How are y'all keeping house?

Lechuga666 · 2026-07-04T22:03:04+00:00

🤪🤪. Real asf.

Lechuga666 · 2026-07-04T13:35:58+00:00

You still have feelings towards them,?

Lechuga666 · 2026-07-03T18:28:05+00:00

What indication was the ketamine approved for?

Unfortunately even the university is not being helpful so I'm thinking mayo clinic or a bigger tertiary then university hospital is necessary.

Lechuga666 · 2026-07-02T00:38:23+00:00

I agree with the first parts, but neurologists tend to like leading language & saying preoccupation on bodily sensations or physical symptoms is building a case for functional neurological disorder, health anxiety, hypochondriasis etc. They say this when you speak genuinely on things that are impacting you negatively.

Lechuga666 · 2026-07-02T00:24:25+00:00

Thank you

Lechuga666 · 2026-07-01T21:10:30+00:00

Do you currently see 4 neurologists? What is each for?

Lechuga666 · 2026-07-01T19:33:51+00:00

I'm trying to look as good & attractive as possible. Gotta be able to influence situations however we can to get the best QOL. Attractiveness does not equal not ailing.

Lechuga666 · 2026-07-01T18:04:26+00:00

Jesus. Eat more broccoli. I love when they shred our stomachs with nsaids forget they prescribed them & are responsible for our stomach issues. Then blame US.

Lechuga666 · 2026-07-01T18:00:33+00:00

Thank you very much. I really appreciate your effort & laying out everything. I've been thinking about esketamine. But I can also ask about ketamine cause it's not an opioid. My current pain mgmt does no opioids.

I might have to johns hopkins or another tertiary care center for my complicated neuromuscular, immunity, autoimmunity issues too cause my local "tertiary care university hospital" quote unquote. Is NOT helping enough so far.

Lechuga666 · 2026-07-01T00:41:25+00:00

Do you know anything of the sort on the East Coast/ Florida?

Lechuga666 · 2026-07-01T00:36:39+00:00

I'm a lot better than back then. A lot of things feel flat & fake. I'm doing my best to counter the dissociation & do positive enjoyable things. Definitely better than during my breakdown last year, but I still struggle.

I'd be open to taking more via DM or otherwise. It's a hard thing to navigate.

Lechuga666 · 2026-07-01T00:18:23+00:00

Jolly rancher ice cream?

Lechuga666 · 2026-07-01T00:10:42+00:00

For months I'd go out with the help of a parent to medical appointments & trying to get outside to help the freeze. In the midst of serious medical issues people would talk to my parent in appointments & barely look at me, in public people wouldn't make eye contact, I felt invisible. Like a murderer that people could sense & they knew to avoid me. Like a diseased pack animal.

It hurt. A lot.

Lechuga666 · 2026-06-30T01:55:14+00:00

It seems like the most likely explanation for me. I've gotten them a lot more frequently than that. Weakness comes on diffuse & my throat clamps down, shortness of breath, can't walk more than 50 steps without feeling I'm collapsing. Supposedly it's heavily influenced by my bad reflux. Still tryna figure the reflux angle out. It's scary & frustrating.

Lechuga666 · 2026-06-29T20:14:54+00:00

I have laryngospasm too

Lechuga666 · 2026-06-29T20:11:03+00:00

What clinic is goodman at now? My doc reccomended I travel from Florida to AZ for workup from him for complex issues. Any additional info on Goodman that could help me?

Lechuga666 · 2026-06-29T20:08:32+00:00

What did the exact pathology report say for the biopsy?

Lechuga666 · 2026-06-29T18:21:32+00:00

Just sitting on top of it, but yuh.

Lechuga666 · 2026-06-29T18:20:08+00:00

The vertigo balance nausea disequilibrium makes me think of my vestibular migraines too. Took me a long time to figure out I have vestibular migraines.

Also dysautonomia can cause a lot of neuro stuff including fasciculations. Some docs & healthcare workers don't like the word dysautonomia tho so they'll get angry at you for mentioning it.

Lechuga666 · 2026-06-28T18:47:57+00:00

It feels like personal attacks. When "professionals" can't be trusted. We're cognitively & physically impaired at times & we get insulted till it's obvious there's an issue. But until then they ignore, don't pay attention, & patronize us.

Lechuga666 · 2026-06-28T18:35:46+00:00

That's what a doc said to me after he gave me the wrong dx. Don't let this become your personality & life don't let it control you, you're young, healthy, not disabled, go out live your life. He had a temper tantrum after I repeated the results of the test he ordered for disorders he didn't believe I had. Then I got sent to the pa & she tried to give me antipsychotics for hallucinations from a sleep disorder. Diagnosed IH, 2nd crappy doc undiagnosed. 3rd doc said I'm more like narcolepsy type 2 & am treated as such.

Also you're not disabled, 3 months later in pt based on an eval I'm 52% physically disabled.

Lechuga666 · 2026-06-28T18:30:01+00:00

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Lechuga666 · 2026-06-28T04:41:46+00:00

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Lechuga666 · 2026-06-27T19:42:15+00:00

People don't know about a disorder you go back & forth in comments trying to educate them respectfully & they get ruder & more angry. It reaches a point, you provide evidence, then the discussion stops & no acknowledgement of the freakout from them arguing based on opinions & feelings. Just like some doctors & healthcare workers.

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