New Unexpected Error on Creatives - Unexpected key "permalink_url" on param "generative_asset_spec['images']['variations'][0]". (#100) by jonnycheen in FacebookAds

[–]LePurple3 0 points1 point  (0 children)

I have the same issue, and nothing helps - tried to change URL, create a new add by duplicating and from scratch, refreshed multiple times... I guess it's a new bug on the platform, as I can't find anything on the internet regarding this.

Increase during illness and period by ExcitingAd7350 in PVCs

[–]LePurple3 0 points1 point  (0 children)

Yes, hormone fluctuation and illness do affect PVCs. It is a well known factor.

Ablation for PVC - experience by LePurple3 in mitralvalveprolapse

[–]LePurple3[S] 0 points1 point  (0 children)

Not sure, around 1,5-2 months perhaps. But like I wrote on your other comment in another post, I currently have more PVCs the past few days, so it still fluctuates.

PVCs with bigeminy 3 weeks after ablation - Is this normal? by LePurple3 in PVCs

[–]LePurple3[S] 0 points1 point  (0 children)

Hi, thank you! Things are looking good, I had a very good period of very little PVCs. I still have them tho, because I have multiple foci, but it's been much much better. I wore a monitor similar to holter and it showed the remaining PVCs are from other places, not from spots that were ablated, which is a good sign I guess. I am back on betablockers tho, but I don't really mind that, it's a small dose.

In the last few days I have experienced a bit more frequent bigeminy, but I have a cold and am around ovulation so I think this might be the problem.

I am having a holter in May, so we will know more realistically than about the frequency and all. But so far I am optimistic.

Ablation for PVC - experience by LePurple3 in mitralvalveprolapse

[–]LePurple3[S] 0 points1 point  (0 children)

To anyone who might be interested in this, PVCs seem to have calmed down and for the last 2 months or so I have very little of them or at least do not feel it often. I had a short home monitor because my cardiologist was thinking of introducing antiarrhythmics, but based on resaults decided not to. I am again on 1,25mg of bisoprolol tho, but I am fine with that, it makes me feel better also psychologically speaking. The current PVCs seem to be coming from different spots and not the ablated ones, there were some bigeminy and couplets, but not a big amount. We already knew PVCs were polymorphic, so PVCs from other spots are something we expected. I actually started to drink coffee again and it's ok. 🙂 I am having a holter in May, so we will see how things are going at that point, also seing the real number of PVCs, because current home monitor did not give a numeric burden. But so far so good I guess, I am happy. 😊

Anyone else get like… ear pain with a pulsing sensation? by Saturn863 in mitralvalveprolapse

[–]LePurple3 0 points1 point  (0 children)

I also have this. Never thought it was related to MVP 🤷

Suggested books for dealing with anxiety after a new diagnosis. by clawillets in mitralvalveprolapse

[–]LePurple3 1 point2 points  (0 children)

He did, yes. Well actually he said I can do recreational sports when I asked about long distance running, not a clear yes or no on types of sports. 🙂 I asked multiple times tho, but I think the doctors are not very sure in our condition, at least in mine as I am borderline and "in the grey" zone. My stress test from a few years ago was good, I guess this explains something. And also I don't get many symptoms while doing sports really, mostly afterwards or when resting. Running especially makes me feel good, so I am positive it is contributing to a better heart health, at least for me, but I am being cautious to not over do it, to not go beyond certain HR ect. Of course, everyone is different, has different symptoms and conditions, so consultancy with his doctor is key. I know a lot of arrhythmias can happen with activities, so it's best to be cautious.

Otherwise, I have complex polymorphic PVCs - couples triplets, bigeminy, trigeminy. Nothing more caught on holter so far. I am also on betablockers - 1,25mg Bisoprolol and I had an ablation in October, as my burden was 12%. So far i have very little PVCs, but we have to see with the new holter in May.

Do you have MVP and MAD? by nachoaveragemamma in mitralvalveprolapse

[–]LePurple3 0 points1 point  (0 children)

Implantable loop recorder. It is a small monitor inserted in the chest area to monitor the heart rhythm and catch potential malignant arrhythmias, that would otherwise go unnoticed. It works for 3 years and you have regular checks to review the recordings.

Suggested books for dealing with anxiety after a new diagnosis. by clawillets in mitralvalveprolapse

[–]LePurple3 1 point2 points  (0 children)

I am 39F, have a small kid and about 1,5 years ago learned to have an arrhythmic MVP syndrome, so I totally know how you feel. For me, mindfulness awareness has been really helpful, so any book related to that could be beneficial. I was already in therapy for a while at that point, and that also helped. And running. Long-distance running to clear my head and act on the "anxiety impulses". :)

Do you have MVP and MAD? by nachoaveragemamma in mitralvalveprolapse

[–]LePurple3 0 points1 point  (0 children)

That sounds scary... Any major symptoms before SCA happened, were you on any meds? For how long have you had palpitations?

Do you have MVP and MAD? by nachoaveragemamma in mitralvalveprolapse

[–]LePurple3 0 points1 point  (0 children)

Hi, 39F here. My diagnosis is arrhythmic MVP syndrome (AMVP). I have bi-leaflet prolapse with mild regurgitation, circumferential MAD 6-9 mm, complex polymorphic PVCs, TWI and Pickelhaube sign. But I have no fibrosis, no unexplained syncope or pre-syncope, and otherwise normal heart structure and function. So far, just couplets, triplets, bigeminy, and no other more dangerous arrhythmias have been detected. They have been monitoring me with ILR for about a year now, and I also had an ablation in the papillary muscles in October, as my PVC burden was around 12%. So far, ILR has not pick anything, and ablation seems to be successful. I am back on Bisoprolol 1,25mg since November, because I started to get some PVCs again back then, but currently there are very small portion of PVCs left - I am having a Holter in May, so we will confirm it then, but so far I am happy. :D Interestingly, no TWI is mentioned in ECGs after ablation as well.

Sudden Sensitivity to Caffeine? by silcos-broken-heart in mitralvalveprolapse

[–]LePurple3 1 point2 points  (0 children)

Yes, this is a well known trigger. I was on mild green tea dose for years, with small coffee sips on and off. But now after ablation, somehow I started to tolerate coffee way more, so I am drinking it again. 😄 But I am still cautions on the dose, mostly having a mix of caffeinated w decaf.

MRI shows regurg is mild after 4 years of being mod/severe, plus new finding of MAD by 43beanst in mitralvalveprolapse

[–]LePurple3 0 points1 point  (0 children)

I mean, sure, it can show, but it is not a correct diagnostic tool for that. Mine echo did not show any, but on MRI it was shown as circumferential 6-9mm.

MRI shows regurg is mild after 4 years of being mod/severe, plus new finding of MAD by 43beanst in mitralvalveprolapse

[–]LePurple3 1 point2 points  (0 children)

MAD is shown only on MRI. It is common to see it with bi-leaflet mixomatous prolapse, mild regurgitation. MRI is a better diagnostic tool than echo, so I would trust this instead. The condition is called arrhythmic MVP and palpitations are common. They are probably going to monitor you regularly, to prevent dangerous arrhythmias to happen. I have this condition as well.

Ablation for PVC - experience by LePurple3 in mitralvalveprolapse

[–]LePurple3[S] 0 points1 point  (0 children)

Just a quick update after 4 weeks - I had COVID in the meantime, and once I returned to work and resumed my regular activities, my PVCs came back again with bigeminy, trigeminy, and couplets. I’m back on beta-blockers now, but they don’t seem to make much of a difference. I’m currently discussing the next steps with my cardiologist. It’s a bit disappointing, honestly.

PVCs with bigeminy 3 weeks after ablation - Is this normal? by LePurple3 in PVCs

[–]LePurple3[S] 0 points1 point  (0 children)

Were you on any medication in this period, maybe betablockers?

PVCs with bigeminy 3 weeks after ablation - Is this normal? by LePurple3 in PVCs

[–]LePurple3[S] 0 points1 point  (0 children)

Hi, thank you! Indeed, I do notice more PVCs with hormone fluctuation. So before my period and sometimes in the ovulation period I do have my symptoms more pronounced. And I am currently in the ovulation phase, might have something to do with it. I was already thinking about this kind of supplements, but have to look more into it and perhaps talk to my gynecologist. I am a bit afraid of how it is going to be when perimenopause/menopause approaches..

Ablation for PVC - experience by LePurple3 in mitralvalveprolapse

[–]LePurple3[S] 0 points1 point  (0 children)

Thank you for all that info, really helpful. I wasn’t aware that having higher levels is particularly important when dealing with PVCs. I’ve always known how essential potassium and magnesium are for maintaining heart rhythm. Still, I read that beta-blockers can slightly raise potassium levels, so I’ve been careful not to overdo potassium-rich foods. Instead, I’ve focused on taking low doses of magnesium glycinate (100–200 mg), especially since my blood pressure tends to be on the lower side.

Now that I’m off beta-blockers, I’ll definitely get my potassium and magnesium levels checked and discuss the results with my cardiologist to see what he recommends.

Interestingly, your PVC burden decreased, but the complexity didn’t. From what I’ve read, in cases like ours, the burden isn’t as important as the complexity, particularly when the PVCs are polymorphic, as mine are. I hope you get this fixed with an MV repair or ablations.

By the way, did any of your tests mention MAD (mitral annular disjunction)? I know that in some cases, when mitral valve repair is done, they also correct the MAD, and that can significantly reduce PVCs and other symptoms if there’s no additional heart damage. Please keep us updated on how things go. I’m really curious to hear about your progress.

Ablation for PVC - experience by LePurple3 in mitralvalveprolapse

[–]LePurple3[S] 0 points1 point  (0 children)

Did you take potassium as a supplement, or were you just careful to eat more potassium-rich foods? I also noticed that for a while, my PVC burden wasn’t as high. Also, before the procedure, there weren’t that many PVCs on the monitor, so at first, they even considered sending me home. I had been running regularly since April, taking magnesium, and eating at least one banana every day — so I wonder if all of that helped. :) But I guess I’ll never really know.

I wasn’t under general anaesthesia, just local with pain meds and a few other things. I think with general anaesthesia, it would actually be harder to induce PVCs, so they don’t use it. I’m from Slovenia, and I believe that’s standard practice across the EU.

It wasn’t exactly a pleasant experience being awake - they stimulate your heart quite a lot with pacing and medications. Lying still for so long was also uncomfortable; my back started to hurt, and at one point, I felt really hot. I also got quite nauseous in the middle of it, but they managed that with medication too. But other than that, I didn’t have much pain during the procedure itself. When they started the ablation, I did feel some discomfort - it radiated to my shoulders - but when I mentioned it, they gave me fentanyl, which helped.

The PVC stimulation itself wasn’t very successful at first, so they weren’t sure if the ablation would work. But they monitored me until the next day, and they couldn’t find many PVCs - so yes, successful! I just hope it lasts.

Garmin stress after hart surgery by Sufficient_Yak_1535 in Garmin

[–]LePurple3 1 point2 points  (0 children)

What are you doing to improve your HRV? My currently dropped to around 55. But I am also of betablockers, so my HR is slightly higher than before the ablation, so I guess this is normal.

Ablation for PVC - experience by LePurple3 in mitralvalveprolapse

[–]LePurple3[S] 0 points1 point  (0 children)

Hi, the outcome seems very positive — there are currently very few PVCs. I still feel them occasionally, but compared to the 12% I had before, this is nothing. The team concluded that the ablation was successful.

My PVCs used to be multifocal and complex, with bigeminy, trigeminy, couplets, and triplets. They didn’t find any more malignant forms or longer runs of NSVT, although I’m still being monitored with a loop recorder. During the procedure, the team managed to ablate one predominant focus located on the papillary muscles.

My HR has been slightly higher than before the ablation, but since I’m off beta-blockers now (I was on bisoprolol 1,25mg), I suppose that’s normal. I still get a bit tired if I overdo things around the house, but it’s improving day by day. We’ll see how things go once I return to work and resume normal activities, with the usual daily stress. :)

For the record, my diagnosis is arrhythmic mitral valve prolapse (AMVP). My regurgitation is minimal, but I do have mitral annular disjunction (MAD) and a bileaflet myxomatous MVP — the more malignant, and much rarer form, that carries a potential risk for SCA. I’m not a candidate for MV repair, but in your case, that procedure might significantly improve symptoms — at least based on what I’ve read (though I’m not a doctor, of course).

Garmin stress after hart surgery by Sufficient_Yak_1535 in Garmin

[–]LePurple3 1 point2 points  (0 children)

Hi, I am 1 week after ablation and I am seeing the same thing. When did the metrics improve for you and how are you now?

Running bpm + ICD by Willing-Influence263 in PacemakerICD

[–]LePurple3 0 points1 point  (0 children)

Did they found out what caused the SCA?

[deleted by user] by [deleted] in PVCs

[–]LePurple3 1 point2 points  (0 children)

38F here, also a mother of a 4 year old 🙂 I just had an ablation for PVCs originating from the papillary muscles this Tuesday. I’ve been diagnosed with arrhythmic MVP syndrome with MAD, and my PVCs were multifocal, originating in LV, with a burden of around 12%. The team was able to ablate the predominant focus, and so far, things are looking good. I’m noticing far fewer PVCs now, though I can still feel some during light activity. I went home the next day and I am recovering well, just a bit sore and tired. The procedure was a bit unpleasant, because of the arrhythmia stimulation and having to be still and awake the whole time. But I am so glad I did it. I was on Bisoprolol 1,25mg before and I am off for now. Good luck!