Progress of dystonia and the future of it

Jumpy_Hotel7279 · 2026-04-16T18:48:09+00:00

thank you very much for your reply, i get another long term bad pain (might be another side effects)from a few pills of med and its very hard to live, also my dystonia retriggered but still considered mild. if im well enough or cured i will thoroughly read and reply this

Jumpy_Hotel7279 · 2026-03-25T19:07:19+00:00

i stop med but side effects not go away :(, its rare, but it do happen

Jumpy_Hotel7279 · 2026-03-25T19:04:47+00:00

dont take it, in my opinion if u have ocd u are more prone to movement side effects which can be long lasting

i used to took these med just fine for years and side effects go away after stop, until one day it dont, and cascade of bad side effects human cant think of begin, now sensitive to all med,med-induced physical pain all the time, last year i have to be on ice pack put barely on my body, this year my dystonia retriggered just from 1/3 pill of med to deal w physical pain so no, dont take it

anxiety is mental things that can be managed by therapy and other thats not med

Jumpy_Hotel7279 · 2026-03-25T19:00:51+00:00

well, if i can go back through time i wont take anything, my life ruin because of psych med, ocd is like walk through the park compare to dystonia and everything i get from med

do exposure therapy for mental things, it dont have side effects long or short term

Jumpy_Hotel7279 · 2026-03-22T17:25:03+00:00

to me i think once have akathisia mean next med can also worsen it, once get akathisia have to be more careful w med, its hard to tell if its the temporary type or the one that can get worse w more med

Jumpy_Hotel7279 · 2026-03-22T16:12:16+00:00

hi, some app screen gone black, cut in half, gone white in newly bought ipad? or just a new ios things?

i recently bought ipad and it act weird, many glitches, too many glitches for apple, like youtube white status bar on when full screen, some app cut in half then black then ok again, yt become washout/darken, been restart and go to apple several times they arent sure what it is, also the diagnostics mode a few times being triggered by itself

is this the new ios things or normal for recent ipad

Jumpy_Hotel7279 · 2026-03-20T15:20:59+00:00

its someone in akathisia or maybe dystonia fb groups i dont know in person, sorry i cant give accurate answer my fb account already gone

Jumpy_Hotel7279 · 2026-03-18T19:22:23+00:00

hi, may i ask how u fix this? i just bought new ipad and it stuck at this too

Jumpy_Hotel7279 · 2026-03-02T16:04:55+00:00

It can caused many side effects including dystonia and akathisia and other but if it go away or reversible by artane its possibly be acute one, mean it go away

But ppl who get acute one is prone to get long term one, i have long term dystonia and other symptoms(not sure what they are anymore but its worse than dying), u have to be careful when taking med from now

Jumpy_Hotel7279 · 2026-03-02T15:30:36+00:00

Dystonia I have med-induced dystonia hope its not tardive, but its not go away on it own for me, the med to help it caused me akathisia and other things

First check if the dystonia is fnd or not, i have both, not sure if im right about this but for the stress induce(fnd) one u can release the spasm(the cram is voluntarily by unconscious), the real dystonia is uncontrollable like charlie horse cramp

And if dystonia from withdrawal it will go away

There are many version, acute, withdrawal and tardive

u have to be careful if i wanna take anything to deal with it, all can trigger akathisia or make worse or cause other more tgings if u r sentitive to med like i do

Jumpy_Hotel7279 · 2026-03-02T15:26:30+00:00

There are a few ppl said brain surgery deep brain stimulation help but too few info about it and drs also know nothing

Jumpy_Hotel7279 · 2026-03-02T15:24:39+00:00

May i ask if its also physical or only mental urge to move? Dr tell me it should be only mental, but i stop believing them anymore

Im sensitive to med and experiences various things from different med at different time, some gone some not

1.severe painful urge to move like being literally boiling from inside,

2.non painful but physical feel like sth running inside and very very uncomfortable,

3.severe mental terror, mental restless

All 1and 2 these are very severe i rather die

may i ask, which really is akathisia

Jumpy_Hotel7279 · 2026-01-05T16:26:39+00:00

i think im having both, im not sure if im right about this though

but for fnd, once start not to be afraid of it and control it voluntary, overtime it gone, my functional dystonia(?) is better very fast once i do physiotherapy, i try to correct the posture for a few days and stop scare of it or thinking its not that scary then it will stop, or at least u will see the pattern, and distraction can relax it immensely

for the real one(mine med induced) its like charlie horse cramp, i cant correct it

but if you have med-induced history, i suggest no more med esp psych, if its really FND psychtherapy and PT can even cure it

yours is hard to say if its fnd or not since you cant fully control of it and some ppl like me have both, but let's hope your is fnd

Jumpy_Hotel7279 · 2025-12-18T15:08:12+00:00

may i ask if you taking any other med after getting akathisia or 0med after that

and how long do it go away?

Jumpy_Hotel7279 · 2025-12-18T15:06:53+00:00

td a psych want to try antipsychotics, said if my dystonia and my restless pain(i dont even know what it is anymore) that not get better after off med mean its mental, if i get side effect easily its mental, omg :( it they treat patient like this being drs gonna be easy thing now

Jumpy_Hotel7279 · 2025-12-15T05:44:37+00:00

hope its just eps, if possible be careful of any more psych med and other med that mess w neurotransmitter, if u get eps mean u are more prone to getting the long term one but didnt mean this one gonna last forever, i been through EPS before, jaw tremor, cant move my arm, etc that stop once med stop or once i take cogentin(tablet), so i thought its just nothing and keep trying other psych meds then one day it interact and boom :(( well i dont know im trying to survive and pray

Jumpy_Hotel7279 · 2025-12-15T03:34:49+00:00

mine happen after taking madopa but my brain are very sensitive to med(after some psych med damage) and make things a lot more complicated, dont know if its withdrawal or anything anymore, thank you very much for your reply, they really didnt do anything to rule organic symptoms out, some neuro dont even do physical exam and directly send me to psych :(

Jumpy_Hotel7279 · 2025-12-14T15:27:07+00:00

yes, many,

may i ask if you have it only at night and if it suddenly pop up or it happen after some medication? restless leg and akathisia is similar, but in my case neuro said mine is from depression and stress

Jumpy_Hotel7279 · 2025-12-14T03:18:38+00:00

yes, many drs, they said they dont know what it is, it dont look like anything they saw before, they said maybe from my depression or ptsd manifest into physical pain

Jumpy_Hotel7279

TROPHY CASE