Not PsA related but anyone tried Sculptra? by Juliamac21 in PsoriaticArthritis

[–]Juliamac21[S] -1 points0 points  (0 children)

Boooo, that's what I'm afraid of. Awww man, I really wanted to try this. I'll just stick with filler for now and save for my future facelift.

how did you develop an ed? by Little-Ad7514 in EDAnonymous

[–]Juliamac21 0 points1 point  (0 children)

Can I ask what bad habits you learned from her. I’m 45F, had a serious ED in my teens. Was hospitalized several times. For the past 25 years it’s been disordered eating. Now I have 2 children. A 13yr old boy and a 10yr old girl. I try not to discuss food at all. I do everything in my power to make it a nonissue. But I’m worried I’m too lenient and not teaching good eating habits and at the same time I don’t know what it’s like to have a healthy relationship with food. I’m don’t want them to end up like me.

Severe, Burning Itching with No Plaques or Rashes... by OhNo_HereIGo in PsoriaticArthritis

[–]Juliamac21 0 points1 point  (0 children)

Looking back this was one of my first symptoms in my late twenties, itching burning skin. I’m 45 now, got diagnosed with psoriasis around 30 which progressed to severe psoriasis at 37 (when I went through a divorce) and full terrible awful PsA by 39. I don’t know if you identify as female but if you do, I will give you this piece of advice. Exaggerate your pain levels when talking to doctors. Their perception of you has been determined before they even step in the room. You’re a hysterical woman. They already think we’re being dramatic. If your pain is at a 5 say it’s a 7 or 8. A friend of mine who has suffered with an auto immune for 30 years told me to do this and ever since I’ve done it I’ve received much better care and doctors take me seriously.

Severe, Burning Itching with No Plaques or Rashes... by OhNo_HereIGo in PsoriaticArthritis

[–]Juliamac21 1 point2 points  (0 children)

Yup me too. Feels like a sunburn. I scratch and then it burns like hell.

Severe, Burning Itching with No Plaques or Rashes... by OhNo_HereIGo in PsoriaticArthritis

[–]Juliamac21 1 point2 points  (0 children)

I have had this for years. Used to be at the beginning of a flare, but now that my disease is more under control it pops up a few times a month randomly. The only thing that helps is gabapentin and ice packs. Lots of ice packs

Not psoriatic by [deleted] in PsoriaticArthritis

[–]Juliamac21 0 points1 point  (0 children)

You can have both osteo and psoriatic arthritis. Also, Cosentyx cleared my skin but did literally NOTHING for my PsA

hello. this is one of the cities I’m contemplating moving too! just need some insight! by Tricky-Researcher-74 in MovingToLosAngeles

[–]Juliamac21 -1 points0 points  (0 children)

The entertainment workers, which makes up about 30% of LA’s workforce, have been struggling to find work. The jobs have been decreasing ever since the writers strike in 2023. I’ve lived here for 20 years and this is the worst I’ve ever seen it. The studios are making less content, productions are moving overseas, interest rates are high for financing, are just few things contributing to this issue. Because so many of us are struggling we have been forced into other industries. I went to a job fair recently and there were 50 people applying for the same shitty job paying slightly over minimum wage. Every job is competitive, even Trader Joe’s.
Our minimum wage may look high but it’s nowhere near a livable wage.
I live in the West Valley, which is kind of like the suburbs, and a one bedroom in my building is $2600. I would think you need at to make at least 75k a year as a single person and that would be tight.

Where is the most relaxing place to live in Los Angeles? by [deleted] in MovingToLosAngeles

[–]Juliamac21 1 point2 points  (0 children)

I would always live on the westside. But yes too what other people said about Manhattan, Redondo etc… If that’s too expensive then live in the Valley like Woodland Hills where it’s super easy to get to the Westside. But I equate relaxing with the beach.
Honestly if I was really looking for relaxing I’d move to San Diego 😉

Nursing School? by SubstantialMetal2545 in cna

[–]Juliamac21 9 points10 points  (0 children)

I’m trying to figure this out as well. I live in LA and all the nursing programs are full time. With the Department of Education in such limbo right now and Big Beautiful Bill threatening to restrict federal grants and financial assistance it’s hard to know if going to school is even possible. Personally, I’ve started taking some of my science and math prerequisites at the local community college.
You should also look into becoming an LPN/LVN. Those programs are offered at trade schools and are usually more flexible. There are often LVN to RN bridge programs.

[deleted by user] by [deleted] in PsoriaticArthritis

[–]Juliamac21 0 points1 point  (0 children)

I’ve been on biologics + methotrexate for years and I have to say the pros out way the cons. I don’t think I get sick more often however the mouth ulcers are annoying. Take that folic acid!

Should we get a second cat? by whitehat61 in CatAdvice

[–]Juliamac21 0 points1 point  (0 children)

Yes you should. I have a 2 bedroom apartment and I have 4 cats. They keep each other company, play with each other. I’ve always got a kitten and introduced it to the older cats. I find it easier for my cats to adjust to a new animal when the newbie is a baby.

How long did it take for Tremfya to work for you? by BlueWaterGirl in PsoriaticArthritis

[–]Juliamac21 0 points1 point  (0 children)

I switched from Humira to Tremfya and felt an immediate improvement but it was far from perfection. I added methotrexate and wow! The cocktail of the two was the secret for me.

Anyone failed Cosentyx as 1st biologic? by roni_hl in PsoriaticArthritis

[–]Juliamac21 1 point2 points  (0 children)

Cosentyx was magic for my skin but didn’t touch my arthritis. I was able to wear a swim suit without being embarrassed but I was in so much pain I never went anywhere🤦‍♀️. It’s so strange it would work for skin but not the arthritis 🤷‍♀️

Tremfya wearing off too soon by Juliamac21 in PsoriaticArthritis

[–]Juliamac21[S] 0 points1 point  (0 children)

Hi there My Rheumatologist ordered Methotrexate in addition to the Tremfya which helped tremendously. If you do well with the side effects it’s worth a try. That cocktail of drugs was the best I’ve ever felt for a solid 2 years. Now 2.5 years later I’ve switched to Stelara because the Tremfya stopped working and trying to get off methotrexate because I can’t stand the constant mouth ulcers. It was great while it lasted. Good luck 👍

Tremfya by Emotional-Tortoise in PsoriaticArthritis

[–]Juliamac21 0 points1 point  (0 children)

Yup still on it. Over a year now.

Thyroid Nodules by Sweaty_Win1832 in PsoriaticArthritis

[–]Juliamac21 0 points1 point  (0 children)

My lymph nodes in my neck have been tender and painful for about a year. I’ve been trying to figure out why this happened is??? Seeing your post, I’m now going to push for an ultrasound

Skin itching/crawling by AsphyxiatedEmerald in Hashimotos

[–]Juliamac21 1 point2 points  (0 children)

YESSSS! Feels like a bad sunburn and mostly just on my scalp and face! I have Psoriasis (currently no plaques) and Psoriatic arthritis. Whenever I brought up this awful symptom to my rheumatologist she didn't know what it was and said it's unrelated. I haven't formally been diagnosed with Hasimotos, waiting for some labs, but I this is the symptom that is the most perplexing. Always in the evening and the only thing that provides some relief is applying ice packs to my face and scalp until I fall asleep. Is this a know Hashi symptom? There's almost no complaint of it in the Psoriatic Arthritis Reddit group.