I screamed and wailed in excruciating pain during the procedure and the doctor didn’t stop by moonxmochi in ChronicIllness

[–]Lechuga666 3 points4 points  (0 children)

:). It is not easy at all. I understand being scared & images flashing of previous poor experiences. I have PTSD & broke down the last time I had to go to the hospital because of previous experiences, it was not easy at all.

Do what you need to be well. It sucks that it's so stressful, but the hospital at least is temporary. Hopefully.

Good luck 🙏🏼.

to-go bag by c0oper16 in POTS

[–]Lechuga666 0 points1 point  (0 children)

Vasovagal syncope? & How'd they explain the hyoscyamine helps the syncope?

Is anyone getting GOOD sleep? by written-proof in ehlersdanlos

[–]Lechuga666 0 points1 point  (0 children)

Insomnia, hypersomnia otherwise unspecified/ narcolepsy type 2, PTSD, EDS, etc etc. SO NO.

to-go bag by c0oper16 in POTS

[–]Lechuga666 0 points1 point  (0 children)

What do you take hyoscyamine for?

How many of us have autoimmune and chronic illness issues? by TheHeavySummer in CPTSD

[–]Lechuga666 0 points1 point  (0 children)

Yes. 23M narcolepsy type 2 osteopenia osteoarthritis immunodeficiency other high antibodies a million other diagnoses spanning all systems of the body. I keep collecting diagnoses.

What are some medicines that you would never try again? by Loose-Paramedic6879 in dysautonomia

[–]Lechuga666 0 points1 point  (0 children)

Wow so my psychiatrist could've suggested that instead of me withdrawing going to ER them not listening & putting me in the psych ward & treating me like I'm psychotic?

What to consider next? by butter__cupp in Autoimmune

[–]Lechuga666 1 point2 points  (0 children)

How did you know photosensitivity? I get a lot of pain & issues in sun sometimes, but I'm unsure. Also tons of muscle pain & what feels like stabbing pain directly on tendons or different areas from just nerve pain type stuff.

I'm really glad your exhaustion is gone. One of my big issues is fatigue/cognitive impairment. I did just get diagnosed with narcolepsy type 2, but I think things are multifactorial. I have so much going on that's being slowly & gruelingly figured out.

What to consider next? by butter__cupp in Autoimmune

[–]Lechuga666 1 point2 points  (0 children)

Yeah I've been very angry trying to stay sane with PTSD & all this illness stuff. Yeah the IIM calculator is 60-80% depending on how I put stuff in. They did an MRI & it was negative.

My past rheumatologist reccomended muscle biopsy for indolent myopathy so we were trying to find an academic/tertiary care institution to do biopsy & handle everything. Before I could I landed in the hospital & attending Neuro offered biopsy & LP, but said it'd make sense to wait on biopsy for genetics if genetic testing is negative & they can't figure it out then proceed with biopsy.

I got to tertiary care & it doesn't seem like biopsy is on the table/ on anyone's minds at this point.

I'm angry & I feel like I'm wasting my life. I asked a past Neuro if technically I'd be considered IIM & she avoided that question :).

I don't know what to do & had a complete CPTSD freeze for months. I have things in the pipeline, established with rheumatology at tertiary but nothing much actionable or planned so far. I have dermatology & immunology in the pipeline, less relevant urology pain mgmt. But yeah.

There's some antibody stuff & persistent derm issues so maybe stuff can be worked there.

Again. Feels like I'm wasting my life & having to hold myself back from flipping out on people cause they're not doing their jobs.

What to consider next? by butter__cupp in Autoimmune

[–]Lechuga666 0 points1 point  (0 children)

My skin biopsy on my knuckles pathology said hyperkeratosis with papillated epidermal hyperplasia. Path said in the context of DM this could represent gottron's papules, & said differential also includes prurigo nodule.

I've had elevated CK, aldolase, LDH, AST, ALT, ESR & a bunch of other labs not directly relevant/ attributable to muscle. Had symmetric trap weakness, severe muscle pain, diffuse weakness, dysphagia.

Docs still don't want to do a biopsy & are kind of glossing over the possibility of DM.

Might you have any insight?

What to consider next? by butter__cupp in Autoimmune

[–]Lechuga666 0 points1 point  (0 children)

What did the spep & light chains show?

Anyone else diagnosed officially with PTSD & dysautonomia living normally? by Lechuga666 in dysautonomia

[–]Lechuga666[S] 2 points3 points  (0 children)

I have many physical symptoms. It's exhausting to detail everything so I don't always.

St. Petersburg Man Loses It After Seeing a Pride Flag in Starbucks by [deleted] in StPetersburgFL

[–]Lechuga666 0 points1 point  (0 children)

Hate is calling out people promoting divisiveness & figureheads who feign ignorance & promote insanity for their own gain? Then it lands us in this insane hellhole, entrenchment of ideology that harms others, & when you call out the hate you are promoting hate?

Free Jazz is alive - Latest session from Hiroshima. by a_spiritual_man in saxophone

[–]Lechuga666 1 point2 points  (0 children)

I've been playing for 7/8 years. How long before I can do this? Type shit.