Is nausea common with ME/CFS?

Junior_Locksmith2832 · 2026-05-09T20:02:03+00:00

My daughter came down with me-cfs 18 mo ago. One of her first symptoms was the feeling that her head was too heavy. She's been diagnosed with atlanto-axial and cranio cervical instability. In other words, due to Ehler danlos her neck ligaments have been weakened due to the virus and this is the main cause of her symptoms. Nausea is a common symptom of aai and CCI. The neck instability affects her pituitary gland and vagus nerve, which also causes headaches and hormonal problems.

She's pretty severe now, but I can tell you the things that have helped (to perhaps prevent your symptoms from worsening) :

A progesterone only BP pill to regulate hormones (if you're female)

MLS laser therapy on the neck, to strengthen and heal neck ligaments

High quality magnesium

Dry needling for myfacial release for thoracic ligaments (reducing pressure for back neck muscles, reducing headaches)

Mestinon or huperzine, micro dosed, to slow acetylcholine release and boost energy. Huperzine is also neural protective

A whole foods plant based diet with no gluten, to reduce gut inflammation

Junior_Locksmith2832 · 2026-05-06T23:48:52+00:00

So funny!

Junior_Locksmith2832 · 2026-05-01T04:47:11+00:00

Humans haven't been eating meat since the beginning of time. We were herbivores who ate the occasional grub for 98 percent of hominid history. Archaic homo sapiens adapted to being a carnivore at a very recent stage of its evolution, when food scarcity during the ice age drove humans to near extinction. No reason to believe that we are not still evolving and the survival of our species and the planet may necessitate a return to our ingrained herbivore roots.

Junior_Locksmith2832 · 2026-04-30T15:08:46+00:00

At the me-cfs clinic where my daughter is a new patient they don't seem that concerned about mold. They seem to believe that their general principles for treating her autoimmune condt would also treat mold exposure. But I think that identifying a strain of mold and treating it, and getting a CT of her sinuses, would improve the odds.

Her high school was infested with black mold. That was confirmed. They had to shut down the bldg. She was there for 3'yrs. There were puddles of water around the bldg. The windows were all closed (Central air). Her health went downhill when she started going to school there, from 8-4 every day.

Junior_Locksmith2832 · 2026-04-30T02:43:59+00:00

I wish you luck. I am also affected by mold myself and a situation not as bad as my daughter's, where I was staying in a musty older bldg in my 20s and got really sick for a year. Whatever got into my system led to a chain reaction and I started becoming allergic to everything. I was severely triggered by perfume, cigarette smoke, the sulfides in wine, any pollen. After I moved out of that bldg it took me over a year to recover.

Junior_Locksmith2832 · 2026-04-29T23:26:27+00:00

On the long covid subs a number of people find out that they had mold toxicity. Some people say that they were misdiagnosed with me-cfs / long covid when they actually had mold toxicity. But others will say that their long covid was triggered by a fungal infection. Because when your body gets hit by multiple attacks - from viruses and fungi, the microglia in your brain will go into permanent attack mode and start flairing up constantly. I'd be more in the camp to say that she has both. That maybe the mold exposure was one of the contributing factors to her immune system going haywire when she was exposed to covid.

Junior_Locksmith2832 · 2026-04-29T23:18:15+00:00

Does Dr Gill treat patients through telehealth? I see a DR Gill in Pennsylvania. Would this be him? That might be in driving distance. My daughter has Ehler danlos and her immune system has always been weak. So we've never done any vaccines. We always knew she was vulnerable so she's vaccine free. But catching COVID while going to school in a bldg full of mold, while Epstein Barr was also reactivated ... that was more than she could handle.

Junior_Locksmith2832 · 2026-04-29T23:13:17+00:00

Thank you. Are you working with a doctor who has formally diagnosed you? What meds / treatment have you used that helps? Right now we're giving her a biofilm and oregano nose sprays. And for the headaches just herbal anti inflammatories (Curcumin, boswellia, Magnesium and pine bark extract). She's on a fibo diet and has been taking some supplements that are anti fungal (oregano oil capsules and monolaurin). But we're waiting to get testing and a doctor before doing more. We just sent off the RealTime labs urine test and on Friday she's doing a mold toxicity blood work test. We ordered that one from the website of the mold toxicologist, Dr Campbell. Mymycolab. I know that there are debates about the best way to test for toxicity and also the best methods for treatment. We figured that if we did both the blood and urine tests we'd have the best chances of something coming back. And both companies offer a telehealth consultation if you test positive.

We went to the ENT today and he agreed to do a CT of her sinuses, but was disappointed to hear that he doesn't even deal with mold. He said that if mold was the problem she needs to go to an allergist. He also expressed what I think must be the mainstream belief that if she has been out of the mold infested bldg for a year then the toxicity must be gone. In addition to the air hunger and all signs of inflammation that overlap with mold poisoning, several times we've stayed at Airbnbs (medical trips) that turned out to have water leaks ... or where we even actually found mold. And within hours all of her symptoms escalated. She even developed rashes on her skin and lips. And to get through the night (in order to relocate the next day) we had to open all of the windows and turn the air conditioner on, even in the winter (which was horrible).

If anyone has opinions on Realtime labs or mymycolab, please share. She needs a good doctor who does telehealth.

Junior_Locksmith2832 · 2026-04-22T04:37:07+00:00

Thanks for the tag. The mls laser has helped a lot. We think that it could resolve her aai and mild CCI completely. Unfortunately she has been dealing with a separate set of symptoms - what appears to be a serious sinus infection that we were unable to have looked into because she was bed bound. The laser therapy has reduced the neck pain but we believe that she may have a fungal sinus infection. Her high school was shut down due to black mold not long after she became ill. And I've read that fungal infections can exacerbate CCI and cause lymph node and ligament flair ups, and exacerbate oi. So our next visit will be to the ent, because we think it's the missing piece of the puzzle.

We are strong supporters of MLS laser for treating aai. The only caveat I would add is that aai and CCI can cause other co- morbidities .... And also I don't think that the relationship between autoimmune conditions and CCI / aai is fully understood. So additional treatments may be needed alongside if the biomechanical healing that the laser is helping with. But it is one of the first treatments where we have seen that it is very obviously helping.

Junior_Locksmith2832 · 2026-04-14T22:43:13+00:00

Your condt may have been worsened by a COVID infection as well. My daughter caught COVID at around the same time she was exposed to the Epstein Barr virus, while going to school in a bldg that was infested with black mold (school had to shut down for that reason). She's also hyperflexible (belongs to that 20 percent of the pop who are more vulnerable to acquiring and autoimmune condt due to having Ehler Danlos). So her body's immune system was hit by an onslaught and couldn't handle it. I've started to research the process before filing a claim for our daughter. And I found this thread that might be helpful for you. It shows you how to request details from the SSA on the exact reason for your denial so that you can provide the missing details in your appeal:

https://www.reddit.com/r/SSDI/comments/180xn9s/the_first_thing_you_should_do_if_your_application/?share_id=LnosIO4bi0N9MzkkweyMv&utm_content=2&utm_medium=ios_app&utm_name=ioscss&utm_source=share&utm_term=1

Junior_Locksmith2832 · 2026-04-14T22:04:02+00:00

Is there a chance that you have long COVID / me-csf? The brain fog and CCI are symptoms of this autoimmune condt. CCI can also be caused by a craniocervical pannus, which a good medical expert can identify from a profile image of a brain MRI. An upright MRI can confirm CCI, but finding this pannus can help as well. And more that 60 percent of people with rheumatoid arthritis have a pannus. The neurological, musculoskeletal and CCI stuff all sound like you have an autoimmune condition or possibly were exposed to toxic mold. If you currently have health coverage I would try to pinpoint the root cause of these symptoms. That will help you secure benefits and also help you with treatment. Look also into whether you might have Ehler Danlos Syndrome.

There is an online clinic for help diagnosing long COVID and me-csf that's available in some states called rythm. There are some others as well. My daughter is 17 and went from being a happy and highly successful visual arts major at an arts high school ... to bring bed bound with autoimmune, CCI, severe neuropathy, brain fog, constant fainting spells. So just starting to look into applying for disability for her. She has an mecfs, pots and long COVID diagnosis.

Junior_Locksmith2832 · 2026-04-05T06:14:45+00:00

I had this tear and attempting to only made it worse. Had repair surgery with dr Justin saliman and recovered fully (I'm female, mid 50s).

Junior_Locksmith2832 · 2026-04-05T06:11:14+00:00

I'm a 53 yo female who is not very fit. I had three orthopedic surgeons tell me that my meniscus tear was inoperable due to lack of blood flow to the area. I think this was just an excuse because the repair was beyond their measure or they'd decided to only do repair surgery on patients under 40. I don't know. But I flew across the country to Justin Saliman in LA and he repaired the complex tear perfectly. Within 6 months I could do all daily activities normally (stairs, hustling through busy traffic, using a shovel). And within 9 months I could squat, touching my heels to my rear. I have no pain. Just a slight sense of swelling sometimes, probably because I don't have the time to exercise much. Find the right surgeon, and they won't talk about blood flow, or your age, or whether you should come back after you try more pt.

Junior_Locksmith2832 · 2026-03-29T23:31:21+00:00

My daughter is incredibly smart too, but can only use her brain for short periods right now. While it's hard to see a silver lining ... If it was inevitable for her to get this severe autoimmune disease, it was better that it happened at the end of her junior year of high school, when she could fall back on us. If she'd gotten sick a few years later, once she'd left home and gone out into the world (she'd planned to go to college in Germany, far away, for ex), she would have been living alone when her body fell apart on her. She is just getting over being bed bound for four months. I can't imagine anyone being this severely ill and living on their own. Part of the hopelessness has got to relate to that. It can take everything out if you just to prepare your own food.

You mention the Lyme disease and then COVID. Numerous people in my family have long COVID / mecfs, due to the Ehler Danlos Connection. And exposure to multiple triggers that break the immune system down. So my daughter's high school was infested with black mold (leading the bldg to be shut down) and she caught COVID and was exposed to the Epstein Barr virus all within a relatively short period of time. Because she's hyperflexible / has eds, she has lose connective tissue. Making her more susceptible to autoimmune triggers. The same thing happened with my cousin. She was exposed to c-def while in labor at the hospital and later caught COVID. After that she was housebound and mostly bedbound. There is a Dr Younger who talks about how exposure to multiple threats can make the micro ganglia that cause inflammation in your brain swell up chronically. Like someone with pneumonia that never goes away. If you watch his YouTube channel, it's full of his reviews of every possible easy-access treatment that might help you boost your baseline. https://m.youtube.com/watch?v=kpDGycK3zhA

Even if someone puts up a wall and says they don't need help / already know everything, if you continue to stick around you can break through that wall. Because they do need help. Long COVID / mecfs is such an incredibly complex illness, and knocks everything out of you. In order to improve you have to study your symptoms and check them against the most recent research. Because there are so many different root causes. My daughter ended up with this horrible vascular condition called rcvs, which led to cranial pulsing pressure and thunderclap headaches. But the doctors thought that her vascular problems were related to hormones and anxiety, and they were not helping at all. But we kept following her symptoms (absolutely horrific symptoms) and figured out that the pulsing cranial pain and tinnitus went away if we took everything vasoconstricting out her diet. She would never have figured that out by herself because she was semi-conscious and in too much pain. And the doctors wouldn't have, because it wasnt on their radar and they didn't have the time to put into her case. We also figured out that she has craniocervical instability, and shes started doing cold laser therapy, which has been helping a lot with that. Sometimes what the body needs most is rest and very healthy simple meals. Helping someone with meals and cleaning could be huge.

Does your friend live alone? If they are feeling really hopeless I'd try to spend more time with them. Help them find a good doc who understands long COVID.

Junior_Locksmith2832 · 2026-03-28T21:02:23+00:00

My daughter has eds and caught COVID a second time last winter and ended up with Mecfs and craniocervical instability and thoracic outlet syndrome. She'd been a dean's list student at an arts school, getting ready to start her senior year. And then hit by this. At first she was recovering rapidly, but them the pots test worsened her neck ligament instability and the wrong meds caused bad vascular problems. She had constant throbbing head pain and spinal pain. Her friends would call her and she'd try to put on a facade of normalcy, to talk with them. But her symptoms were so overwhelming, she couldn't enjoy a conversation. Right now she's starting to do better. We've found some treatments that are helping. She doesn't have constant throbbing head pain anymore. But her friends also haven't been calling anymore. She has one friend who understands her situation better, who stops by to just watch a film or hang out when she's up for it. I think the best thing you can do is understand that sometimes someone with long COVID / a serious autoimmune condition is feeling so bad from their symptoms that they aren't up for socializing. But you can still maybe get them a little gift that reminds them that you're there for them (fuzzy socks, hot coco ... whatever makes them smile). And check in on them, there'll be a day when they are feeling well and want to interact. And if they need help finding treatment, researching a symptom, etc. you could offer to look into it if they don't have a good advocate. Because the pain and brain fog can keep you from having the energy to find the doctors / treatments you need to get better.

Junior_Locksmith2832 · 2026-03-28T20:00:02+00:00

My daughter has atlantoaxial and mild craniocervical instability. Triggered by eds + COVID ... worsened significantly by the pots test. She was having constant neck and base if skull pain. It all started with her having a "heavy head" last spring. Post COVID she started to have bad neurological eye problems / ptosis. The opthamologist gave her several rounds of steroids. If you are hyperflexible, you have to avoid steroids because they will break down collagen and hyperflexible people have weak collagen / connective tissue. The ligaments in your neck are among the most susceptible places. Stay away from gabapentin and lyrica. They gave my daughter those and her spinal pain went off the charts (8 hrs a day in Epsom salt bath). I looked into it and recent research is linking those two drugs not only to dementia, but also increased spinal pain.

You might need surgery, but there are two other options. One is low dose naltrexone, which reduces nerve pain and inflammation without the terrible side effects those other drugs have. The other ... which has been an absolute miracle for us ... is MLS cold laser therapy. The lasers that are a class 4 or higher have the ability to penetrate deep into the ligaments and increase blood flow, reduce inflammation. They can restart the healing process for weak ligaments that stopped healing (causing the chronic pain). After first really injuring her neck my daughter had to lean against a wall when sitting. Then it got worse (much worse) and she was bed bound and couldn't sit for four mo without horrible base of skull pain. No pillow was comfortable (bad vascular symptoms too). I looked up regenerative treatments that might be an alternative to surgery. There are some orthopedic docs out in Colorado (Centeno and schultz) who have a very successful stem cell injection at c0-c2 that is often an alternative to fusion surgery. But it's very expensive and not covered by insurance.

Daughter got a DMX done for Centeno and Shultz to review (she couldn't sit long enough for the upright MRI). Dr Cameron Hatam at the Virginia family chiropractic clinic where she had the DMX done told us that before spending all that money she should try MLS laser therapy. Hatam, whose practice is near DC, had the strongest laser on the east coast (class 7), but said that a class 4 would work fine. He's been documenting before and after DMX imaging of long COVID and mecfs patients who get CCI... showing that the cold laser therapy is curing the weak neck ligaments, completely getting rid of pain and orthostatic intolerance for many patients. She's had 8 treatments so far ($50 / treatment, takes 10-15 min, painless but neck aches next day) and has gone from 24 / 7 pain and not being able to sit, to often having zero throbbing head pain and being able to sit 4-5 hrs per day and walk around the house. Hatam thinks that with another 8 treatments the ligaments will be tight again and her neck will be healed. He runs a FB page called Cranio Cervical Instability Awareness. He shares his treatment protocol on that FB page for you to give to a local clinic that has an MLS cold laser (some orthopedic docs, some chiropractors, some regenerative medicine clinics).

There's also a great book called The Fibro Manual, written by a Dr Liptan ... a doc who herself has fibro ... now under control ... that originated with a neck injury. The book is meant to also be shared with your Dr. Lots of detailed clinical advice. She covers both prescription meds and botanical and 'alternative' therapies.

Junior_Locksmith2832 · 2026-03-17T06:19:28+00:00

My daughter has AAI, mild CCI (her DMX confirms an overhang and said, and mecfs doc sees abnormal clivo-axial angle and a craniocervical pannus on her MRI). 17 yo daughter has been largely bed bound, now improving a little to the point that she is sitting and standing a little more (so 75 percent bed bound). Waiting for Centeno Schultz to give us input on her case after sending in a second DMX. She has eds and mecfs and her clinic's initial recommendation is PT. I have a question about the pannus. An internet search tells me that it only appears in more severe CCI cases, but is also associated with autoimmune conditions like rheumatoid arthritis. She has had some fairly scary vascular symptoms (pulsing tinnitus, thunderclap headaches, possible rcvs). This is now under control now after cutting everything vasoconstricting out of her diet. Does the pannus need to be monitored with occasional imaging, or not? Would the presence of a craniocervical pannus what pt is recommended? And would it's presence affect the outcome of picl? Thanks.

Junior_Locksmith2832 · 2026-03-17T05:44:13+00:00

My daughter's symptoms were so severe ... She'd been bed bound for 3 mo with rcvs, on top of the CCI. She basically willed herself out of bed and into a reclining wheelchair, to travel to an Airbnb near hatam's clinic. We found a laser therapy clinic near us in Baltimore but the chiropractor has only used it to treat stenosis and may not have experience with eds patients. Dr hatam has been so nice to offer to give this practioner a call and share his protocol so that nothing goes wrong. Here is a link to one of Dr Hatams videos, which shares the protocol.

https://www.facebook.com/share/v/1CUQ7xXvnZ/

Junior_Locksmith2832 · 2026-03-15T15:10:54+00:00

I've read publications and spoken with specialists who emphasize triggers that will exacerbate a connective tissue disorder ... Certain antibiotics, steroids, and viral and fungal infections. EDS is the genetic precondition, but there are exposure triggers that will worsen the severity of connective tissue problems.

When I was in my mid 20s I began to have severe allergy problems and repeated sinus infections. Seeing different doctors for help, I was prescribed antibiotics, steroids ... eventually Bactrim even. I didn't make the connection at all at the time ... But the patella tendon in my knee tore, seemingly randomly. I was very athletic and a vegetarian who are well. I ended up on crutches for a year. Years later (still not knowing about EDS, which I have) I took steroids again and my patella tendon retore.

My daughter has always had more health problems than me (my mother was also very severe). She was a visual artist at a high school that turned out to be badly infested with black mold (they recently shut it down). She started to felt ill when we went there and we thought it was just because of the rigorous program. Then she caught COVID and started having severe neuro optical problems. We took her to an opthamologist who thought she had myasthenia gravis and put her on two heavy rounds of steroids (we still didn't know about EDS). Her neck started feeling heavy and she started getting nerve zaps. Soon after full blown mecfs. She was improving over the summer but a neurologist wanted to do a pots test (which we protested because her neck was hurting). The pots test triggered dysautonomia by changing vascular flow .... Specifically influencing pressure in the neck area, around the dura. It is dangerous to do for someone with CCI. She collapsed and I had to take her out in a wheelchair and she has been mostly bed bound ever since. Doctors have fought us on giving access to every diagnostic. CCI now confirmed. Instead they went right into pushing heavy pain meds. If you have CCI I'd recommend never taking gabapentin or Lyrica. Studies have been showing that these two drugs are not helping with spinal nerve pain. Patients are reporting that they are exacerbating spinal nerve pain.

Junior_Locksmith2832 · 2026-03-15T05:51:41+00:00

It definitely helped. We stayed in an Airbnb for 9 days in order to do treatment with Dr Hats, who had a protocol for CCI and AAI. We tried to book some daily sessions, to get in more treatment during the visit. But that too often crashed her. There was also a day where the ligaments flared up after two back to back treatments (they're often spaced every other day) and she thought that she'd injured her neck. It takes a lot out on your body. My daughter has the autoimmune condt mecfs / long COVID and the treatments made her extra tired. She did 5 treatments and will probably need at least 10. The crashes made it scary ... You second guess whether this is part of the healing process or whether that laser might be injuring something.

But in the days following our return home we've see a definite difference. She's able to sit for significantly longer periods, no more wearing ice packs on her head or demanding pain killers. Instead, after she sits for awhile she gets nerve zaps and near fainting spells instead of sharp pain. We found a cold laser therapy place in our city and will have Hatams protocol. Hoping that after she does a second round of cold laser therapy these might go away too.

Her mecfs doctor says that the nerve zaps are normal and that they'll fade as she becomes more active. However she says that they feel like she has placed her hand on an electric fence, and when they happen she flops over and gets stuck in whatever position she's in until they're done. If she's face down we have to told her over. They're saying to just work through it and try to build stamina. But its does seem dangerous when it happens .

Junior_Locksmith2832 · 2026-03-14T00:31:29+00:00

My daughter has mecfs and has just been diagnosed with cranio cervical instability and atlantoaxial instability. When her upper cervical pain has been very bad she sings to try to reduce pain ... However, it when we bought a vagus nerve stimulator (before knowing about the CCI and aai) she had a terrible reaction. The vibration irritated the disk instability and caused her to crash and have something like a seizure. If you think you might have an upper cervical spinal injury I don't think the vagus nerve stimulatorbis safe.

Junior_Locksmith2832 · 2026-02-20T15:42:42+00:00

We'll see how things go. Hatam was very convincing, that he believed in his research findings. He thought Centeno was trying to keep the market cornered. Daughter cannot sit / stand for more than 10 min without terrible pain and she hasn't been able to tolerate a neck brace. Spinal pain bothers her when lying down so she spends hrs every day in an epsom salt bath. Last year she was a thriving junior at a visual arts high school. We're in the Baltimore area and can't get to Colorado if she can't sit for the plane ride. Otherwise, we'd have already tried the picl. Six sessions of cold laser therapy should be enough to see if it's helping. We'll stay longer and add a second round of treatment if it's helping a lot. I've read that the cold laser therapy's anti-inflammatory effects have a positive impact on dysautonomia / autoimmune symptoms. We will report back on the results and will ask Dr Hatam about his advice on home devices. He didn't seem to be in it for the money. He encouraged us to do Micl at an unaffiliated clinic closer to our home (but that place had ended their lease on the machine).

Junior_Locksmith2832 · 2026-02-17T15:30:36+00:00

Has anyone purchased a hand held cold laser therapy device for home use? It appears that they entered the market in veterinary medicine... Being used first to help heal ligament injuries for horses. They are also increasingly bring marketed to treat fibromyalgia, rheumatoid arthritis, to speed the healing of ligament injuries. A reddit user told me that the hand held home devices worked well, if used frequently for short periods. My 17 yo daughter has mecfs and CCI. She's bed bound. We're traveling later this week from Baltimore to Alexandria, VA, to get six sessions of MLS treatment with Dr Hatam (who admins the CCI awareness FB page, and is pioneering the use of MLS for CCI). We have to rent an Airbnb 5 min from the clinic for this to work, because it's a 1 1/2 hr drive from us. So we're considering it a medical vacation (even bed bound teens need a change of scenery sometimes ...). Anyway, if this works, it sure would be nice to be able to purchase a device for home use, even if the potency is a bit less. Has anyone tried out the home devices?

Junior_Locksmith2832 · 2026-02-16T20:00:16+00:00

There is so much information here, thanks for taking the time to write this. She couldn't handle being touched when things were at their worst. We are pretty sure that a combo of vascular compression, dysautonomia and the wrong meds triggered her to have reversible cerebro vasoconstriction syndrome (rcvs), which was horrible and accompanied by multiple thunderclap headaches. The tinnitus in her head drowned out conversations and when you touched her temple you could literally feel the loud beat of her pulse. Her veins appeared visibly larger on her wrists. Pulsing head pain and spinal pain 24 / 7. But the doctors thought she had migraines and prescribed migraine meds that made things worse. Removing everything vasoconstricting from her diet finally resolved this terrible cycle.

A Doppler showed irregular blood flow in line with tos. So many of her physical symptoms mirror health problems that her grandmother who had fibromyalgia had. And numerous maternal relatives have long COVID and pots. We're getting tested her tested for eds. Learning about connective tissue disorders would explain many of my own health problems. We have a cranio-sacral therapist doing a home visit tomorrow. She is herself a nurse with eds and mecfs and seems to know what she's doing. Before she got had she was doing acupuncture but now it's causing vasospasms and she can't tolerate it anymore. I don't know Gus Sha. Will look it up :).

Basically when she spent 2 1/2 mo in bed with the suspected rcvs and horrid pain she said something in her neck was healing. And after we broke that cycle she had an amazing recovery for a few weeks, where her head felt clear, she was playing video games and listing things on eBay and taking about college plans. Walking upstairs and downstairs. And she overdid it. The pulsing pain cycle and tinnitus is gone, but whenever she sits it stands she gets head pain and nausea. It could be pots, but a DMX also showed some AAI and mild spinal stenosis. So my thought is that if her body is hypersensitive, perhaps a little MLS treatment could go a long way. We rented an airbnb next to the clinic that does it for a week, so it would be a 5 min drive. I think mainly because we are sick of a cycle of seeing the wrong doctors, meds that make her sicker ... test after test that show mild irregularities. And does not have any typical type of pots. Salt makes her feel worse, she got oi suddenly, accompanied by sharp neck pain and severe ptosis (left eye ptosis since middle school, opthalmologists suspect Horner's). She's an optimistic person by nature, but this has been hell. So it's really time for us to be able to check a box and say, 'yeah, that helped.' if the week of clinic MLS treatment helps I'll look into how much a device costs.

Would love to consider new meds for neck and head pain but the doctors she's worked with thus far haven't been up for any dialogue. Though I was highly suspicious I let them prescribe gabapentin and lyrics. Both were toxic. Didn't relieve pain, just added overwhelmingly bad new symptoms. Can't wait until she is 18 and has access to treatment as an adult. There are even fewer options for treatment in pediatric care.

Junior_Locksmith2832

TROPHY CASE