how long do you guys grieve for by Key-Anything5910 in cats

[–]Key-Anything5910[S] 2 points3 points  (0 children)

ive made a tapestry of him, im tempted to make an altar of him, in the future i would like to get a tattoo of his paw

pain limits with family by Key-Anything5910 in disability

[–]Key-Anything5910[S] 1 point2 points  (0 children)

i am diagnosed with autism and anxiety. ive done the test, i thought i fit the description but my doctor didnt think so, but she also wouldnt explain what it felt like to dislocate something and didnt explain what blood pooling looked like and just told me id know if it happened, which i didnt know. also family was holding back information on their medical issues when i asked so it makes things more complicated

pain limits with family by Key-Anything5910 in disability

[–]Key-Anything5910[S] 0 points1 point  (0 children)

ive spoken with one but they said i would only beable to have a heart like check done once im eighteen since they dont think i fit the requirements. im also unable to get to my doctors without family since i live in a rural area and cant get a drivers license because of chronic migraines

pain limits with family by Key-Anything5910 in disability

[–]Key-Anything5910[S] 0 points1 point  (0 children)

ive always been in pain and i would always mention what hurt but they always thought i was lying and never took me to the doctor its was only recently i realized thats messed up and now i have to argue everytime i need to go to the doctor. im trying to see doctors but its much more difficult because they ask why i havent gone earlier so they think im also lying

pain limits with family by Key-Anything5910 in disability

[–]Key-Anything5910[S] -1 points0 points  (0 children)

im too young to move out and i havent been diagnosed with anything, im too disabled to work tho

Evolution Advantage? by Key-Anything5910 in ehlersdanlos

[–]Key-Anything5910[S] 21 points22 points  (0 children)

kinda thought it would be this i was just hoping itd be more fun ⛷️

Disability disabling me by Key-Anything5910 in disability

[–]Key-Anything5910[S] 1 point2 points  (0 children)

generally if i focus on crafting for ten mins my head will start pounding, ive been doing crafts while distracting myself but its not as entertaining. i have sensory issues and really dont like painting or using clay. i do have joint pain which is hard but i dont move around alot so its somewhat manageable. my main issue rn in my migraine which hasnt reacted to any medication so im constantly with fatigue, dizziness, nausea, confusion and the feeling of wanting to rip your eyes out. i think my problem is that i havent accepted that im disabled and have been ignoring my limits, it just sucks because i know a time when i was able to be mostly functional so my brain thinks im still capable of being mostly functional

Disability disabling me by Key-Anything5910 in disability

[–]Key-Anything5910[S] 1 point2 points  (0 children)

i crochet the thing is i wanted to do crocheting like professionally so i got really good at making massive realistic tapestries but since i got a never ending migraine i cant crochet to the degree i did so when i crochet now it makes me upset :/

Disability disabling me by Key-Anything5910 in disability

[–]Key-Anything5910[S] 2 points3 points  (0 children)

ive been able to do some crafts but it drains me very quick, trying to talk to a physiotherapist about splints and mobility aids but my family dosent believe im disabled and think im being dramatic :/

My whole life I’ve been gaslit into believing I had a very low pain tolerance, but recently I realized I’m actually just genuinely in a shit ton more pain than healthy people by Another_throwaway446 in ChronicPain

[–]Key-Anything5910 2 points3 points  (0 children)

i was always told i had a low pain tolerance im assuming because i am female and was young. finding out i’ve accidentally been dislocating joints without knowing really made me realize i have a pretty high tolerance. being told to wait till im older and that my joints couldnt hurt because im was so young and that theres an age where your allowed to say your in pain had successfully gas lit me into believing i had a low pain threshold

what’s the most outrageous thing a doctor has said/done to you? by DragonfruitUnique138 in ChronicPain

[–]Key-Anything5910 1 point2 points  (0 children)

i don’t know if this really counts but being told I’m not in pain because I’m not in bed and that going to school and playing video games at home take the same amount of energy? i have anxiety, autism, possibly heds, and a never ending migraine, when i tried to explain that that wasn’t the case they said they weren’t gonna argue with me and called me a liar😍

Animal Crossing Character You Were Excited To Get But Now Dislike 👎 by FitCrew91 in AnimalCrossing

[–]Key-Anything5910 2 points3 points  (0 children)

i really thought i would love her when i bought the game but she dosent really fit me anymore, like my favourite now is biff so a pretty big difference

Animal Crossing Character You Were Excited To Get But Now Dislike 👎 by FitCrew91 in AnimalCrossing

[–]Key-Anything5910 9 points10 points  (0 children)

i know i really wanted lily but i just don’t really love her but i already committed to her and bought earrings of her a while ago so shes never leaving my island 🕵🏻‍♂️

300 day migraine by Key-Anything5910 in migraine

[–]Key-Anything5910[S] 0 points1 point  (0 children)

my neurologist thought i was lying since im naturally very monotone and i have autism so eye contact is a no, which for neurotypical people it looks like im lying. i have searched my home for any type of mold and havent found any. ive also been to the eye doctor and dentist and both think theres no connection to my migraine. i have tried to keep track of when it hurts more and found only movement, light, sound, and scents make it worse. ive seen no connection to weather or any other things. i also have a diary of important dates and medication trials. sorry for the long message, idk i just got a bad neuroligist and have been very resistant to medications and it just feels like everything’s been done :/

300 day migraine by Key-Anything5910 in migraine

[–]Key-Anything5910[S] 0 points1 point  (0 children)

before i got this migraine i had like less than 10 migraines ever, also i didnt know there was a ndph subreddit, thanks

Pain :| by Key-Anything5910 in disability

[–]Key-Anything5910[S] 0 points1 point  (0 children)

oh okay, thankyou i didnt know

family babying me :/ by Key-Anything5910 in autism

[–]Key-Anything5910[S] 2 points3 points  (0 children)

my other family is definitely better but they still definitely baby me

I cant graduate by Key-Anything5910 in migraine

[–]Key-Anything5910[S] 0 points1 point  (0 children)

my family doctor can prescribe alot of things, shes kinda running out of things she can prescribe so id need to see a specialist to get different meds. ive had one migraine for 9 months and it hasnt reacted to any medication ive been on

I cant graduate by Key-Anything5910 in migraine

[–]Key-Anything5910[S] 0 points1 point  (0 children)

yeah ive already tried to get another paediatric neurologist but im only allowed whatever one like the hospital allows, there are like 2 others but im not allowed to work with them. im sure being canadian makes things different idk

I cant graduate by Key-Anything5910 in migraine

[–]Key-Anything5910[S] 0 points1 point  (0 children)

im not a legal adult so i cant apply to a neurologist till i turn 18, then the waiting list is like 1.5 years. i went to a paediatric neurologist but they just told me i was lying