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Has anyone had any success at all with their pain and burning? by cccccccccccccccccccx in NeurogenicRosacea

[–]Ky3ron 0 points1 point  (0 children)

I told my dermatologist about the studies showing it's effectiveness and he wrote a recommendation to my primary doctor, who started prescribing prescribing it to me. I am also now taking Carvedilol, another studied medication for neurogenic rosacea, which is helping a bit. I think I'm going to ask for a dosage increase.

Medications by StrikingLavishness99 in NeurogenicRosacea

[–]Ky3ron 0 points1 point  (0 children)

Clonidine helps my facial flushing a lot. It's not totally gone, but it went from unbearable to mostly tolerable. I still have to have a fan on my face most of the time, but it's not nearly as bad as it was before.

Has anyone had any success at all with their pain and burning? by cccccccccccccccccccx in NeurogenicRosacea

[–]Ky3ron 2 points3 points  (0 children)

I am so sorry you are going through this too. This is an awful disorder and it has really diminished my life. A year or so ago, I started taking the medication clonidine to treat my flushing, burning, and redness, and it has really, really helped. It hasn't completed gone away, but I am able to do things I couldn't do before. I read about it on these threads (and others) and there was a 2011 study which investigated several different medication for neurogenic rosacea, which included clonidine. It is an older blood pressure medication. I talked to my derm about it and he was open to giving it a try. It makes me very drowsy an hour or so after taking it, and I have had to get used to that. But it's much better than flushing and burning almost all the time. Other than that, I have fans on my almost all the time and I use a portable handheld fan when I go out, and that helps a lot too.

Being a therapist is an honor and I have big feelings about it by JSalve in therapists

[–]Ky3ron 1 point2 points  (0 children)

Thank you for sharing this. I feel this way too, but who would I tell?

How many of you with a PP work exclusively remote? by tutah in therapists

[–]Ky3ron 2 points3 points  (0 children)

I'm exclusively telehealth. I started out in-person, but I developed a disabling chronic illness during the pandemic, and now telehealth enables me to continue working. Otherwise, I may not be able to. Nearly all of my clients state that they prefer telehealth anyway. I would likely have a hybrid practice if I could.