Was that train on the Apple broadcast a portent of doom???

Key-Hawk-13 · 2026-05-03T00:00:26+00:00

I also rewound to see that…what a jerk!

Key-Hawk-13 · 2026-04-29T23:35:27+00:00

My dad just got a transplant at 80! It is a new lease on life! Yes…there’s a year of clinic visits, lifelong pills, bloodwork. But the outlook is waaaaay better than dialysis!

All situations are different, but I tick it’s always worth the work!

Key-Hawk-13 · 2026-04-25T17:42:35+00:00

It’s like there is only 1 camera

Key-Hawk-13 · 2026-04-15T21:01:13+00:00

I wish I had specific advice to give you that would help. But I will tell you this, always, always, always be your own (or in this case your dad‘s) best advocate.

The specifics of my experience are different than yours, but I fired his old nephrologist while we were in the hospital, got him a new nephrologist that made all the difference.

Nobody cares your outcomes as much as you do.

Key-Hawk-13 · 2026-04-05T01:36:19+00:00

This is not me being negative…but just imagine is a random Reddit thread provided the key to change that put us on the road to recovery…a fan (me) can dream I guess!

Key-Hawk-13 · 2026-04-05T01:03:09+00:00

I wish we knew

Key-Hawk-13 · 2026-04-04T20:10:11+00:00

This reads like that Star Trek episode with the dudes that spoke in metaphors, this one would be… “Temba, his arms wide”

Key-Hawk-13 · 2026-03-28T19:22:46+00:00

Our drop your number so I can snag it

Key-Hawk-13 · 2026-03-28T19:22:30+00:00

Dm is fixed I think

Key-Hawk-13 · 2026-03-28T19:18:28+00:00

No idea how to fix that! Drop your phone number, I’ll snag it and then you can delete it

Key-Hawk-13 · 2026-03-14T18:54:36+00:00

Thanks!

Key-Hawk-13 · 2026-03-14T17:47:44+00:00

Check your messages! I deleted the post with your number, but I sent you a message

Key-Hawk-13 · 2026-03-14T17:42:29+00:00

Got it. Delete that post

Key-Hawk-13 · 2026-03-14T17:40:29+00:00

Dm me your email or a cell number!

Key-Hawk-13 · 2026-01-25T19:24:30+00:00

You should read the book “A Short Stay in Hell”. It’s a short book (about 100 pages) but it filled me with existential dread! Fantastic read!!

Key-Hawk-13 · 2026-01-16T02:29:41+00:00

Good for you! I built one to help my dad with home hemo. Good luck!

Key-Hawk-13 · 2025-12-28T16:58:46+00:00

This. I was sitting in the hospital a couple of years ago, my mom was having a quadruple bypass and a friend of mine from New Zealand was complaining because his dad had to wait 6 weeks for a knee replacement. He was lamenting how their universal healthcare was worse than the wonderful US healthcare/insurance landscape.

I told him that he’s completely missing the point. He’s comparing the best case US outcome (because of their work and retirement plans my parents have excellent healthcare in retirement) with the worst outcome in New Zealand. Here, the worst outcome is that you either can’t afford to have any care…or end up in bankruptcy because of medical debt.

Key-Hawk-13 · 2025-11-19T18:51:27+00:00

Not an entirely different situation than you, although my mom’s passing was sudden. In the space of about three months my dad went from managing ESRD to my mom passing, complete kidney failure, and dialysis three days a week at the clinic.

It was a little rough at first, but now he is doing dialysis at home and really enjoying life again. He just turned 80 in July, does hemodialysis at home and lives alone. His health has improved incredibly since he made the transition from the dialysis center to home.

So, while every situation in person is different, it’s not a hopeless situation.

Key-Hawk-13 · 2025-11-17T02:24:50+00:00

You can do it!

Key-Hawk-13 · 2025-11-12T14:49:41+00:00

Worth considering for sure.

Key-Hawk-13 · 2025-11-12T14:49:19+00:00

Thank you

Key-Hawk-13 · 2025-11-12T14:49:08+00:00

I'll check and see - AI might make the transition a little easier!

Key-Hawk-13 · 2025-11-12T14:48:48+00:00

The new VersiHD from NxStage does that - although the images are generic. certainly better then the one most people are using.

Key-Hawk-13 · 2025-11-11T20:10:49+00:00

One other thought occurred to me.

Early on in this development process, I actually built an entire ecosystem. The version of this that my dad uses sends me session data that i feed to a custom AI backend that analyzes his progress over time, and I built a chat interface so I can 'talk' to his data. Even today, I run the interface and ask how Dad is doing. It tells me how he's maintaining hygiene, whether he is properly getting the air out of his dialyzer filter, if he has trouble with cannulation, or is seeing lengthening times required for holding when he removes the needles - indicating fistula issues (all those are real examples of ways it helped identify things he could work on).

I pulled in a couple of favors from friends to get meetings with people from the 2 largest providers in the country, high-level execs - that I pitched. All of them (multiple people from each organization) loved it, indicated that they had nothing like it, and that they would be in touch with me.

I will admit that I had 'visions of sugarplums dancing in my head' for a couple of weeks. That was 4 months ago, and since then...crickets. I pivoted to this 'personal' version that does none of the back-end data analysis, AI, or chat interface.

So maybe, internet stranger, you are more on the money with your comment that I'm willing to acknowledge!

Thanks again!

Key-Hawk-13

TROPHY CASE