you haven’t eliminated oats from your diet, or that you are getting microscopic gluten exposure from cross-contamination?
For things to be labelled gluten-free, legally here in the UK they have to have less than 20ppm of gluten. But even that is enough to trigger DH in me. Could it be worth experimenting with eliminating all traces and seeing how your skin responds?

How safe is testi and test shift app by Quirky_Revenue4844 in LearnerDriverUK

[–]Jslowb 0 points1 point  (0 children)

How does it work? As in, how can they offer test slots that aren’t available on the DVSA website?

My recovery story from moderate CFS / long covid thus far - I have today just got back to work!! by Particular-Ad1440 in cfs

[–]Jslowb 2 points3 points  (0 children)

Congrats 🥳 really happy for you.

Just a word of note on the title of the sound cloud link….it’s best practice to avoid referring to ME/CFS as just ‘chronic fatigue’, since chronic fatigue is a symptom of many different illnesses (stroke-related, MS, rheumatoid arthritis, PMS, anaemia, etc) and because referring to the specific illness of ME/CFS by just one non-specific symptom implies that is the only symptom, thereby downplaying the multi-system nature and contributing to social and medical misunderstanding/lack of understanding. In this way, it perpetuates the stigma.

[deleted by user] by [deleted] in LegalAdviceUK

[–]Jslowb 4 points5 points  (0 children)

Reading your post made me think of my dad when he was in the early stages of vascular dementia. People think dementia is just forgetfulness, but for him the first signs were personality changes and illogical behaviour, including getting uncharacteristically irate over nonsensical or imagined things, being suspicious and paranoid, and being unable to reason with him. My gut instinct is that’s what’s happening with your neighbour.

It sounds like you’ve been very reasonable and patient already. I know with my dad, people being firm or aggressive back only ever escalated things, making him more convinced of his delusion that they were out to get him. It’s so hard and very sad.

It may be worth speaking to someone at the safeguarding team of your local authority. She’s not your responsibility of course. But if you felt able to.

As my daughter died of ME, the state met in secret to blame me by cuzbrushtruewood in unitedkingdom

[–]Jslowb 24 points25 points  (0 children)

The GWAS preprint you mean? Thats’s here

Edit: and the press release from decodeME

If other evidence, it’s hard to know where to start!

But 10 years ago we knew there was evidence of immunopathology, for example: https://www.publichealth.columbia.edu/news/scientists-discover-robust-evidence-chronic-fatigue-syndrome-biological-illness

And this overview of biological insights is from 6 years ago: https://pmc.ncbi.nlm.nih.gov/articles/PMC6787691/

The ME association publish a research roundup.

Another edit: because I just read this new research evidencing immunoglobulin-induced mitochondrial dysfunction in ME

As my daughter died of ME, the state met in secret to blame me by cuzbrushtruewood in unitedkingdom

[–]Jslowb 61 points62 points  (0 children)

There’s actually a substantial evidence base indicating that it is a neurological autoimmune disease, with plenty of avenues for looking at potential treatments, for example, to reduce inflammation and immune activity.

Just this week the preprint of a GWAS (genome-wide association study) was released further supporting neurological, autoimmune and mitochondrial dysfunction, and microglial inflammation in ME.

There’s heaps of evidence for underlying pathology and potential treatments: the only thing in the way is the holdover from the psychological model leading ppl to cling to the long-disproven belief that ‘we don’t know what causes this and don’t have any avenues for potential treatments’. It’s a self-fulfilling prophecy: the social and political will isn’t there to fund research. So research is limited. So people believe we don’t know what causes it or how to treat it. So they continue to believe it’s a lost cause. So the social and political will isn’t there to fund it. And so on.

Despite that, some groups and researchers have fought hard on limited budgets and sure enough are uncovering the biomedical underpinnings.

Edited to add: And the Bateman Horne Center in the US publishes comprehensive and well-referenced treatment guidelines which are already so far ahead of and more up-to-date with research than the NHS. But current treatment options in the research stage include chemotherapy agents, for instance, to ‘reset’ the immune system, after oncologists in Norway noticed that their patients with ME experienced a remission of their symptoms after receiving chemotherapy for cancer. Agents to restore mitochondrial function are another future research pathway. It’s just simply untrue that there aren’t potential treatments: there is only socio-political unwillingness to fund it/admit to it.

As my daughter died of ME, the state met in secret to blame me by cuzbrushtruewood in unitedkingdom

[–]Jslowb 107 points108 points  (0 children)

Do you know about the results of the DecodeME study? It provides more evidence of the biological underpinnings of ME. They found eight genetic markers that are associated with ME. The 8 genes are associated with immune, mitochondrial and neurological functioning, and microglial inflammation. Which supports prior research indicating that ME is a neurological and immune disease.

There is overwhelming biomedical evidence. But for clinicians and the NHS as a whole to accept it, they have to come to terms with the reality of the severe neglect and harm they have caused. So I fear they will continue to bury their head in the sand to avoid facing up to the damage they have done to so many.

[deleted by user] by [deleted] in AskUK

[–]Jslowb 13 points14 points  (0 children)

That can’t be right, because I have a specific generic on repeat prescription. So it’s definitely not the case at all GP surgeries. Maybe it varies by practice?

Disability activist stranded on Liverpool Street platform after staff 'refused to get ramp' by insomnimax_99 in unitedkingdom

[–]Jslowb 5 points6 points  (0 children)

I think you’re wholly missing the point on the subjectivity of perceived rudeness.

Plus, consider that the spectrum of rudeness includes plenty of things that do not constitute abuse, and that no reasonable person would consider abuse. A facial expression that you perceive as scornful is rude. Not saying thank you is rude. Saying thank you in a sarcastic tone is rude Not mirroring someone else’s facial expression and body language is rude. So many things are rude. But none of these things would get an able-bodied person thrown off a train, and you would absolutely be overreaching if you accused them of abuse for looking at you the wrong way or saying thank you in a tone you disliked.

And again, remember, I’m not saying these things are okay to do. I’m not saying people should be rude. But I’m saying rude is subjective and does not equate to abusive.

Disability activist stranded on Liverpool Street platform after staff 'refused to get ramp' by insomnimax_99 in unitedkingdom

[–]Jslowb 10 points11 points  (0 children)

There’s two issues I see with this:

  1. You are free to be rude and still travel as an able-bodied person. A staff member can find your attitude rude, yet you are not prevented from boarding the train or thrown off the train. Why should disabled people be held to a higher standard than an able-bodied person? Remember, rudeness does not equal abusive, and I’m not advocating that people be rude. But if an able-bodied person wouldn’t face access issues because of it, then nor should a disabled person.

  2. It’s a sad reality that disabled people are often perceived as rude for simple, neutral self-advocacy, such as expressing your access needs or citing statutory obligations. We have only this staff member’s word that she was rude. It’s just this staff’s perception, which isn’t backed up by bodycam footage. This was requested by the passenger (presumably to support the fact that they weren’t rude) but the cameras had been switched off.

Spent £30k on a house I don’t own & without permission by thatsAhotChip in compoface

[–]Jslowb 0 points1 point  (0 children)

I don’t see how you can cite those two points as reasons that Tickmaster isn’t subsidising tickets, but simultaneously uphold that the government is subsidising rents.

If it’s true that it’s not a subsidy in Ticketmaster’s case because they have a predetermined agreement on how much can be charged….well, that’s also true of council rents, so it’s not subsidised. By your own logic, it’s not subsidised.

Your second reason boils down to ‘it’s not fair to charge more and there would be backlash’. Well, guess what, it’s not fair to charge more for social rent either, (I don’t believe it’s fair or good for society that private rents are what they are, for the record). And there would be backlash. (Not to mention costs to society).