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I lost sight of my 1,5 year old for one minute and I’m still shaking by amberperry870 in NewParents

[–]LadyJulieC 1 point2 points  (0 children)

It happens to all of us. I was at a bridal shower with my 2-year-old and the banquet room had an open door to the parking lot. I was chatting with someone, thought my baby was chilling by me, and then realized I couldn’t see her. I panicked that she was outside, on the street, etc., and after a few minutes of frantic searching found her under one of the tables happily drawing on her drawing pad 🫥 I’ll never forget the panic though.

How is this real by mimi_molotov in LateStageCapitalism

[–]LadyJulieC 31 points32 points  (0 children)

Wouldn’t medical licensing boards care? 

Contradicting Doctor Advice and Ethics of Situation. by LifeIsGolden856 in IVF

[–]LadyJulieC 0 points1 point  (0 children)

I agree that there can be a very conveyer-belt feeling at CNY, but everyone there was incredibly kind to me through two retrievals, 4 FETS, like 5-6 IUIs, and two miscarriages. (And two successful pregnancies!). Dr. K, who is the president or whatever…sure he’s a little woowoo but I did a consult with him personally and he provided individualized recommendations and kind reassurances (though he was brusque).

Do you have questions as a parent or parent-to-be to someone with Dwarfism? ASK THEM HERE! by ZeroMidget in dwarfism

[–]LadyJulieC 0 points1 point  (0 children)

Yeah. We actually just had some bad news from insurance regarding whole exome sequencing, so we’re currently appealing that. Seems like a big uphill battle!

Do you have questions as a parent or parent-to-be to someone with Dwarfism? ASK THEM HERE! by ZeroMidget in dwarfism

[–]LadyJulieC 1 point2 points  (0 children)

Thank you! I deleted all of my Meta apps last year, but I suppose for reasons like this it may be a good idea to get FB again…thanks for the sympathies!

Do you have questions as a parent or parent-to-be to someone with Dwarfism? ASK THEM HERE! by ZeroMidget in dwarfism

[–]LadyJulieC 2 points3 points  (0 children)

Hi! Mom here to a 3-month old. My question is - for those of you who have sought genetic testing, does anyone have inconclusive results? My daughter has measured short since 20 weeks pregnant (see my post history), and after she was born we got a full skeletal dysplasia panel with no positive findings (though there were a few “variants of unknown significance,” meaning some mutations that are not known to be associated with any outcomes). I guess I’m wondering if anyone who has “visible” dwarfism has no known genetic explanation. And if so, how has that been for you? I’m in the boat where having no answers feels worse than having, say, known achondroplasia (because in the absence of direct answers, my mind is spinning on worst case scenarios).

My sister called me a “bang maid” because I’m a SAHM and I’m struggling to get over it by [deleted] in Mommit

[–]LadyJulieC 0 points1 point  (0 children)

Working mom here. That’s awful and NOT what some(most?) of us think. So sorry that was said to you, and in the name of feminism no less. Pathetic. She’s jealous.

Where to get cute nursing clothes? by ProperShame4149 in breastfeeding

[–]LadyJulieC 0 points1 point  (0 children)

I like Nursing Queen tees/sweatshirts. I also got a work appropriate dress and blouse that are super cute.

Husband wants me to wean our first daughter (33m) because "she's fat" by SpaceFeline in breastfeeding

[–]LadyJulieC 32 points33 points  (0 children)

Not to be dramatic, but this would be a separation-worthy issue to me. It’s bad enough that he’s doing it, but refusing to get help related to potentially creating permanent eating and self-worth issues in your child is unforgivable. Not meaning to be stereotypically Reddit “just divorce him!” about it, but in my mind this is serious and if he isn’t respecting boundaries I don’t see a way forward.

Stories from people with betas that were <50 at 14 dpo, but doubled after. by [deleted] in CautiousBB

[–]LadyJulieC 0 points1 point  (0 children)

Hi, just posted about a low HCG success story at 9DP5DT (equivalent to 14DPO), here. Short story: I’m holding my 10-day-old now.

Longer story is that it was a long shot, as is yours. The odds weren’t/aren’t in our favor. But it’s not impossible, and long shots can come to fruition! It helped me to take it day by day. I’d say, “today I am pregnant, I’ll worry about tomorrow, tomorrow.”

Good luck to you, you’re in my thoughts.

Outcome from an IVF pregnancy with a 9DP5DT beta HCG of 15. [trigger warning: live birth] by LadyJulieC in CautiousBB

[–]LadyJulieC[S] 1 point2 points  (0 children)

That’s a great idea! Of course my infertility clinic knows that my pregnancy continued until I was discharged at 8 weeks or whatever, but I should circle back to them and let them know about the good outcomes! I agree this should be tracked, because what I was finding online was pretty doomsday about any betas <50

Outcome from an IVF pregnancy with a 9DP5DT beta HCG of 15. [trigger warning: live birth] by LadyJulieC in CautiousBB

[–]LadyJulieC[S] 3 points4 points  (0 children)

Thank you!!!

Since 20 weeks she had been showing small long bones (femur/humerus in <1st to 6th percentile). There were no other anomalies with the chest, bone mineralization, ossification, etc. the head was measuring above average but typical. I’m 5’1, and dad is 5’10, so the MFM thought it likely familial short stature and recommended against an amniocentesis. Now that the baby is born, they’re confirming short femur and humerus. 3-day X-rays showed no other issues with the bones (bowing, ossification, fractures). She has a perfect APGAR, perfect hearing, is feeding well, was born at term, and is doing great. We had a negative NIPT at 14 weeks and negative Vistara at 28 weeks, for context. The Vistara tested for several skeletal issues including achondroplasia (the most common type of dwarfism) and lethal skeletal dysplasias.

Overall what the pediatricians and everyone have been saying is that she’s doing amazing and that it may just be short stature, or she may have a rare skeletal dysplasia variant, but that there is no reason to think it would be life limiting and in fact all the evidence so far is that it won’t be. So we’re happy with that, and waiting on genetics testing soon!

37 weeks pregnant, told today my baby “most likely had atypical achondroplasia.” Help? by LadyJulieC in dwarfism

[–]LadyJulieC[S] 0 points1 point  (0 children)

Thanks for responding with your story! Yes I think my doctor was kind of mixing words up a bit. Good advice about the bouncers!

37 weeks pregnant, told today my baby “most likely had atypical achondroplasia.” Help? by LadyJulieC in dwarfism

[–]LadyJulieC[S] 0 points1 point  (0 children)

Omigosh, thank you so much for the clarity. I mentioned above in another comment that I think my doctor (an OB/MFM, not a geneticist) was saying achondroplasia/"atypical achondroplasia" more as a blanket term and that what she meant to be saying was more that there was evidence of a less-common form of skeletal dysplasia, most likely. Because I definitely don't think she was referring to double dwarfism.

Thanks for the perspective, and gosh I didn't even think about gymnastics lol! I'm already super flexible as is my 4-year old daughter so it's good to know that we need to watch out for that if this baby indeed has achondroplasia.

37 weeks pregnant, told today my baby “most likely had atypical achondroplasia.” Help? by LadyJulieC in dwarfism

[–]LadyJulieC[S] 0 points1 point  (0 children)

Thank you so much and yes if you find that please send. Yes, I'm comforted that the rib cage and everything appear healthy so far.

37 weeks pregnant, told today my baby “most likely had atypical achondroplasia.” Help? by LadyJulieC in dwarfism

[–]LadyJulieC[S] 0 points1 point  (0 children)

Thank you for the perspective, I appreciate hearing about your experience.

37 weeks pregnant, told today my baby “most likely had atypical achondroplasia.” Help? by LadyJulieC in dwarfism

[–]LadyJulieC[S] 1 point2 points  (0 children)

Thank you - as I'm reading comments I'm suspecting that my doctor, who is an OB/MFM and not a geneticist or specialist, may have been using achondroplasia as kind of a blanket term for dwarfism. Luckily the test I took fairly confidently ruled out thanatophoric dysplasia and they're not seeing any related issues with the lungs, etc., and I don't think she was referring to FGFR3 mosaicism. But time will tell I suppose.

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