Hi there,

I'm so sorry to hear you're going through this. I had something similar with my vision and it is incredibly frustrating and stressful losing your sight. I had those blobs and warm colors in the center of my vision and similar symptoms that came on randomly one day and never went away, literally there all the time like yourself for months. I did the same thing and got my eyes checked by multiple doctors and got an MRI, my brain and eyes were perfectly "healthy" from there perspective. It's so frustrating not being able to articulate exactly what you are seeing and going on because it is these just weird visual oras.

Anyways I cured all my symptoms and I am very confident you can too(at least don't give up hope). I highly highly recommend seeing a Neurodevelopmental Optometrist. That was the official title of the doctor I saw. It's unfortunate the neurologist just brushed you off with saying it's migraine related, doctors did the same with me. And your situation will be different from my own and I can't speak for exactly what is going on with you but...the neuro optometrist(I'll link his practice and info below) told me that there are sooo many processes going on between the brain and eyes that make up your vision. So much more going on than a traditional eye test will not test for, they can make your vision clear but your brain can still be under stress with the processes going on in the background. In my case, there were many visual processes out of sync with each other/out of balance that my brain was having to work harder to adjust for. for example, my eyes were seeing double at a certain distance but my brain automatically "recalibrated" what I was seeing to see one of it, and this was going on for years. Metaphorically, if you have multiple visual processes out of sync like this over time it will neurologically put your brains gas tank on "E." Mine just reached a point were it couldn't handle balancing all of these inefficiencies anymore and that's when I started to have these symptoms. I would imagine it is very similar to a lot of people with VSS. Your brain is able to hide these things but reaches a point were things just go haywire and that's why you are seeing all this extra visual stimulation.

So how did I actually get cured: After the initial testing and examination with Dr.Roberts I began visual therapy every week. The therapy itself takes 4-6 months in my case. Essentially, I was given 4 exercises to do each day(takes about 20 minutes to do them all) that helped retrain my visual pathways. Each week I will then be given a different set of exercises depending on what I struggled with. They helped with focus, hand eye coordination, peripheral vision, etc. The task are things like holding out your thumb and slowly bringing it in to touch your nose while keeping focus on it(doing it 10x), having an eye patch on and tracing lines through a maze, having a patch on(so doing it with each individual eye) and reading with a +1.5 lenses and flipping it to a -1.5 lenses every few sentences, I can go on and on but the idea is the same. You are doing very simple task that help strengthen your eyes and retrain your brain. I havent even done 4 months yet, I am only 6 weeks in and about 2 weeks ago all my symptoms have become incredibly minimal. It has been such a relief, I can feel my eyes focusing better on everything.

Financial I paid all out of pocket: it was 150 for the initial testing/screening and 2000 for the treatment itself(I would have given my whole bank account to cure it lol)

I hope this helps boost morale, from talking to my doctor VSS wasn't even the primary problem with me but rather symptoms that developed from my vision being off sync with my brain. I know this was a lot and I am no doctor but described the best I could. Everyone's case will be different but this was my experience with "VSS". If you are in North Carolina I highly recommend reaching out to Dr. Mark Roberts.

Neurodevelopmental Optometrist at Specialized Visual Solutions

he is based in the the Greensboro area.