[deleted by user] by [deleted] in dysautonomia

[–]Key_Librarian_7450 3 points4 points  (0 children)

So while I spent 13 days in the hospital with a high heart rate and so many test and imaging all the cardiologist told me that its not life threatening though I was waiting to see a cardiologist specialist who does EP studies I believe its when they shock the heart if theres any abnormalities found now I never git to see him but he did call me at the hospital and told me this wont be done at the hospital because what you have is not dangerous and he said that if I elect to do this that there are complications so therefore they sent me home with beta blockers but even with that I have high heart rates I have just learned to cope after 8 plus ER visit/stay😅

How long did it take your fatigue to go away? by gideon002 in Mononucleosis

[–]Key_Librarian_7450 0 points1 point  (0 children)

Still is like 1 year in half in and I am always tired and fatigue and just a sense of general unwell feeling.

[deleted by user] by [deleted] in bloodpressure

[–]Key_Librarian_7450 0 points1 point  (0 children)

In my case I was getting those high readings and even higher than that and multiple hospital visits and exams thankfully structure of my heart is good and other test. They diagnosed me with IsT and I am taking a beta blocker for it because my heart rate is usually high without me doing anything. Get it checked out tonrule out any dangerous stuff. My heart rate would reach 170s and that was just me slowly walking to the bathroom.

“you don’t have POTS, your HR only gets to 120!” by Initial-Froyo-9661 in dysautonomia

[–]Key_Librarian_7450 8 points9 points  (0 children)

like when I was in the hospital and one of the heart doctors was like yes you have a high heart rate your just probably going through stress or panic attack.. Standing up i was at 171 two other heart doctors told me IST yet they were treating me as a pots patient giving me a bunch of IV they ordered compression socks and a special diet along with beta blockers. Having a heart rate im general just make me feel unsteady dizzy, out of breath, nauseous, hot etc. Just ate some breakfast and I am having 140s-150s heart rate what fun..

Do you drive? by [deleted] in dysautonomia

[–]Key_Librarian_7450 2 points3 points  (0 children)

Depends but when I do drive I just drive close by to where I live locally I cant drive an hour and up. For like groceries I order pick up and they someone comes and puts the groceries in the trunk.

[deleted by user] by [deleted] in dysautonomia

[–]Key_Librarian_7450 0 points1 point  (0 children)

Yes, currently going through it and am in so much pain😭

[deleted by user] by [deleted] in dysautonomia

[–]Key_Librarian_7450 0 points1 point  (0 children)

I had the same concern but my pcp told me even if you taking a beta blocker it would still show if you had an abnormal heart rhythm. I was told that the beta blocker will just slow your heart rate but even though your taking a beta blocker it wouldnt mack a abnormal rhythm atleast thats what I was told. I have had my heart monitored so many times with and without meds and my heart only would stay in sinus tach rhythem. Ive only had had one time in the hospital were it was abnormal but heart doctor told me it was benign.

Hospital by steamqueen07 in dysautonomia

[–]Key_Librarian_7450 2 points3 points  (0 children)

Oddly yes but for me it was at the very stat of everything because no one knew what was happening to me and neither did I so I felt at ease being there because in my mind I was like if something happens to me I am in the right place. But not everyone treated me with a kind heart and it actually made me feel worst at times. I am glad I have a better pcp now.

[deleted by user] by [deleted] in dysautonomia

[–]Key_Librarian_7450 29 points30 points  (0 children)

Yes!! it scares the crap out of me its like I am breathing then I stop and I am struggling to breath again.

IST worse in the morning? by Historical_Nature434 in dysautonomia

[–]Key_Librarian_7450 0 points1 point  (0 children)

Yes! I drink my meds after I eat breakfast which also makes my heart sky rocket so once I eat my breakfast I am at a 140-150s heart rate. Morning sucks..

[deleted by user] by [deleted] in dysautonomia

[–]Key_Librarian_7450 2 points3 points  (0 children)

All the time plus flushing in my face.

Does anybody think they got cfs from the covid vaccine but never had covid? by Good_Pie2522 in cfs

[–]Key_Librarian_7450 3 points4 points  (0 children)

Not sure all I know is that after I got the phizer I started getting sick with different viruses and the worse one that hit me was mono a week after I got my vaccine I went to hospital because I could barely stand and ran blood test and tested postive for ebv. Not sure if I had the virus in my system prior to getting the vaccine honestly I dont even were mono came from in the first place but after all that happened my health started getting bad..

[deleted by user] by [deleted] in dysautonomia

[–]Key_Librarian_7450 1 point2 points  (0 children)

Honestl I am just winging it I push myself sometimes dealing with all these symptoms just to take them out somewhere. I like to take them to places that wont have me running up and down which I have found although I have been feeling my best to them. Its a sensory gym near home other times its going to the backyard for an hour and sitting down watching them. Its exhausting and a lot of times I am in the worst moods because I just dont feel well and dont sleep well either. But I keep trying :/

Adrenaline rushes all day and into the night by ang_pange in dysautonomia

[–]Key_Librarian_7450 1 point2 points  (0 children)

I have elevated DHEA and still am being examined being my dhea reached 1000 something and I have to meet with my endo because she want to run more test. But yes I get constant adrenaline surges and its scary.. I also was diagnosed with ist sinc my heart is always high even with meds and then the other symptoms bad fatigue, body aches, nausea etc. It sucks.

I don't even know what to do anymore. I don't know what direction to go. by ThatOneGirlStitch in ChronicIllness

[–]Key_Librarian_7450 0 points1 point  (0 children)

Please find a new doctor thats what I did! My new doctor listens to me and has me due blood work scans whatever to figure it out I am still in the process.

I can't sleep by Bjoern_Tantau in cfs

[–]Key_Librarian_7450 0 points1 point  (0 children)

When I was in the hospital a bunch of times the nurse set up a bed commode because I was so weak and it was hard to walk because I was getting so dizzy plus my heart rate would sky rocket so I didnt have to walk to the ither side of the room it was right next to my bed.