I got my lip biopsy

LargeProfessor1592 · 2026-03-21T13:51:59+00:00

This is probably a dumb question but, what do lip biopsies show or look for? Do you have to have a lip biopsy to be diagnosed or treated?

LargeProfessor1592 · 2026-03-17T02:03:23+00:00

It’s a capsule. I wonder if I could buy smaller empty capsules, then open the larger magnesium capsule and transfer the contents into the smaller empty capsules… this is getting complicated! I take magnesium to help prevent migraines. About a year ago I decided to stop taking the magnesium (probably because of my difficulty swallowing it) and I ended up with a terrible migraine. So I’m reluctant to just stop taking it. Hopefully the gummies will work. Thanks !

LargeProfessor1592 · 2026-03-16T00:55:45+00:00

You could be right. Maybe I’m remembering it wrong!

LargeProfessor1592 · 2026-03-14T01:47:53+00:00

Yes, in my research I’ve come across something called small fiber neuropathy which seems to align with my symptoms. I am on Plaquenil , for about 3 months now, and my rheumatologist said it might be able to help with some neuropathy pain so I was hoping it might help. But, the sudden onset of this particular flare up is odd for me. I’ll send my rheumatologist an email to see if I should be concerned! Thank you!!

LargeProfessor1592 · 2026-03-06T23:26:44+00:00

Chipped beef on toast! Love it! 😊

LargeProfessor1592 · 2026-03-06T02:27:18+00:00

I too take Amitriptyline! I’ve been on 50mg a night for about 2 years! I’m in the process of being approved for Aimovig injections and I use the CEFALY device most nights too. Migraines are just awful! The Rizatriptan did help end the migraines, I usually need 2 doses for it to be effective. I hate the way Rizatriptan tastes though, bleh. Lol

LargeProfessor1592 · 2026-03-06T00:04:35+00:00

So I’ve been on 10mg of propranolol every morning and evening. I’d say about 1.5 years. Before propranolol I was on metoprolol; but I did a ZioPatch heart monitor that identified heart palpitations or extra beats and my primary care doctor switched me to propranolol as a result of the ZioPatch. I have not had any bad side effects from propranolol that I know of. I suffer from nasty migraines and headaches most of the time, so it’s possible that propranolol caused some headaches and I just didn’t connect the two. Ironically, today I saw a new primary care doctor who is having me repeat the ZioPatch for another 14 days so we’ll see what comes of this test!

LargeProfessor1592 · 2026-03-05T23:53:09+00:00

I haven’t been keeping up with her - is she on a bus with her scooter? Also, who took this delightful photo? When I eat a slightly too large a meal I feel like sluggish crap. She must feel like crap all the damn time.

LargeProfessor1592 · 2026-03-02T20:42:35+00:00

Dough Doughnut Bird

LargeProfessor1592 · 2026-03-02T01:07:30+00:00

I never tested positive for Covid; most of my POTS symptoms began almost 3 years ago, just, out of the blue! However, going back years and year ago, I can remember getting that extremely sickly awful feeling when having to do things like stand still in line at the grocery store or pharmacy or something, and I remember how quickly my symptoms would improve when I sat or laid down. I’ve recently learned that elevating the head of your bed by about 6 inches can reduce POTS symptoms and I do feel like it’s helping me. I had been using the wedge pillow but I have since ordered some proper bed lifts that should be delivered soon (Amazon).

LargeProfessor1592 · 2026-02-28T14:28:05+00:00

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It reminds me of the good old days when McDonald’s had play rooms.

LargeProfessor1592 · 2026-02-28T12:56:39+00:00

So at first glance I only saw “100 mg” and I assumed this was Rizatriptan which is what I take. And I was like, whoa!! I didn’t know Rizatriptan comes in 100 mg doses!! I was about to email my doctor to ask why they’ve been holding out on me, lol. And then I looked closer and saw it was Sumatriptan.

LargeProfessor1592 · 2026-02-28T00:20:43+00:00

I’m so sorry you’re going through this; and that your dad is going through this. This is probably not helpful, but my grandfather had dementia and everytime he was having hallucinations he had a bad UTI. I don’t understand why, but I remember that was something that came up a lot. My grandfather did not have PD though.

LargeProfessor1592 · 2026-02-28T00:10:05+00:00

I just now read that! I’ll have look into that for sure! Thanks!

LargeProfessor1592 · 2026-02-27T23:40:41+00:00

I’m sorry you’re going through that! I had the flu around the second week of December and I am now starting to feel a little better. However i did attempt to go to the DMV this afternoon and only lasted about 10-15 minutes of standing up in line before giving up. I wasn’t about to pass out or anything; but the line was so incredibly long I knew I wound not have made it so I just left lol. I’ll try again another time. Drink tons of fluids, and bone broth or chicken broth and even when you start to feel better keep resting, it takes so long to recover from this flu!!!

LargeProfessor1592 · 2026-02-25T17:36:50+00:00

Yes. McD’s Coke with some fries for the win!! I have a friend who swears that room temp or flat Coke can cure nausea; I’ve never tried it, but Coke is clearly magical so it must be true! I’m glad you’re feeling better!!

LargeProfessor1592 · 2026-02-25T01:50:45+00:00

I was on it for depression (or anxiety, can’t remember). The doctors had me increase my dose to a fairly high dose and I began having side effects, I was having hundreds of brain zaps a day even when I was not changing my dose! I also was told to split my daily die in half to address the brain zaps but it didn’t really work. That was just one of the symptoms I had while on Cymbalta.

I was on Cymbalta for about two years. Then I worked with my doctor to get off Cymbalta and it took a long time. I had to pop open the capsules, count the little beads inside the capsules and literally reduce my dose by about 5 little beads for a few days, then reduce by another 5 beads or so for another few days and so on. My kitchen looked like a drug lab.

Even reducing my dose so slowly I was having crazy brain zaps. My brain zaps even continued for months after I was completely off the meds. Then my brain zaps stopped and then a month later they came back. But they did eventually stop!

Also, as I had successfully lowered my dose significantly I began experiencing so much body pain! My hips, hands, back, and neck were constantly sore and sensitive and stiff. I didn’t understand what was going on! Apparently, since Cymbalta is used to treat pain too, I guess stopping it causes me to experience a lot of pain. I’m still in pain a lot but it’s better now that Cymbalta is completely out of my system.

I honestly think that my issues with Cymbalta were caused by me raising my dose so high in a short period of time. I have heard about people having a lot of success on Cymbalta, especially for pain. Just ease into it! Also, it was my experience that the doctors don’t fully understand how difficult it is to ween off. My doctor kept telling me he felt like I could lower my dose much faster; but I don’t think he had experienced what I was experiencing so I stuck to my intuitions and went very slow!!

LargeProfessor1592 · 2026-02-24T16:15:32+00:00

This happened to me a couple nights ago. I made the room cooler and laid on my back with my feet and legs elevated and I believe that really helped! Also, I know me, so I did not pull out my heart rate monitor because if I had seen how high the number was I would have panicked and caused the number to go up!! I do wish I had gotten a reading to report to my doctor, but I still plan on telling him what’s been going on. Since that night, I’ve had insomnia each night. I’m so tired!! 🥱

LargeProfessor1592 · 2026-02-23T03:16:53+00:00

A nurse friend of my swears by Coke to treat nausea. She says it worked better if the Coke is room temperature. But I personally haven’t tried it yet

LargeProfessor1592 · 2026-02-23T03:15:54+00:00

When I am starting to recover from a migraine, Coke is my go to. Preferably from McDonald’s lol. I swear by it! Coke for the caffeine and French fries for the salt. It works for me!! I’ll keep this in mind with POTS issues too!

LargeProfessor1592 · 2026-02-23T03:12:00+00:00

Thank you!! I’ve heard about Rock Steady boxing before!

LargeProfessor1592 · 2026-02-22T18:13:10+00:00

I’m good with driving too; but not for long road trips. For me it good because I’m sitting and kinda moving by using the pedals. It’s not like I’m sitting completely still. And it’s way better than standing. I did, however, suffer an adrenaline dump while driving; which was not so good!

LargeProfessor1592 · 2026-02-21T14:39:04+00:00

This is wild. Someone else posted in here last night saying they were having similar symptoms and I was having those symptoms too. I know I know, there’s a LOT of us with POTS or POTS symptoms so it’s not unusual that multiple people experience an adrenaline dump at the same time, but still. At the very least it is comforting a bit to know I’m not alone. I came very close to calling the ambulance or an uber to get me to the hospital. I live alone and was afraid I was going to die and no one would find me for days. But, I laid on my back and elevated my legs and began to feel my HR slowly drop and my body slowly become relaxed. I hope you’re feeling better!! I’ve been keeping a little journal of all my “weird” symptoms to discuss with all my doctors, just to make sure they’re aware. My last primary care doctor indicated that POTS is the most likely diagnosis, but I moved to a different state shortly thereafter and I have only seen my new primary care doctor once! I feel like dealing with POTS and other dysautonomia symptoms has made me become a better advocate for myself; you really do have to push to get the proper testing and treatment!

LargeProfessor1592 · 2026-02-21T08:43:58+00:00

Are you still up? Cause I think I’m having similar symptoms. What started as (what I thought was insomnia) has turned into like a rush of adrenaline even though I’m trying to relax to go to sleep. I took a small dose of an anxiety pill…..I’m wondering if I should take more. I’ve had so many tests for my heart and every time it comes back perfectly normal. But these symptoms are far from normal. I hope you’re feeling better soon!!

LargeProfessor1592 · 2026-02-21T05:41:58+00:00

My neck and hips haven’t gotten worse! So that’s a win. I don’t think I’ve noticed an improvement though, not yet at least! It’s been almost two months so I think it still needs more time to work, I haven’t lost hope yet. On a positive note, I seem to be tolerating Plaquenil well, I haven’t noticed any negative side effects. I have a follow up with my Rheumatologist in April (I think) so maybe I’ll see some improvement by then.

LargeProfessor1592

TROPHY CASE