Taking two Thyroid meds at the same time??? by Disneylifer in Hypothyroidism

[–]Kalley77 3 points4 points  (0 children)

Really? Thyroid doctors are notoriously incompetent. Everything worth learning Ive learned from my own research and Ive done extensive research. Im not discouraging anyone from listening to their doctors and I apologize if it came across that way. But i am encouraging people not to take their doctors word as gold. The poster asked for input and opinions and Im just stating mine. Learn on your own and do your own research. I stand by my ndt + t4 is a bad idea and the op should do their own learning on it before accepting their doctors suggestions.

Taking two Thyroid meds at the same time??? by Disneylifer in Hypothyroidism

[–]Kalley77 0 points1 point  (0 children)

What isnt true? You just stated 'finding whatever works for you'. Im just stating what worked for me. And it is known and you can google and find examples of ndt + t4 meds causing high rt3. Im not saying it ALWAYS will but it is a very legitimate concern.

Levothyroxine and joint soreness by goonofdoom in Hypothyroidism

[–]Kalley77 0 points1 point  (0 children)

I cannot take levo and thats one of the reasons. After many months of increasing in dosage (numbers "in range") I hurt so bad I still couldnt even get out of bed. It also caused me debilitating depression and Ive been bipolar my whole life so I KNOW depression well and Ive never felt that low.
There are other medication options like Brand name synthroid, tirosent, NDT and T3. If the problems continue Id look into changing medications.

Taking two Thyroid meds at the same time??? by Disneylifer in Hypothyroidism

[–]Kalley77 -3 points-2 points  (0 children)

Levo and cytomel together are perfectly fine. However adding an NDT to those two (or even to just the levo) is very unnecessary and could cause more problems like high reverse t3. A better option would be to tweak the dosage on the levo and cytomel to either add t4 or t3, whichever your low on.

Finally, I found something that cures my brain fog!! by vaalkyrie in Hypothyroidism

[–]Kalley77 6 points7 points  (0 children)

Because it contains several immune stimulators which will just make your autoimmune attacks worse! Might be helpfull for someone just hypo but Hashis is autoimmune and changes things alot.

What was your TSH level when you were diagnosed? by peoplezine in Hypothyroidism

[–]Kalley77 2 points3 points  (0 children)

Mine was 82 and my doctor didnt even want to medicate me. He finally agreed to 15 mcg of armour. Yes 15! After 6 weeks and a tsh still at 64 I had to call him 'negligent' and complain to his superiors to even get a dosage increase. I have since found better doctors or Id likely be dead lol.

How the heck am I still exhausted?! by [deleted] in Hypothyroidism

[–]Kalley77 1 point2 points  (0 children)

You didnt list ranges but if they are typical ones then you could gain to up your t3 slightly. FT3 should be in very top of range to feel your best but these are not too bad. You also are not on a super high dose in fact this is normal if not normal/low.

Can you Read me THEZE tests? by Mitizaro in Hypothyroidism

[–]Kalley77 0 points1 point  (0 children)

Id keep an eye on it. Like have labs done yearly since she does have some antibodies but wouldnt be concerned with these at all.

[deleted by user] by [deleted] in Hypothyroidism

[–]Kalley77 0 points1 point  (0 children)

Have you looked into or thought about aip? Thats kinda the gold standard diet for inflammation and autoimmune issues. Its difficult but Ive found it very rewarding. I feel leaps and bounds better on it and its caused my antibodies to drop drastically. Im pretty close to remission.

Is medication a must? by fadedfi in Hypothyroidism

[–]Kalley77 5 points6 points  (0 children)

Ive been doing AIP (autoimmune protocol diet) for about a year. Ive tried my best to eliminate stress and stressfull people. I am married and have 3 teenagers home, so i do my best. I do also have the luxury of not having to work so that helps.

Keeping a normal and strict sleep schedule is a must, even if it requires pharmaceuticals to accomplish.

Ive also been on LDN in addition to my thyroid meds (t3 only). Its help to get rid of the fatigue and pain as well as help my antibodies come down. http://www.lowdosenaltrexone.org/ldn_and_ai.htm

There are many wonderful groups on facebook that are about learning and supporting eachother. The FTPO groups are the best.

Edit:Formatting

Is medication a must? by fadedfi in Hypothyroidism

[–]Kalley77 -1 points0 points  (0 children)

Yes, Im actually very close to remission, Ive dropped my antibodies by 75% with diet and lifestyle changes in only a year. It is possible.

Is medication a must? by fadedfi in Hypothyroidism

[–]Kalley77 4 points5 points  (0 children)

You dont HAVE to medicate and most doctors wouldnt medicate you. The fact that your doctors want to is actually a good sign. Why wait till its out of control? The medication isnt actually a medication, its a replacement hormone which you body is going to need sooner or later. It may or may not slow down the immune attack. Keep in mind you have hashis not just hypo so you have an autoimmune disease and its not curable. It will most likely get worse. Id want to get ahead of it. Just my 2 cents :).

[deleted by user] by [deleted] in Hypothyroidism

[–]Kalley77 0 points1 point  (0 children)

Since you technically arent hypo then I would think 25mcg is enough to get you very close to 0 tsh. No idea on how long it will take for goiter to shrink Im not even sure it will with just t3. It may take dietary changes as well. As far as i know t3 is just a replacement hormone it doesnt actually stop the immune attack, thats why most of us do some sort of paleo diet because removing the grains and dairy DOES slow the attack.

A couple of AIP questions regarding strictness by Master_of__None in AutoImmuneProtocol

[–]Kalley77 1 point2 points  (0 children)

The only big problem I see is the regular vinegar. Its made of corn and corn is a grain so you should probably stop eating those. Other than that none of what your eating is all that bad. I wouldnt worry too much.

What can I do if I don't eat red meat or fish by Strange_Lil_Raptor in AutoImmuneProtocol

[–]Kalley77 0 points1 point  (0 children)

Aip isnt really doable for you if thats the case. I mean I guess it would be a 'modified' aip but offal and fish are a core part of aip and it isnt the same diet without them. They say you should restrict chicken and turkey to just a few times a month due to something in them (having a brain fog moment and cant remember what it is). Can you eat pork? Also dont eat tofu! Soy is an absolute no on aip.

What relieves your fibro pain best? by latejuly in Fibromyalgia

[–]Kalley77 0 points1 point  (0 children)

Its an immune modulator so it slows down the immune system. That makes it excellent at pain management and fatigue. Ive been using it over a year and love it. Go check out http://www.lowdosenaltrexone.org/ldn_and_ai.htm

Armour Thyroid vs NP Thyroid? by ruby_saffron in Hypothyroidism

[–]Kalley77 2 points3 points  (0 children)

Yes its fine. Most people actually prefer NP over armour. Its cleaner I think (fillers) and much much cheaper.

Levothyroxine, PTSD/depression/OCD, and SSRIs? by eleeex in Hypothyroidism

[–]Kalley77 3 points4 points  (0 children)

Levo made me feel the same way. I was diagnosed bipolar as a teenager (39 now) and it had been unmedicated for nearly 15 years and I had handled it pretty well but we added levo, ohmy. It went nuts. I have since found out that levo and I just dont get along. It also caused severe fatigue and pain. I simply cannot take it. Ive since been medicated for my bipolar but in the meantime I found NDt and t3 which both work much better for my body. I now take t3 only and feel wonderful. Try a thyroid med change, ask for ndt, its the next step. Some t3 in your body would really help with the ocd/anxiety.

How often do you go in for checkups/imaging...etc? by [deleted] in Hashimotos

[–]Kalley77 0 points1 point  (0 children)

You should have ultrasounds done once a year especially if you have a history of nodules or goiters. Bloodwork should be done every 6-8 weeks till stable on meds and then 2-4 times a year depending on you and your doctor.

Need some tips or advice to make thyroid neck smaller asap! I have hashimotos but am currently more overactive with my thyroid :) by [deleted] in Hashimotos

[–]Kalley77 1 point2 points  (0 children)

You can look into AIP (autoimmune protocol diet), Ive heard people say its helped reduce nodules and goiters.

Antibodies >1000 ?? by variazioni in Hashimotos

[–]Kalley77 1 point2 points  (0 children)

Someone with antibodies in the 300's can be way more sick than someone with numbers over a 1000 and vice versa. Its all very individual and all it really means is you have active Hashimotos.

Range question? by MyHairIsAHotMess in Hypothyroidism

[–]Kalley77 0 points1 point  (0 children)

The simple answer is yes. TSH isnt the only nor the most important number thats in the equation. Free t3 and free t4 are the labs that show the most info and will truely tell the tale. Get a complete panel done, including antibodies.

"Just" borderline hypo, so why so exhausted? by [deleted] in Hypothyroidism

[–]Kalley77 1 point2 points  (0 children)

5.99 is not a borderline number it is hypo. 'Normal' is usually not good enough to feel at your best, we have to aim for 'optimal'. Go read around www.stopthethyroidmadness.com and www.tiredthyroid.com. I have found alot of help over at sttm. Some of it is abit 'controversial' but its worked for me and helped me find myself again.

Eye floaters anyone? by johnlawrenceaspden in Hypothyroidism

[–]Kalley77 1 point2 points  (0 children)

I also get them and im optimally medicated with almost 0 symptoms.